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Research in Hard-to-Reach Populations: Challenges and Strategies for Conducting Sexual Violence Studies in Applicants for International Protection Beyond the European General Data Protection Regulation

Background: Conducting research in hard-to-reach populations such as applicants for international protection (AIPs) brings along a number of research challenges. This is especially true for sexual violence (SV) research. Methods: We developed a study design with the intent to reach AIPs in a randomi...

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Autores principales: De Schrijver, Lotte, Cismaru Inescu, Adina, Hahaut, Bastien, Vandeviver, Christophe, Nisen, Laurent, Keygnaert, Ines
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Kerman University of Medical Sciences 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9808247/
https://www.ncbi.nlm.nih.gov/pubmed/34664494
http://dx.doi.org/10.34172/ijhpm.2021.122
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author De Schrijver, Lotte
Cismaru Inescu, Adina
Hahaut, Bastien
Vandeviver, Christophe
Nisen, Laurent
Keygnaert, Ines
author_facet De Schrijver, Lotte
Cismaru Inescu, Adina
Hahaut, Bastien
Vandeviver, Christophe
Nisen, Laurent
Keygnaert, Ines
author_sort De Schrijver, Lotte
collection PubMed
description Background: Conducting research in hard-to-reach populations such as applicants for international protection (AIPs) brings along a number of research challenges. This is especially true for sexual violence (SV) research. Methods: We developed a study design with the intent to reach AIPs in a randomized and anonymous manner including potential illiterate respondents as well, while avoiding as much bias as possible. However, this method was developed just before the entry into force of the new European General Data Protection Regulation (GDPR), upon which important new research challenges emerged. Results: This paper describes the original study design developed to estimate SV prevalence in AIPs in Belgium. We discuss the impact of the GDPR on the recruitment strategy applied to conduct a survey on SV in a randomly selected sample of AIPs, the adapted approach to conduct the study beyond GDPR and lessons learned for future research on sensitive topics in hard-to-reach populations such as AIPs. Conclusion: To achieve reliable prevalence numbers and provide high-quality data on SV in AIPs while respecting the GDPR regulations, studies will require an approach that has become significantly more time consuming and resource-intensive to implement.
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spelling pubmed-98082472023-01-10 Research in Hard-to-Reach Populations: Challenges and Strategies for Conducting Sexual Violence Studies in Applicants for International Protection Beyond the European General Data Protection Regulation De Schrijver, Lotte Cismaru Inescu, Adina Hahaut, Bastien Vandeviver, Christophe Nisen, Laurent Keygnaert, Ines Int J Health Policy Manag Original Article Background: Conducting research in hard-to-reach populations such as applicants for international protection (AIPs) brings along a number of research challenges. This is especially true for sexual violence (SV) research. Methods: We developed a study design with the intent to reach AIPs in a randomized and anonymous manner including potential illiterate respondents as well, while avoiding as much bias as possible. However, this method was developed just before the entry into force of the new European General Data Protection Regulation (GDPR), upon which important new research challenges emerged. Results: This paper describes the original study design developed to estimate SV prevalence in AIPs in Belgium. We discuss the impact of the GDPR on the recruitment strategy applied to conduct a survey on SV in a randomly selected sample of AIPs, the adapted approach to conduct the study beyond GDPR and lessons learned for future research on sensitive topics in hard-to-reach populations such as AIPs. Conclusion: To achieve reliable prevalence numbers and provide high-quality data on SV in AIPs while respecting the GDPR regulations, studies will require an approach that has become significantly more time consuming and resource-intensive to implement. Kerman University of Medical Sciences 2021-08-31 /pmc/articles/PMC9808247/ /pubmed/34664494 http://dx.doi.org/10.34172/ijhpm.2021.122 Text en © 2022 The Author(s); Published by Kerman University of Medical Sciences https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0 (https://creativecommons.org/licenses/by/4.0/) ), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Article
De Schrijver, Lotte
Cismaru Inescu, Adina
Hahaut, Bastien
Vandeviver, Christophe
Nisen, Laurent
Keygnaert, Ines
Research in Hard-to-Reach Populations: Challenges and Strategies for Conducting Sexual Violence Studies in Applicants for International Protection Beyond the European General Data Protection Regulation
title Research in Hard-to-Reach Populations: Challenges and Strategies for Conducting Sexual Violence Studies in Applicants for International Protection Beyond the European General Data Protection Regulation
title_full Research in Hard-to-Reach Populations: Challenges and Strategies for Conducting Sexual Violence Studies in Applicants for International Protection Beyond the European General Data Protection Regulation
title_fullStr Research in Hard-to-Reach Populations: Challenges and Strategies for Conducting Sexual Violence Studies in Applicants for International Protection Beyond the European General Data Protection Regulation
title_full_unstemmed Research in Hard-to-Reach Populations: Challenges and Strategies for Conducting Sexual Violence Studies in Applicants for International Protection Beyond the European General Data Protection Regulation
title_short Research in Hard-to-Reach Populations: Challenges and Strategies for Conducting Sexual Violence Studies in Applicants for International Protection Beyond the European General Data Protection Regulation
title_sort research in hard-to-reach populations: challenges and strategies for conducting sexual violence studies in applicants for international protection beyond the european general data protection regulation
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9808247/
https://www.ncbi.nlm.nih.gov/pubmed/34664494
http://dx.doi.org/10.34172/ijhpm.2021.122
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