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VOICE–Validating Outcomes by Including Consumer Experience: A Study Protocol to Develop a Patient Reported Experience Measure for Aboriginal and Torres Strait Islander Peoples Accessing Primary Health Care

Aboriginal and Torres Strait Islander peoples’ (hereafter respectfully referred to as Indigenous Australians) experiences of health care are shaped by historical, social and cultural factors, with cultural security critical to effective care provision and engagement between services and community. P...

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Autores principales: Chakraborty, Amal, Walke, Emma, Bainbridge, Roxanne, Bailie, Ross, Matthews, Veronica, Larkins, Sarah, Burgess, Paul, Askew, Deborah, Langham, Erika, Smorgon, Samantha, Swaminathan, Girish, Cameron, Danielle, Piccoli, Tracey, Passey, Megan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9819546/
https://www.ncbi.nlm.nih.gov/pubmed/36612678
http://dx.doi.org/10.3390/ijerph20010357
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author Chakraborty, Amal
Walke, Emma
Bainbridge, Roxanne
Bailie, Ross
Matthews, Veronica
Larkins, Sarah
Burgess, Paul
Askew, Deborah
Langham, Erika
Smorgon, Samantha
Swaminathan, Girish
Cameron, Danielle
Piccoli, Tracey
Passey, Megan
author_facet Chakraborty, Amal
Walke, Emma
Bainbridge, Roxanne
Bailie, Ross
Matthews, Veronica
Larkins, Sarah
Burgess, Paul
Askew, Deborah
Langham, Erika
Smorgon, Samantha
Swaminathan, Girish
Cameron, Danielle
Piccoli, Tracey
Passey, Megan
author_sort Chakraborty, Amal
collection PubMed
description Aboriginal and Torres Strait Islander peoples’ (hereafter respectfully referred to as Indigenous Australians) experiences of health care are shaped by historical, social and cultural factors, with cultural security critical to effective care provision and engagement between services and community. Positive patient experiences are associated with better health outcomes. Consequently, it is an accreditation requirement that primary health care (PHC) services must formally gather and respond to patient feedback. However, currently available patient feedback tools were not developed with Indigenous Australians, and do not reflect their values and world views. Existing tools do not capture important experiences of care of Indigenous Australians in PHC settings, nor return information that assists services to improve care. Consistent with the principles of Indigenous Data Sovereignty, we will co-design and validate an Indigenous-specific Patient Reported Experience Measure (PREM) that produces data by and for community, suitable for use in quality improvement in comprehensive PHC services. This paper presents the protocol of the study, outlining the rationale, methodologies and associated activities that are being applied in developing the PREM. Briefly, guided by an Aboriginal and Torres Strait Islander Advisory Group, our team of Indigenous and non-Indigenous researchers, service providers and policy makers will use a combination of Indigenous methodologies, participatory, and traditional western techniques for scale development. We will engage PHC service staff and communities in eight selected sites across remote, regional, and metropolitan communities in Australia for iterative cycles of data collection and feedback throughout the research process. Yarning Circles with community members will identify core concepts to develop an “Experience of Care Framework”, which will be used to develop items for the PREM. Staff members will be interviewed regarding desirable characteristics and feasibility considerations for the PREM. The PREM will undergo cognitive and psychometric testing.
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spelling pubmed-98195462023-01-07 VOICE–Validating Outcomes by Including Consumer Experience: A Study Protocol to Develop a Patient Reported Experience Measure for Aboriginal and Torres Strait Islander Peoples Accessing Primary Health Care Chakraborty, Amal Walke, Emma Bainbridge, Roxanne Bailie, Ross Matthews, Veronica Larkins, Sarah Burgess, Paul Askew, Deborah Langham, Erika Smorgon, Samantha Swaminathan, Girish Cameron, Danielle Piccoli, Tracey Passey, Megan Int J Environ Res Public Health Article Aboriginal and Torres Strait Islander peoples’ (hereafter respectfully referred to as Indigenous Australians) experiences of health care are shaped by historical, social and cultural factors, with cultural security critical to effective care provision and engagement between services and community. Positive patient experiences are associated with better health outcomes. Consequently, it is an accreditation requirement that primary health care (PHC) services must formally gather and respond to patient feedback. However, currently available patient feedback tools were not developed with Indigenous Australians, and do not reflect their values and world views. Existing tools do not capture important experiences of care of Indigenous Australians in PHC settings, nor return information that assists services to improve care. Consistent with the principles of Indigenous Data Sovereignty, we will co-design and validate an Indigenous-specific Patient Reported Experience Measure (PREM) that produces data by and for community, suitable for use in quality improvement in comprehensive PHC services. This paper presents the protocol of the study, outlining the rationale, methodologies and associated activities that are being applied in developing the PREM. Briefly, guided by an Aboriginal and Torres Strait Islander Advisory Group, our team of Indigenous and non-Indigenous researchers, service providers and policy makers will use a combination of Indigenous methodologies, participatory, and traditional western techniques for scale development. We will engage PHC service staff and communities in eight selected sites across remote, regional, and metropolitan communities in Australia for iterative cycles of data collection and feedback throughout the research process. Yarning Circles with community members will identify core concepts to develop an “Experience of Care Framework”, which will be used to develop items for the PREM. Staff members will be interviewed regarding desirable characteristics and feasibility considerations for the PREM. The PREM will undergo cognitive and psychometric testing. MDPI 2022-12-26 /pmc/articles/PMC9819546/ /pubmed/36612678 http://dx.doi.org/10.3390/ijerph20010357 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Chakraborty, Amal
Walke, Emma
Bainbridge, Roxanne
Bailie, Ross
Matthews, Veronica
Larkins, Sarah
Burgess, Paul
Askew, Deborah
Langham, Erika
Smorgon, Samantha
Swaminathan, Girish
Cameron, Danielle
Piccoli, Tracey
Passey, Megan
VOICE–Validating Outcomes by Including Consumer Experience: A Study Protocol to Develop a Patient Reported Experience Measure for Aboriginal and Torres Strait Islander Peoples Accessing Primary Health Care
title VOICE–Validating Outcomes by Including Consumer Experience: A Study Protocol to Develop a Patient Reported Experience Measure for Aboriginal and Torres Strait Islander Peoples Accessing Primary Health Care
title_full VOICE–Validating Outcomes by Including Consumer Experience: A Study Protocol to Develop a Patient Reported Experience Measure for Aboriginal and Torres Strait Islander Peoples Accessing Primary Health Care
title_fullStr VOICE–Validating Outcomes by Including Consumer Experience: A Study Protocol to Develop a Patient Reported Experience Measure for Aboriginal and Torres Strait Islander Peoples Accessing Primary Health Care
title_full_unstemmed VOICE–Validating Outcomes by Including Consumer Experience: A Study Protocol to Develop a Patient Reported Experience Measure for Aboriginal and Torres Strait Islander Peoples Accessing Primary Health Care
title_short VOICE–Validating Outcomes by Including Consumer Experience: A Study Protocol to Develop a Patient Reported Experience Measure for Aboriginal and Torres Strait Islander Peoples Accessing Primary Health Care
title_sort voice–validating outcomes by including consumer experience: a study protocol to develop a patient reported experience measure for aboriginal and torres strait islander peoples accessing primary health care
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9819546/
https://www.ncbi.nlm.nih.gov/pubmed/36612678
http://dx.doi.org/10.3390/ijerph20010357
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