Cargando…
Guideline on Treatment and Management of Craniosynostosis: Patient and Family Version
The care and treatment of patients with craniosynostosis and the new developments were described for health care professionals involved in this in the guideline “Treatment and Management of Craniosynostosis”, which was revised in 2020. A patient version was written based on the professional guidelin...
Autores principales: | , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Lippincott Williams & Wilkins
2023
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9794150/ https://www.ncbi.nlm.nih.gov/pubmed/36472893 http://dx.doi.org/10.1097/SCS.0000000000009143 |
_version_ | 1784859978208641024 |
---|---|
author | Faasse, Mariët Mathijssen, Irene M.J. |
author_facet | Faasse, Mariët Mathijssen, Irene M.J. |
author_sort | Faasse, Mariët |
collection | PubMed |
description | The care and treatment of patients with craniosynostosis and the new developments were described for health care professionals involved in this in the guideline “Treatment and Management of Craniosynostosis”, which was revised in 2020. A patient version was written based on the professional guideline to make the information accessible to patients and parents too. In this patient version, each chapter consists of several sections. Firstly, an introduction and background information is provided in each chapter. Various questions are then answered based on scientific literature. Finally, the recommendations indicate the importance of the literature for care in practice and how this care should be provided in practice. This patient version is an abbreviated and simplified representation of the professional guideline. The introduction, conclusions, and recommendations sections of each chapter were revised and, where necessary, rewritten. With some surgical techniques, links to animation videos (recognizable by underlined references) have been added in the text for clarification. An attempt was made to stay as close as possible to the original guideline in terms of content, questions, numbering, and classification. The patient version can therefore easily be read side by side with the professional guideline if more information is required about a specific subject. As this patient version is a summary and does not deal with all aspects in detail, no rights can be derived from its content and the professional guideline takes precedence at all times. Originally, this patient version has been written in response to the established Dutch guideline on craniosynostosis for health care professionals.2 This professional guideline has been specifically tailored to the Dutch health care setting and policy. There are however differences between health care systems and national health policies of other countries and the Netherlands. It is important to keep in mind that this may, at some points, result in the management of care in your country and/or hospital different from outlined here. |
format | Online Article Text |
id | pubmed-9794150 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Lippincott Williams & Wilkins |
record_format | MEDLINE/PubMed |
spelling | pubmed-97941502023-01-04 Guideline on Treatment and Management of Craniosynostosis: Patient and Family Version Faasse, Mariët Mathijssen, Irene M.J. J Craniofac Surg Educational Supplement The care and treatment of patients with craniosynostosis and the new developments were described for health care professionals involved in this in the guideline “Treatment and Management of Craniosynostosis”, which was revised in 2020. A patient version was written based on the professional guideline to make the information accessible to patients and parents too. In this patient version, each chapter consists of several sections. Firstly, an introduction and background information is provided in each chapter. Various questions are then answered based on scientific literature. Finally, the recommendations indicate the importance of the literature for care in practice and how this care should be provided in practice. This patient version is an abbreviated and simplified representation of the professional guideline. The introduction, conclusions, and recommendations sections of each chapter were revised and, where necessary, rewritten. With some surgical techniques, links to animation videos (recognizable by underlined references) have been added in the text for clarification. An attempt was made to stay as close as possible to the original guideline in terms of content, questions, numbering, and classification. The patient version can therefore easily be read side by side with the professional guideline if more information is required about a specific subject. As this patient version is a summary and does not deal with all aspects in detail, no rights can be derived from its content and the professional guideline takes precedence at all times. Originally, this patient version has been written in response to the established Dutch guideline on craniosynostosis for health care professionals.2 This professional guideline has been specifically tailored to the Dutch health care setting and policy. There are however differences between health care systems and national health policies of other countries and the Netherlands. It is important to keep in mind that this may, at some points, result in the management of care in your country and/or hospital different from outlined here. Lippincott Williams & Wilkins 2023 2022-12-06 /pmc/articles/PMC9794150/ /pubmed/36472893 http://dx.doi.org/10.1097/SCS.0000000000009143 Text en Copyright © 2023 The Author(s). Published by Wolters Kluwer Health, Inc. on behalf of Mutaz B. Habal, MD. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution-Non Commercial-No Derivatives License 4.0 (https://creativecommons.org/licenses/by-nc-nd/4.0/) (CCBY-NC-ND), where it is permissible to download and share the work provided it is properly cited. The work cannot be changed in any way or used commercially without permission from the journal. http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) |
spellingShingle | Educational Supplement Faasse, Mariët Mathijssen, Irene M.J. Guideline on Treatment and Management of Craniosynostosis: Patient and Family Version |
title | Guideline on Treatment and Management of Craniosynostosis: Patient and Family Version |
title_full | Guideline on Treatment and Management of Craniosynostosis: Patient and Family Version |
title_fullStr | Guideline on Treatment and Management of Craniosynostosis: Patient and Family Version |
title_full_unstemmed | Guideline on Treatment and Management of Craniosynostosis: Patient and Family Version |
title_short | Guideline on Treatment and Management of Craniosynostosis: Patient and Family Version |
title_sort | guideline on treatment and management of craniosynostosis: patient and family version |
topic | Educational Supplement |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9794150/ https://www.ncbi.nlm.nih.gov/pubmed/36472893 http://dx.doi.org/10.1097/SCS.0000000000009143 |
work_keys_str_mv | AT faassemariet guidelineontreatmentandmanagementofcraniosynostosispatientandfamilyversion AT mathijssenirenemj guidelineontreatmentandmanagementofcraniosynostosispatientandfamilyversion AT guidelineontreatmentandmanagementofcraniosynostosispatientandfamilyversion |