Cargando…

Stakeholder views on informed consent models for future use of biological samples in Malawi and South Africa

BACKGROUND: Current advances in biomedical research have introduced new ethical challenges in obtaining informed consent in low and middle-income settings. For example, there are controversies about the use of broad consent in the collection of biological samples for use in future biomedical researc...

Descripción completa

Detalles Bibliográficos
Autores principales:	Masiye, Francis, Jaoko, Walter, Rennie, Stuart
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2023
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9854061/ https://www.ncbi.nlm.nih.gov/pubmed/36658544 http://dx.doi.org/10.1186/s12910-023-00882-4

Ejemplares similares

A qualitative study exploring stakeholder perspectives on the use of biological samples for future unspecified research in Malawi
por: Matandika, Limbanazo, et al.
Publicado: (2020)

Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents
por: Munung, Nchangwi Syntia, et al.
Publicado: (2016)

Is it ethical to prevent secondary use of stored biological samples and data derived from consenting research participants? The case of Malawi
por: Mungwira, Randy G., et al.
Publicado: (2015)

Personalized and long-term electronic informed consent in clinical research: stakeholder views
por: De Sutter, Evelien, et al.
Publicado: (2021)

Consent, including advanced consent, of older adults to research in care homes: a qualitative study of stakeholders’ views in South Wales
por: Wood, Fiona, et al.
Publicado: (2013)

Stakeholder views on the acceptability of human infection studies in Malawi
por: Kapumba, Blessings M., et al.
Publicado: (2020)

Informed consent for HIV cure research in South Africa: issues to consider
por: Staunton, Ciara
Publicado: (2015)

Health workers’ perspectives on informed consent for caesarean section in Southern Malawi
por: Bakker, Wouter, et al.
Publicado: (2021)

Informed Consent with a Focus on Islamic Views
por: Packer, Samuel
Publicado: (2012)

TB programme stakeholder views on lessons from the COVID-19 response in South Africa
por: Myburgh, H., et al.
Publicado: (2023)

Involving Research Stakeholders in Developing Policy on Sharing Public Health Research Data in Kenya: Views on Fair Process for Informed Consent, Access Oversight, and Community Engagement
por: Jao, Irene, et al.
Publicado: (2015)

Stakeholder perspectives regarding alternate approaches to informed consent for comparative effectiveness research
por: Morain, Stephanie R., et al.
Publicado: (2017)

May Stakeholders be Involved in Design Without Informed Consent? The Case of Hidden Design
por: Pols, A. J. K.
Publicado: (2016)

Implementation of Electronic Informed Consent in Biomedical Research and Stakeholders’ Perspectives: Systematic Review
por: De Sutter, Evelien, et al.
Publicado: (2020)

Patients' Experience on Practice and Applicability of Informed Consent in Traditional Medical Practice in KwaZulu-Natal Province, South Africa
por: Akpa-Inyang, Francis, et al.
Publicado: (2022)

“I passed the test!” Evidence of diagnostic misconception in the recruitment of population controls for an H3Africa genomic study in Cape Town, South Africa
por: Masiye, Francis, et al.
Publicado: (2017)

Sufficient informed consent to medical treatment of adults: legal and ethical perspectives from Malawi
por: Bengo, Eva Maria Mfutso, et al.
Publicado: (2022)

Consent for audio-video recording of informed consent process in rural South India
por: Chauhan, Ramesh Chand, et al.
Publicado: (2015)

Developing Ethical Practices for Public Health Research Data Sharing in South Africa: The Views and Experiences From a Diverse Sample of Research Stakeholders
por: Denny, Spencer G., et al.
Publicado: (2015)

Whole Exome Sequencing in South Africa: Stakeholder Views on Return of Individual Research Results and Incidental Findings
por: Van Der Merwe, Nicole, et al.
Publicado: (2022)

Informing decisions with disparate stakeholders: cross-sector evaluation of cash transfers in Malawi
por: Ramponi, Francesco, et al.
Publicado: (2021)

A comprehensive systematic review of stakeholder attitudes to alternatives to prospective informed consent in paediatric acute care research
por: Furyk, Jeremy, et al.
Publicado: (2018)

Evaluating the quality of informed consent and contemporary clinical practices by medical doctors in South Africa: An empirical study
por: Chima, Sylvester C
Publicado: (2013)

Knowledge and practice of informed consent by physiotherapists and therapy assistants in KwaZulu-Natal Province, South Africa
por: Aderibigbe, Kayode S., et al.
Publicado: (2019)

Written versus verbal consent: a qualitative study of stakeholder views of consent procedures used at the time of recruitment into a peripartum trial conducted in an emergency setting
por: Lawton, J., et al.
Publicado: (2017)

Ethically acceptable consent approaches to adolescent research in South Africa
por: Loveday, Marian, et al.
Publicado: (2022)

A trial of consent procedures for future research with clinically derived biological samples
por: Vermeulen, E, et al.
Publicado: (2009)

Saudi views on consenting for research on medical records and leftover tissue samples
por: Al-Qadire, Mohammad M, et al.
Publicado: (2010)

Informed consent for MRI and fMRI research: Analysis of a sample of Canadian consent documents
por: Palmour, Nicole, et al.
Publicado: (2011)

Tiered informed consent: respecting autonomy, agency and individuality in Africa
por: Tiffin, Nicki
Publicado: (2018)

An evaluation of the process of informed consent: views from research participants and staff
por: O’ Sullivan, Lydia, et al.
Publicado: (2021)

Network analysis of assistive technology stakeholders in Malawi
por: Smith, Emma M., et al.
Publicado: (2022)

Stakeholders’ perspectives on Public Health Medicine in South Africa
por: Zweigenthal, Virginia E. M., et al.
Publicado: (2019)

Stakeholder engagement to inform HIV clinical trials: a systematic review of the evidence
por: Day, Suzanne, et al.
Publicado: (2018)

Stakeholder attitudes towards the role and application of informed consent for newborn bloodspot screening: a study protocol
por: Nicholls, S G, et al.
Publicado: (2014)

Development of a core outcome set for informed consent for therapy: An international key stakeholder consensus study
por: Convie, Liam J., et al.
Publicado: (2022)

The social dynamics of consent and refusal in HIV surveillance in rural South Africa
por: Reynolds, Lindsey, et al.
Publicado: (2013)

Informed consent
por: Liew, J., et al.
Publicado: (2021)

Typhoid Fever and Invasive Nontyphoid Salmonellosis, Malawi and South Africa
por: Feasey, Nicholas A., et al.
Publicado: (2010)

Ensuring that informed consent is really an informed consent: Role of videography
por: Ghooi, Ravindra B.
Publicado: (2014)

Cannot write session to /tmp/vufind_sessions/sess_at2emel8g9114eh4e51v1opeko