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A comprehensive qualitative framework for health-related quality of life in Duchenne muscular dystrophy
PURPOSE: Duchenne muscular dystrophy (DMD) is a rare x-linked neuromuscular condition predominantly affecting boys and men. There is a paucity of research qualitatively detailing the lived experience of health-related quality of life (HRQoL) for people with DMD. The aim of this study was to identify...
Autores principales: | Powell, Philip A., Carlton, Jill |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2022
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Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9829595/ https://www.ncbi.nlm.nih.gov/pubmed/36050623 http://dx.doi.org/10.1007/s11136-022-03240-w |
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