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Empowerment-Based Physical Activity Intervention for People with Advanced Dry Age-Related Macular Degeneration: Mixed-Methods Protocol

Age-related macular degeneration (AMD) is the most common cause of incurable visual impairment and impacts daily life. These impacts include loss of social activities, decreased functional independence, and reduced physical activity. This protocol aims to describe a prospective, mixed-methodology fo...

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Autores principales: Lindgren, Eva-Carin, Källstrand, Jeanette, Alftberg, Åsa, Johansson, Pia, Kristén, Lars, Håman, Linn, Ivarsson, Andreas, Carlsson, Ing-Marie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9819966/
https://www.ncbi.nlm.nih.gov/pubmed/36612963
http://dx.doi.org/10.3390/ijerph20010643
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author Lindgren, Eva-Carin
Källstrand, Jeanette
Alftberg, Åsa
Johansson, Pia
Kristén, Lars
Håman, Linn
Ivarsson, Andreas
Carlsson, Ing-Marie
author_facet Lindgren, Eva-Carin
Källstrand, Jeanette
Alftberg, Åsa
Johansson, Pia
Kristén, Lars
Håman, Linn
Ivarsson, Andreas
Carlsson, Ing-Marie
author_sort Lindgren, Eva-Carin
collection PubMed
description Age-related macular degeneration (AMD) is the most common cause of incurable visual impairment and impacts daily life. These impacts include loss of social activities, decreased functional independence, and reduced physical activity. This protocol aims to describe a prospective, mixed-methodology for studying a population with AMD before, during, and after an empowerment-based physical activity intervention (EPI). A study framework was also developed for EPI. The intervention will include 20 older individuals (age 65+ years) with AMD recruited in Sweden. The intervention period is six months and comprises adapted physical activity and social activities in a group twice a week and individual health coaching on three occasions. The quantitative pre-test and three follow-ups include physical functional tests, an accelerometer that monitors physical activity continuously for one week, and questionnaires. Individual and focus-group interviews and ethnographic observations will explore the experience of living with AMD and what it means to participate in the EPI for individuals with AMD. The chosen methodology offers a structured way for researchers to explore the experiences and factors that may provide insights into the potential of creative supervised, adapted physical activity in groups, health coaching, and socialising that are significant to enable well-being among older individuals with AMD.
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spelling pubmed-98199662023-01-07 Empowerment-Based Physical Activity Intervention for People with Advanced Dry Age-Related Macular Degeneration: Mixed-Methods Protocol Lindgren, Eva-Carin Källstrand, Jeanette Alftberg, Åsa Johansson, Pia Kristén, Lars Håman, Linn Ivarsson, Andreas Carlsson, Ing-Marie Int J Environ Res Public Health Protocol Age-related macular degeneration (AMD) is the most common cause of incurable visual impairment and impacts daily life. These impacts include loss of social activities, decreased functional independence, and reduced physical activity. This protocol aims to describe a prospective, mixed-methodology for studying a population with AMD before, during, and after an empowerment-based physical activity intervention (EPI). A study framework was also developed for EPI. The intervention will include 20 older individuals (age 65+ years) with AMD recruited in Sweden. The intervention period is six months and comprises adapted physical activity and social activities in a group twice a week and individual health coaching on three occasions. The quantitative pre-test and three follow-ups include physical functional tests, an accelerometer that monitors physical activity continuously for one week, and questionnaires. Individual and focus-group interviews and ethnographic observations will explore the experience of living with AMD and what it means to participate in the EPI for individuals with AMD. The chosen methodology offers a structured way for researchers to explore the experiences and factors that may provide insights into the potential of creative supervised, adapted physical activity in groups, health coaching, and socialising that are significant to enable well-being among older individuals with AMD. MDPI 2022-12-30 /pmc/articles/PMC9819966/ /pubmed/36612963 http://dx.doi.org/10.3390/ijerph20010643 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Protocol
Lindgren, Eva-Carin
Källstrand, Jeanette
Alftberg, Åsa
Johansson, Pia
Kristén, Lars
Håman, Linn
Ivarsson, Andreas
Carlsson, Ing-Marie
Empowerment-Based Physical Activity Intervention for People with Advanced Dry Age-Related Macular Degeneration: Mixed-Methods Protocol
title Empowerment-Based Physical Activity Intervention for People with Advanced Dry Age-Related Macular Degeneration: Mixed-Methods Protocol
title_full Empowerment-Based Physical Activity Intervention for People with Advanced Dry Age-Related Macular Degeneration: Mixed-Methods Protocol
title_fullStr Empowerment-Based Physical Activity Intervention for People with Advanced Dry Age-Related Macular Degeneration: Mixed-Methods Protocol
title_full_unstemmed Empowerment-Based Physical Activity Intervention for People with Advanced Dry Age-Related Macular Degeneration: Mixed-Methods Protocol
title_short Empowerment-Based Physical Activity Intervention for People with Advanced Dry Age-Related Macular Degeneration: Mixed-Methods Protocol
title_sort empowerment-based physical activity intervention for people with advanced dry age-related macular degeneration: mixed-methods protocol
topic Protocol
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9819966/
https://www.ncbi.nlm.nih.gov/pubmed/36612963
http://dx.doi.org/10.3390/ijerph20010643
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