Characterization of health concerns in people with neurofibromatosis type 1

BACKGROUND: Neurofibromatosis 1 (NF1) is a common cancer predisposition syndrome. Affected individuals require lifelong surveillance and often suffer progressive disfigurement due to cutaneous neurofibromas. The aim of this research was to characterize health concerns and quality of life (QOL) in a...

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Detalles Bibliográficos
Autores principales: Fleming, Jane, Morgan, Oliver, Wong, Claire, Schlub, Timothy E., Berman, Yemima
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Original Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9834143/
https://www.ncbi.nlm.nih.gov/pubmed/36444392
http://dx.doi.org/10.1002/mgg3.2077

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