Obstacles and expectations of rare disease patients and their families in Türkiye: ISTisNA project survey results

Rare disease patients constitute a significant part of the healthcare system of all countries. However, the information on the experiences during disease processes and daily life of rare disease patients is still limited. So far, there is a small number of studies conducted in Türkiye, and they main...

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Detalles Bibliográficos
Autores principales: Hatirnaz Ng, Ozden, Sahin, Ilayda, Erbilgin, Yucel, Ozdemir, Ozkan, Yucesan, Emrah, Erturk, Nazli, Yemenici, Merve, Akgun Dogan, Ozlem, Ugur Iseri, Sibel Aylin, Satman, Ilhan, Alanay, Yasemin, Ozbek, Ugur
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2023
Materias:
Public Health
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9846031/
https://www.ncbi.nlm.nih.gov/pubmed/36684907
http://dx.doi.org/10.3389/fpubh.2022.1049349

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