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Towards trust-based governance of health data research

Developments in medical big data analytics may bring societal benefits but are also challenging privacy and other ethical values. At the same time, an overly restrictive data protection regime can form a serious threat to valuable observational studies. Discussions about whether data privacy or data...

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Detalles Bibliográficos
Autores principales: Bak, Marieke A. R., Ploem, M. Corrette, Tan, Hanno L., Blom, M. T., Willems, Dick L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Netherlands 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9835739/
https://www.ncbi.nlm.nih.gov/pubmed/36633724
http://dx.doi.org/10.1007/s11019-022-10134-8