Toward the Definition of Patient-Reported Outcome Measurements in Hereditary Spastic Paraplegia

BACKGROUND AND OBJECTIVES: Hereditary spastic paraplegias (HSPs) are a heterogeneous group of rare neurodegenerative diseases, characterized by a progressive spastic paraparesis. Currently, there is a HSP-specific clinician-reported outcome measure (CROM) called Spastic Paraplegia Rating Scale (SPRS...

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Detalles Bibliográficos
Autores principales: Amprosi, Matthias, Indelicato, Elisabetta, Eigentler, Andreas, Fritz, Josef, Nachbauer, Wolfgang, Boesch, Sylvia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Wolters Kluwer 2023
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9832334/
https://www.ncbi.nlm.nih.gov/pubmed/36636734
http://dx.doi.org/10.1212/NXG.0000000000200052

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9832334/
https://www.ncbi.nlm.nih.gov/pubmed/36636734
http://dx.doi.org/10.1212/NXG.0000000000200052

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