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Reordering the machinery of participation with young people

In this article, we reflect on our ongoing work that attempts to redistribute the agenda‐setting powers of researchers, research funders and the complex of private and public partnerships in the biomedical sciences. Despite calls for diversification, the current landscape is dominated by a tradition...

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Autores principales: Cowan, Hannah, Kühlbrandt, Charlotte, Riazuddin, Hana
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9841552/
https://www.ncbi.nlm.nih.gov/pubmed/35076114
http://dx.doi.org/10.1111/1467-9566.13426
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author Cowan, Hannah
Kühlbrandt, Charlotte
Riazuddin, Hana
author_facet Cowan, Hannah
Kühlbrandt, Charlotte
Riazuddin, Hana
author_sort Cowan, Hannah
collection PubMed
description In this article, we reflect on our ongoing work that attempts to redistribute the agenda‐setting powers of researchers, research funders and the complex of private and public partnerships in the biomedical sciences. Despite calls for diversification, the current landscape is dominated by a traditional medical habitus that prioritises discovery science. This has moral and political consequences. Simultaneously, we have seen a slow rise in top–down infrastructures of public participation in medical science. While we are critical of the resulting machinery of participation, we believe in its premise that knowledge and expertise are everywhere. In our research project—called Utopia Now!—we have been seeking to involve young people in deciding the future of biomedical research. However, this project is itself premised on a number of our own complicities with the power held by universities and research infrastructures. Here, we explore three preliminary tactics through which we attempt to make these complicities politically productive, taking into account the limitations of working as early career researchers. We find that our mediation between young people and researchers across disciplines is not only integral for re‐politicising medical research, but also changes our understanding of knowledge production as a process of reordering, sorting and sharing.
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spelling pubmed-98415522023-01-17 Reordering the machinery of participation with young people Cowan, Hannah Kühlbrandt, Charlotte Riazuddin, Hana Sociol Health Illn Original Articles In this article, we reflect on our ongoing work that attempts to redistribute the agenda‐setting powers of researchers, research funders and the complex of private and public partnerships in the biomedical sciences. Despite calls for diversification, the current landscape is dominated by a traditional medical habitus that prioritises discovery science. This has moral and political consequences. Simultaneously, we have seen a slow rise in top–down infrastructures of public participation in medical science. While we are critical of the resulting machinery of participation, we believe in its premise that knowledge and expertise are everywhere. In our research project—called Utopia Now!—we have been seeking to involve young people in deciding the future of biomedical research. However, this project is itself premised on a number of our own complicities with the power held by universities and research infrastructures. Here, we explore three preliminary tactics through which we attempt to make these complicities politically productive, taking into account the limitations of working as early career researchers. We find that our mediation between young people and researchers across disciplines is not only integral for re‐politicising medical research, but also changes our understanding of knowledge production as a process of reordering, sorting and sharing. John Wiley and Sons Inc. 2022-01-25 2022-12 /pmc/articles/PMC9841552/ /pubmed/35076114 http://dx.doi.org/10.1111/1467-9566.13426 Text en © 2022 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL (SHIL). https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Articles
Cowan, Hannah
Kühlbrandt, Charlotte
Riazuddin, Hana
Reordering the machinery of participation with young people
title Reordering the machinery of participation with young people
title_full Reordering the machinery of participation with young people
title_fullStr Reordering the machinery of participation with young people
title_full_unstemmed Reordering the machinery of participation with young people
title_short Reordering the machinery of participation with young people
title_sort reordering the machinery of participation with young people
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9841552/
https://www.ncbi.nlm.nih.gov/pubmed/35076114
http://dx.doi.org/10.1111/1467-9566.13426
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