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Observational study of health utilities in adult primary ciliary dyskinesia patients: preliminary data on associations with molecular diagnosis, clinical phenotype and HRQOL measures

BACKGROUND: Primary ciliary dyskinesia (PCD) is a congenital disorder characterized by chronic respiratory morbidity. To date, there is no information on PCD-specific preference-based quality of life measures such as health utilities (HU). We cross-sectionally assessed HU in adult PCD patients and e...

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Detalles Bibliográficos
Autores principales:	Kouis, Panayiotis, Kakkoura, Maria G., Elia, Stavria Artemis, Ioannou, Phivos, Anagnostopoulou, Pinelopi, Potamiti, Louiza, Loizidou, Maria A., Panayiotidis, Mihalis I., Kyriacou, Kyriacos, Hadjisavvas, Andreas, Yiallouros, Panayiotis K.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	PAGEPress Publications, Pavia, Italy 2022
Materias:	Original Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9830407/ https://www.ncbi.nlm.nih.gov/pubmed/36636646 http://dx.doi.org/10.4081/mrm.2022.881

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