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Newborn Screening Long-Term Follow-Up Clinics (Continuity Clinics) in the Philippines during the COVID-19 Pandemic: Continuing Quality Patient Care

The COVID-19 pandemic has challenged healthcare systems worldwide. In the Philippines, long-term care for patients with conditions identified through newborn screening (NBS) is coordinated through Newborn Screening Continuity Clinics (NBSCCs). These clinics are integral to achieving optimal outcomes...

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Autores principales: Maceda, Ebner Bon G., Abadingo, Michelle E., Panol, Karen Asuncion R., Beltran, Frederick David E., Valdez-Acosta, Ivy Rose C., Taquiqui, Grandelee D., Gawigawen, Sharon B., Macalino, Maria Victoria L., Aguirre-Aguinaldo, Laura Maria Soledad M., Flores-Declaro, Marive A., Ventilacion, Karen June V., Boligao, Ma. Rita Anna Salve R., Honor, Nancy G., Ellong, Mirasol S., Ocho-Ortencio, Rona D., Beley, Genelynne J., Bondoc-Eran, Maria Christina N., Therrell, Bradford L., Padilla, Carmencita D.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9844332/
https://www.ncbi.nlm.nih.gov/pubmed/36648769
http://dx.doi.org/10.3390/ijns9010002
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author Maceda, Ebner Bon G.
Abadingo, Michelle E.
Panol, Karen Asuncion R.
Beltran, Frederick David E.
Valdez-Acosta, Ivy Rose C.
Taquiqui, Grandelee D.
Gawigawen, Sharon B.
Macalino, Maria Victoria L.
Aguirre-Aguinaldo, Laura Maria Soledad M.
Flores-Declaro, Marive A.
Ventilacion, Karen June V.
Boligao, Ma. Rita Anna Salve R.
Honor, Nancy G.
Ellong, Mirasol S.
Ocho-Ortencio, Rona D.
Beley, Genelynne J.
Bondoc-Eran, Maria Christina N.
Therrell, Bradford L.
Padilla, Carmencita D.
author_facet Maceda, Ebner Bon G.
Abadingo, Michelle E.
Panol, Karen Asuncion R.
Beltran, Frederick David E.
Valdez-Acosta, Ivy Rose C.
Taquiqui, Grandelee D.
Gawigawen, Sharon B.
Macalino, Maria Victoria L.
Aguirre-Aguinaldo, Laura Maria Soledad M.
Flores-Declaro, Marive A.
Ventilacion, Karen June V.
Boligao, Ma. Rita Anna Salve R.
Honor, Nancy G.
Ellong, Mirasol S.
Ocho-Ortencio, Rona D.
Beley, Genelynne J.
Bondoc-Eran, Maria Christina N.
Therrell, Bradford L.
Padilla, Carmencita D.
author_sort Maceda, Ebner Bon G.
collection PubMed
description The COVID-19 pandemic has challenged healthcare systems worldwide. In the Philippines, long-term care for patients with conditions identified through newborn screening (NBS) is coordinated through Newborn Screening Continuity Clinics (NBSCCs). These clinics are integral to achieving optimal outcomes by providing follow-up oversight and assistance for individuals identified through screening. Continuity of NBSCC care for NBS during the COVID-19 pandemic was both challenging and necessary and was accomplished through innovative strategies of dedicated personnel. Following the discontinuation of the community quarantine, a situation assessment survey was completed by each NBSCC to better understand the challenges encountered and their effect on patient care. Performance data from each NBSCC were reviewed both before and after an extended community quarantine (2018–2021) to evaluate the impact of NBSCC disaster contingency plans in overcoming the resultant challenges (transportation, supply chain, etc.). Thematic analysis of the survey showed three primary challenges: Operations, communications, and safety. In 2018 and 2019, successful patient contacts were 70.6% and 70.2%, respectively. During the pandemic, successful contacts were 74.9% in 2020 and 76.8% in 2021, demonstrating that the contact approaches taken by the NBSCCs were sufficient to maintain (and even improve) patient contacts. The number of unresponsive patients decreased during the pandemic likely due to decreased mobility and improved follow-up actions from the NBSCCs.
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spelling pubmed-98443322023-01-18 Newborn Screening Long-Term Follow-Up Clinics (Continuity Clinics) in the Philippines during the COVID-19 Pandemic: Continuing Quality Patient Care Maceda, Ebner Bon G. Abadingo, Michelle E. Panol, Karen Asuncion R. Beltran, Frederick David E. Valdez-Acosta, Ivy Rose C. Taquiqui, Grandelee D. Gawigawen, Sharon B. Macalino, Maria Victoria L. Aguirre-Aguinaldo, Laura Maria Soledad M. Flores-Declaro, Marive A. Ventilacion, Karen June V. Boligao, Ma. Rita Anna Salve R. Honor, Nancy G. Ellong, Mirasol S. Ocho-Ortencio, Rona D. Beley, Genelynne J. Bondoc-Eran, Maria Christina N. Therrell, Bradford L. Padilla, Carmencita D. Int J Neonatal Screen Article The COVID-19 pandemic has challenged healthcare systems worldwide. In the Philippines, long-term care for patients with conditions identified through newborn screening (NBS) is coordinated through Newborn Screening Continuity Clinics (NBSCCs). These clinics are integral to achieving optimal outcomes by providing follow-up oversight and assistance for individuals identified through screening. Continuity of NBSCC care for NBS during the COVID-19 pandemic was both challenging and necessary and was accomplished through innovative strategies of dedicated personnel. Following the discontinuation of the community quarantine, a situation assessment survey was completed by each NBSCC to better understand the challenges encountered and their effect on patient care. Performance data from each NBSCC were reviewed both before and after an extended community quarantine (2018–2021) to evaluate the impact of NBSCC disaster contingency plans in overcoming the resultant challenges (transportation, supply chain, etc.). Thematic analysis of the survey showed three primary challenges: Operations, communications, and safety. In 2018 and 2019, successful patient contacts were 70.6% and 70.2%, respectively. During the pandemic, successful contacts were 74.9% in 2020 and 76.8% in 2021, demonstrating that the contact approaches taken by the NBSCCs were sufficient to maintain (and even improve) patient contacts. The number of unresponsive patients decreased during the pandemic likely due to decreased mobility and improved follow-up actions from the NBSCCs. MDPI 2022-12-29 /pmc/articles/PMC9844332/ /pubmed/36648769 http://dx.doi.org/10.3390/ijns9010002 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Maceda, Ebner Bon G.
Abadingo, Michelle E.
Panol, Karen Asuncion R.
Beltran, Frederick David E.
Valdez-Acosta, Ivy Rose C.
Taquiqui, Grandelee D.
Gawigawen, Sharon B.
Macalino, Maria Victoria L.
Aguirre-Aguinaldo, Laura Maria Soledad M.
Flores-Declaro, Marive A.
Ventilacion, Karen June V.
Boligao, Ma. Rita Anna Salve R.
Honor, Nancy G.
Ellong, Mirasol S.
Ocho-Ortencio, Rona D.
Beley, Genelynne J.
Bondoc-Eran, Maria Christina N.
Therrell, Bradford L.
Padilla, Carmencita D.
Newborn Screening Long-Term Follow-Up Clinics (Continuity Clinics) in the Philippines during the COVID-19 Pandemic: Continuing Quality Patient Care
title Newborn Screening Long-Term Follow-Up Clinics (Continuity Clinics) in the Philippines during the COVID-19 Pandemic: Continuing Quality Patient Care
title_full Newborn Screening Long-Term Follow-Up Clinics (Continuity Clinics) in the Philippines during the COVID-19 Pandemic: Continuing Quality Patient Care
title_fullStr Newborn Screening Long-Term Follow-Up Clinics (Continuity Clinics) in the Philippines during the COVID-19 Pandemic: Continuing Quality Patient Care
title_full_unstemmed Newborn Screening Long-Term Follow-Up Clinics (Continuity Clinics) in the Philippines during the COVID-19 Pandemic: Continuing Quality Patient Care
title_short Newborn Screening Long-Term Follow-Up Clinics (Continuity Clinics) in the Philippines during the COVID-19 Pandemic: Continuing Quality Patient Care
title_sort newborn screening long-term follow-up clinics (continuity clinics) in the philippines during the covid-19 pandemic: continuing quality patient care
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9844332/
https://www.ncbi.nlm.nih.gov/pubmed/36648769
http://dx.doi.org/10.3390/ijns9010002
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