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Toward the Definition of Patient-Reported Outcome Measurements in Hereditary Spastic Paraplegia

BACKGROUND AND OBJECTIVES: Hereditary spastic paraplegias (HSPs) are a heterogeneous group of rare neurodegenerative diseases, characterized by a progressive spastic paraparesis. Currently, there is a HSP-specific clinician-reported outcome measure (CROM) called Spastic Paraplegia Rating Scale (SPRS...

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Detalles Bibliográficos
Autores principales:	Amprosi, Matthias, Indelicato, Elisabetta, Eigentler, Andreas, Fritz, Josef, Nachbauer, Wolfgang, Boesch, Sylvia
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Wolters Kluwer 2023
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9832334/ https://www.ncbi.nlm.nih.gov/pubmed/36636734 http://dx.doi.org/10.1212/NXG.0000000000200052

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