“Your Life Turns Upside Down”: A Qualitative Study of the Experiences of Parents with Children Diagnosed with Phelan-McDermid Syndrome

(1) Background: Parents of children with rare diseases experience great uncertainty and employ different strategies to care for their children and cope with the disease. The purpose of the present study was to describe the perspective of parents with children with Phelan McDermid Syndrome (PMS). (2)...

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Detalles Bibliográficos
Autores principales: García-Bravo, Cristina, Palacios-Ceña, Domingo, Huertas-Hoyas, Elisabet, Pérez-Corrales, Jorge, Serrada-Tejeda, Sergio, Pérez-de-Heredia-Torres, Marta, Gueita-Rodríguez, Javier, Martínez-Piédrola, Rosa Mª
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9856272/
https://www.ncbi.nlm.nih.gov/pubmed/36670624
http://dx.doi.org/10.3390/children10010073

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9856272/
https://www.ncbi.nlm.nih.gov/pubmed/36670624
http://dx.doi.org/10.3390/children10010073

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