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A comprehensive qualitative framework for health-related quality of life in Duchenne muscular dystrophy

PURPOSE: Duchenne muscular dystrophy (DMD) is a rare x-linked neuromuscular condition predominantly affecting boys and men. There is a paucity of research qualitatively detailing the lived experience of health-related quality of life (HRQoL) for people with DMD. The aim of this study was to identify...

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Detalles Bibliográficos
Autores principales: Powell, Philip A., Carlton, Jill
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9829595/
https://www.ncbi.nlm.nih.gov/pubmed/36050623
http://dx.doi.org/10.1007/s11136-022-03240-w