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A conceptual framework for clinical and translational virtual community engagement research

INTRODUCTION: The COVID-19 pandemic accelerated a trend for clinical and translational community-engaged research in adapting to an increasingly virtual landscape. This requires a framework for engagement distinct from in-person research and program activities. We reflect on four case studies of com...

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Autores principales: Rubyan, Michael, Trinidad, M. Grace, Ryan, Kerry A., Spiroff, Meghan, Goold, Susan, Burns, Jade, Calhoun, Karen, Rowe, Zachary, Büyüktür, Ayşe G., Piechowski, Patricia, Platt, Jodyn
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Cambridge University Press 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9794960/
https://www.ncbi.nlm.nih.gov/pubmed/36590362
http://dx.doi.org/10.1017/cts.2022.479
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author Rubyan, Michael
Trinidad, M. Grace
Ryan, Kerry A.
Spiroff, Meghan
Goold, Susan
Burns, Jade
Calhoun, Karen
Rowe, Zachary
Büyüktür, Ayşe G.
Piechowski, Patricia
Platt, Jodyn
author_facet Rubyan, Michael
Trinidad, M. Grace
Ryan, Kerry A.
Spiroff, Meghan
Goold, Susan
Burns, Jade
Calhoun, Karen
Rowe, Zachary
Büyüktür, Ayşe G.
Piechowski, Patricia
Platt, Jodyn
author_sort Rubyan, Michael
collection PubMed
description INTRODUCTION: The COVID-19 pandemic accelerated a trend for clinical and translational community-engaged research in adapting to an increasingly virtual landscape. This requires a framework for engagement distinct from in-person research and program activities. We reflect on four case studies of community engagement activities that inform a conceptual framework to better integrate the virtual format into community-engaged research reflecting key tenets of health equity and antiracist praxis. METHODS: Four projects were selected by community-engaged research stakeholders for an in-depth review based on how much the virtual transition impacted activities such as planning, recruitment, and data collection for each project. Transitions to virtual engagement were assessed across ten areas in which community engagement has been demonstrated to make a positive impact. RESULTS: Our analysis suggests a conceptual evaluation framework in which the ten community engagement areas cluster into four interrelated domains: (1) development, design, and delivery; (2) partnership and trust building; (3) implementation and change; and (4) ethics and equity. CONCLUSIONS: The domains in this conceptual framework describe critical elements of community engaged research and programs consistent with recommendations for health equity informed meaningful community engagement from the National Academy of Medicine. The conceptual framework and case studies can be used for evaluation and to develop guidelines for clinical and translational researchers utilizing the virtual format in community-engaged research.
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spelling pubmed-97949602022-12-30 A conceptual framework for clinical and translational virtual community engagement research Rubyan, Michael Trinidad, M. Grace Ryan, Kerry A. Spiroff, Meghan Goold, Susan Burns, Jade Calhoun, Karen Rowe, Zachary Büyüktür, Ayşe G. Piechowski, Patricia Platt, Jodyn J Clin Transl Sci Research Article INTRODUCTION: The COVID-19 pandemic accelerated a trend for clinical and translational community-engaged research in adapting to an increasingly virtual landscape. This requires a framework for engagement distinct from in-person research and program activities. We reflect on four case studies of community engagement activities that inform a conceptual framework to better integrate the virtual format into community-engaged research reflecting key tenets of health equity and antiracist praxis. METHODS: Four projects were selected by community-engaged research stakeholders for an in-depth review based on how much the virtual transition impacted activities such as planning, recruitment, and data collection for each project. Transitions to virtual engagement were assessed across ten areas in which community engagement has been demonstrated to make a positive impact. RESULTS: Our analysis suggests a conceptual evaluation framework in which the ten community engagement areas cluster into four interrelated domains: (1) development, design, and delivery; (2) partnership and trust building; (3) implementation and change; and (4) ethics and equity. CONCLUSIONS: The domains in this conceptual framework describe critical elements of community engaged research and programs consistent with recommendations for health equity informed meaningful community engagement from the National Academy of Medicine. The conceptual framework and case studies can be used for evaluation and to develop guidelines for clinical and translational researchers utilizing the virtual format in community-engaged research. Cambridge University Press 2022-10-28 /pmc/articles/PMC9794960/ /pubmed/36590362 http://dx.doi.org/10.1017/cts.2022.479 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.
spellingShingle Research Article
Rubyan, Michael
Trinidad, M. Grace
Ryan, Kerry A.
Spiroff, Meghan
Goold, Susan
Burns, Jade
Calhoun, Karen
Rowe, Zachary
Büyüktür, Ayşe G.
Piechowski, Patricia
Platt, Jodyn
A conceptual framework for clinical and translational virtual community engagement research
title A conceptual framework for clinical and translational virtual community engagement research
title_full A conceptual framework for clinical and translational virtual community engagement research
title_fullStr A conceptual framework for clinical and translational virtual community engagement research
title_full_unstemmed A conceptual framework for clinical and translational virtual community engagement research
title_short A conceptual framework for clinical and translational virtual community engagement research
title_sort conceptual framework for clinical and translational virtual community engagement research
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9794960/
https://www.ncbi.nlm.nih.gov/pubmed/36590362
http://dx.doi.org/10.1017/cts.2022.479
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