EXPLORE B: A prospective, long‐term natural history study of patients with acute hepatic porphyria with chronic symptoms

One‐year data from EXPLORE Part A showed high disease burden and impaired quality of life (QOL) in patients with acute hepatic porphyria (AHP) with recurrent attacks. We report baseline data of patients who enrolled in EXPLORE Part B for up to an additional 3 years of follow‐up. EXPLORE B is a long‐...

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Detalles Bibliográficos
Autores principales: Cassiman, David, Kauppinen, Raili, Monroy, Susana, Lee, Ming‐Jen, Bonkovsky, Herbert L., Thapar, Manish, Guillén‐Navarro, Encarna, Minder, Anna‐Elisabeth, Hale, Cecilia, Sweetser, Marianne T., Ivanova, Aneta
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley & Sons, Inc. 2022
Materias:
Original Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9825970/
https://www.ncbi.nlm.nih.gov/pubmed/36069414
http://dx.doi.org/10.1002/jimd.12551

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9825970/
https://www.ncbi.nlm.nih.gov/pubmed/36069414
http://dx.doi.org/10.1002/jimd.12551

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