Perspectives of Rare Disease Social Media Group Participants on Engaging With Genetic Counselors: Mixed Methods Study

BACKGROUND: Social media provides a potential avenue for genetic counselors to address gaps in access to reliable genetics information for rare disease communities. However, only limited research has examined patient and family attitudes toward engaging with genetic counselors through social media....

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Detalles Bibliográficos
Autores principales: Yabumoto, Megan, Miller, Emily, Rao, Anoushka, Tabor, Holly K, Ormond, Kelly E, Halley, Meghan C
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2022
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9813816/
https://www.ncbi.nlm.nih.gov/pubmed/36542454
http://dx.doi.org/10.2196/42084

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