Cargando…

Australian children living with rare diseases: health service use and barriers to accessing care

BACKGROUND: Children with rare diseases experience challenges at home and school and frequently require multi-disciplinary healthcare. We aimed to determine health service utilization by Australian children with rare diseases and barriers to accessing healthcare. METHODS: Parents completed an online...

Descripción completa

Detalles Bibliográficos
Autores principales:	Teutsch, Suzy, Zurynski, Yvonne, Eslick, Guy D., Deverell, Marie, Christodoulou, John, Leonard, Helen, Dalkeith, Troy, Johnson, Sandra L. J., Elliott, Elizabeth J.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Springer Nature Singapore 2023
Materias:	Original Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9848027/ https://www.ncbi.nlm.nih.gov/pubmed/36653598 http://dx.doi.org/10.1007/s12519-022-00675-6

Ejemplares similares

Australian children living with rare diseases: experiences of diagnosis and perceived consequences of diagnostic delays
por: Zurynski, Yvonne, et al.
Publicado: (2017)

Rare disease: a national survey of paediatricians’ experiences and needs
por: Zurynski, Yvonne, et al.
Publicado: (2017)

Female genital mutilation in children presenting to Australian paediatricians
por: Zurynski, Yvonne, et al.
Publicado: (2017)

Australian families living with rare disease: experiences of diagnosis, health services use and needs for psychosocial support
por: Anderson, Matilda, et al.
Publicado: (2013)

Active prospective national surveillance for congenital and neonatal varicella in Australia shows potential prevention opportunities
por: Walker, Jacina, et al.
Publicado: (2023)

Significant reductions in tertiary hospital encounters and less travel for families after implementation of Paediatric Care Coordination in Australia
por: Breen, Christie, et al.
Publicado: (2018)

Accessible and affordable healthcare? Views of Australians with and without chronic conditions
por: Zurynski, Yvonne, et al.
Publicado: (2021)

The Impact of Women’s Agency on Accessing and Using Maternal Healthcare Services: A Systematic Review and Meta-Analysis
por: Vizheh, Maryam, et al.
Publicado: (2023)

Barriers to accessing mental health services in Somali‐Australian women: a qualitative study
por: Said, Mulki, et al.
Publicado: (2021)

Psychological distress and digital health service use during COVID-19: A national Australian cross-sectional survey
por: Ellis, Louise A., et al.
Publicado: (2022)

Dysmotility Symptoms Are Independently Associated With Weight Change: A Population-based Study of Australian Adults
por: Eslick, Guy D, et al.
Publicado: (2015)

An impact review of a Western Australian research translation program
por: Mosedale, Abby, et al.
Publicado: (2022)

Exploring patients’ lived experience on the barriers to accessing low back pain health services
por: Kahere, Morris, et al.
Publicado: (2022)

Issues of accessibility to health services by older Australians: a review
por: van Gaans, Deborah, et al.
Publicado: (2018)

Sick leave accessibility in junior doctors at an Australian health service
por: Mitchell, Lucy, et al.
Publicado: (2021)

Access to general practitioner services amongst underserved Australians: a microsimulation study
por: Schofield, Deborah J, et al.
Publicado: (2012)

Incidence of primary hepatitis C infection and risk factors for transmission in an Australian prisoner cohort
por: Teutsch, Suzy, et al.
Publicado: (2010)

Implementing a clozapine supply service in Australian community pharmacies: barriers and facilitators
por: Wilson, Bethany, et al.
Publicado: (2019)

Changes in public perceptions and experiences of the Australian health‐care system: A decade of change
por: Ellis, Louise A., et al.
Publicado: (2020)

Female genital mutilation and cutting: a systematic literature review of health professionals’ knowledge, attitudes and clinical practice
por: Zurynski, Yvonne, et al.
Publicado: (2015)

Australian Community Pharmacy Harm-Minimisation Services: Scope for Service Expansion to Improve Healthcare Access
por: McMillan, Sara S., et al.
Publicado: (2021)

Access to dental care barriers and poor clinical oral health in Australian regional populations
por: Crocombe, LA, et al.
Publicado: (2022)

Barriers to access cancer screening and treatment services in Germany
por: Baessler, F., et al.
Publicado: (2022)

Access to eye health services among indigenous Australians: an area level analysis
por: Kelaher, Margaret, et al.
Publicado: (2012)

Barriers to access to care reported by women living with HIV across 27 countries
por: Johnson, Margaret, et al.
Publicado: (2015)

Treatment of HMG-CoA Lyase Deficiency—Longitudinal Data on Clinical and Nutritional Management of 10 Australian Cases
por: Thompson, Susan, et al.
Publicado: (2023)

Enablers and Barriers to Accessing Healthcare Services for Aboriginal People in New South Wales, Australia
por: Nolan-Isles, Davida, et al.
Publicado: (2021)

The Patient Activation Measure (PAM) and the pandemic: Predictors of patient activation among Australian health consumers during the COVID‐19 pandemic
por: Dammery, Genevieve, et al.
Publicado: (2023)

Pandemic (H1N1) 2009 and Seasonal Influenza A (H3N2) in Children’s Hospital, Australia
por: Khandaker, Gulam, et al.
Publicado: (2011)

Are Australian Mental Health Services Ready for Therapeutic Virtual Reality? An Investigation of Knowledge, Attitudes, Implementation Barriers and Enablers
por: Chung, Olivia S., et al.
Publicado: (2022)

Future Perspectives on Infections Associated with Gastrointestinal Tract Diseases
por: Eslick, Guy D.
Publicado: (2010)

Barriers in physical access to maternal health services in rural Ethiopia
por: Okwaraji, Yemisrach B., et al.
Publicado: (2015)

Access Barriers to Services by Immigrant Mothers of Children with Autism in Canada
por: Khanlou, Nazilla, et al.
Publicado: (2017)

Community perception of accessibility and barriers to utilizing mental health services
por: Lakshmana, Govindappa, et al.
Publicado: (2022)

Access and Barriers to Use of Long Term Services: Contextual Issues
por: Glicksman, Allen, et al.
Publicado: (2021)

Engagement with healthcare providers and healthcare system navigation among Australians with chronic conditions: a descriptive survey study
por: Zurynski, Yvonne, et al.
Publicado: (2022)

Identifying enablers and barriers to referral, uptake and completion of lifestyle modification programmes: a rapid literature review
por: Zurynski, Yvonne, et al.
Publicado: (2021)

Barriers to childhood immunisation: Findings from the Longitudinal Study of Australian Children
por: Pearce, Anna, et al.
Publicado: (2015)

Access to Sexual Health Services and Support for People with Intellectual and Developmental Disabilities: an Australian Cross-sector Survey
por: Frawley, Patsie, et al.
Publicado: (2022)

Barriers and enablers to menu planning guideline implementation in Australian childcare centres and the role of government support services
por: Elford, Audrey, et al.
Publicado: (2022)

Cannot write session to /tmp/vufind_sessions/sess_lohq6edltr35bk3ohs8op156do