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Hidradenitis Suppurativa Quality of Life 24 (HSQoL-24) now available for Polish patients: creation and validation of the Polish language version

INTRODUCTION: Hidradenitis suppurativa (HS) is a chronic, inflammatory skin disorder with a well-documented impact on quality of life (QoL). Due to the very distinctive features of HS the clinical picture, and lack of specific questions, generic dermatology QoL questionnaires cannot adequately refle...

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Autores principales: Krajewski, Piotr K., Bardowska, Klaudia, Matusiak, Łukasz, Szepietowska, Marta, Tyczyńska, Kinga, Marron, Servando E., Tomas Aragones, Lucía, Szepietowski, Jacek C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Termedia Publishing House 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9837579/
https://www.ncbi.nlm.nih.gov/pubmed/36686006
http://dx.doi.org/10.5114/ada.2022.114885
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author Krajewski, Piotr K.
Bardowska, Klaudia
Matusiak, Łukasz
Szepietowska, Marta
Tyczyńska, Kinga
Marron, Servando E.
Tomas Aragones, Lucía
Szepietowski, Jacek C.
author_facet Krajewski, Piotr K.
Bardowska, Klaudia
Matusiak, Łukasz
Szepietowska, Marta
Tyczyńska, Kinga
Marron, Servando E.
Tomas Aragones, Lucía
Szepietowski, Jacek C.
author_sort Krajewski, Piotr K.
collection PubMed
description INTRODUCTION: Hidradenitis suppurativa (HS) is a chronic, inflammatory skin disorder with a well-documented impact on quality of life (QoL). Due to the very distinctive features of HS the clinical picture, and lack of specific questions, generic dermatology QoL questionnaires cannot adequately reflect patients’ suffering. AIM: To translate and validate the Polish version of the Hidradenitis Suppurativa Quality of Life 24 (HSQoL-24) questionnaire. MATERIAL AND METHODS: The standardized translation process included forward and backward translation from the English version of the instrument. The final version was subsequently validated on a group of 30 HS patients, who completed the questionnaire twice. Internal consistency, test-retest reliability, and reproducibility of the results were also analysed. RESULTS: The Polish version of HSQoL-24 showed excellent internal consistency, with a Cronbach α coefficient of 0.908. Moreover, excellent reproducibility of the results was observed, with an intraclass correlation coefficient of 0.908. The HSQoL global score correlated positively with Dermatology Life Quality Index (DLQI) and Hidradenitis Suppurativa Quality of Life (HiSQoL) questionnaire. CONCLUSIONS: The Polish version of HSQoL-24 has excellent internal consistency, good reproducibility, and adequate validity. It may be of help in assessing QoL impairment in HS patients in daily practice and research.
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spelling pubmed-98375792023-01-20 Hidradenitis Suppurativa Quality of Life 24 (HSQoL-24) now available for Polish patients: creation and validation of the Polish language version Krajewski, Piotr K. Bardowska, Klaudia Matusiak, Łukasz Szepietowska, Marta Tyczyńska, Kinga Marron, Servando E. Tomas Aragones, Lucía Szepietowski, Jacek C. Postepy Dermatol Alergol Original Paper INTRODUCTION: Hidradenitis suppurativa (HS) is a chronic, inflammatory skin disorder with a well-documented impact on quality of life (QoL). Due to the very distinctive features of HS the clinical picture, and lack of specific questions, generic dermatology QoL questionnaires cannot adequately reflect patients’ suffering. AIM: To translate and validate the Polish version of the Hidradenitis Suppurativa Quality of Life 24 (HSQoL-24) questionnaire. MATERIAL AND METHODS: The standardized translation process included forward and backward translation from the English version of the instrument. The final version was subsequently validated on a group of 30 HS patients, who completed the questionnaire twice. Internal consistency, test-retest reliability, and reproducibility of the results were also analysed. RESULTS: The Polish version of HSQoL-24 showed excellent internal consistency, with a Cronbach α coefficient of 0.908. Moreover, excellent reproducibility of the results was observed, with an intraclass correlation coefficient of 0.908. The HSQoL global score correlated positively with Dermatology Life Quality Index (DLQI) and Hidradenitis Suppurativa Quality of Life (HiSQoL) questionnaire. CONCLUSIONS: The Polish version of HSQoL-24 has excellent internal consistency, good reproducibility, and adequate validity. It may be of help in assessing QoL impairment in HS patients in daily practice and research. Termedia Publishing House 2022-03-27 2022-12 /pmc/articles/PMC9837579/ /pubmed/36686006 http://dx.doi.org/10.5114/ada.2022.114885 Text en Copyright: © 2022 Termedia Sp. z o. o. https://creativecommons.org/licenses/by-nc-sa/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International (CC BY-NC-SA 4.0) License, allowing third parties to copy and redistribute the material in any medium or format and to remix, transform, and build upon the material, provided the original work is properly cited and states its license.
spellingShingle Original Paper
Krajewski, Piotr K.
Bardowska, Klaudia
Matusiak, Łukasz
Szepietowska, Marta
Tyczyńska, Kinga
Marron, Servando E.
Tomas Aragones, Lucía
Szepietowski, Jacek C.
Hidradenitis Suppurativa Quality of Life 24 (HSQoL-24) now available for Polish patients: creation and validation of the Polish language version
title Hidradenitis Suppurativa Quality of Life 24 (HSQoL-24) now available for Polish patients: creation and validation of the Polish language version
title_full Hidradenitis Suppurativa Quality of Life 24 (HSQoL-24) now available for Polish patients: creation and validation of the Polish language version
title_fullStr Hidradenitis Suppurativa Quality of Life 24 (HSQoL-24) now available for Polish patients: creation and validation of the Polish language version
title_full_unstemmed Hidradenitis Suppurativa Quality of Life 24 (HSQoL-24) now available for Polish patients: creation and validation of the Polish language version
title_short Hidradenitis Suppurativa Quality of Life 24 (HSQoL-24) now available for Polish patients: creation and validation of the Polish language version
title_sort hidradenitis suppurativa quality of life 24 (hsqol-24) now available for polish patients: creation and validation of the polish language version
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9837579/
https://www.ncbi.nlm.nih.gov/pubmed/36686006
http://dx.doi.org/10.5114/ada.2022.114885
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