Parents' dilemma: A therapeutic decision for children with spinal muscular atrophy (SMA) type 1

BACKGROUND: SMA type 1 is a severe neurodegenerative disorder that, in the absence of curative treatment, leads to death before 1 year of age without ventilatory support. Three innovative therapies are available to increase life expectancy. PURPOSE: (i) To increase knowledge about parents' expe...

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Detalles Bibliográficos
Autores principales: Boursange, Sophie, Araneda, Marco, Stalens, Caroline, Desguerre, Isabelle, Barnerias, Christine, Nougues, Marie-Christine, Isapof, Arnaud, Quijano-Roy, Susana, Blu Genestine, Nadia, Ouillade, Laetitia, Martinez Jalilie, Maripaz, Castiglioni, Claudia, Boespflug-Tanguy, Odile, Gargiulo, Marcela
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2022
Materias:
Pediatrics
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9811815/
https://www.ncbi.nlm.nih.gov/pubmed/36619514
http://dx.doi.org/10.3389/fped.2022.1062390

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9811815/
https://www.ncbi.nlm.nih.gov/pubmed/36619514
http://dx.doi.org/10.3389/fped.2022.1062390

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