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Creation and Validation of the European Portuguese Version of the Systemic Lupus Erythematous Quality of Life Questionnaire
(1) Background: Patients with systemic lupus erythematous (SLE) experience profound effects on health-related quality of life (HRQoL) that cannot be explained by objective indicators of mortality and morbidity. This study aimed to adapt the SLE Quality of Life (SLEQoL) questionnaire to the European...
Autores principales: | , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9858895/ https://www.ncbi.nlm.nih.gov/pubmed/36673651 http://dx.doi.org/10.3390/ijerph20020897 |
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author | Ferreira, Pedro Lopes Cunha, Rita Novais Macieira, Carla Fontes, Tomás Inês, Luís Sousa Maduro, Ana Martins, Ana Rajão, Frederico Furtado, Carolina Barcelos, Anabela |
author_facet | Ferreira, Pedro Lopes Cunha, Rita Novais Macieira, Carla Fontes, Tomás Inês, Luís Sousa Maduro, Ana Martins, Ana Rajão, Frederico Furtado, Carolina Barcelos, Anabela |
author_sort | Ferreira, Pedro Lopes |
collection | PubMed |
description | (1) Background: Patients with systemic lupus erythematous (SLE) experience profound effects on health-related quality of life (HRQoL) that cannot be explained by objective indicators of mortality and morbidity. This study aimed to adapt the SLE Quality of Life (SLEQoL) questionnaire to the European Portuguese population and to assess its reliability and validity for patients with SLE. (2) Methods: Two independent translators translated the original version of the SLEQoL questionnaire into Portuguese. A back-translated version was produced. The Portuguese version of the questionnaire was reviewed and tested for validity and reliability. Cronbach’s alpha and the internal validity index were calculated to verify the internal reliability and validity of the content. Rheumatologists filled out the SLE Disease Activity Score (SLE-DAS) and Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index SLICC/ACR-DI questionnaires. (3) Results: This study involved 180 patients, of which 93.8% were females. The results indicated very high internal consistency reliability (α = 0.949), low correlations between the SLEQoL and the SLE-DAS, a correlation between all SLEQoL dimensions and all SF-36 dimensions (except for “response to treatment” and “self-image”), and good correlation scores with both the EQ-5D-5L index and VAS. (4) Conclusion: The Portuguese version of the SLEQoL questionnaire is valid and reliable for the measurement of HRQoL in SLE patients. |
format | Online Article Text |
id | pubmed-9858895 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-98588952023-01-21 Creation and Validation of the European Portuguese Version of the Systemic Lupus Erythematous Quality of Life Questionnaire Ferreira, Pedro Lopes Cunha, Rita Novais Macieira, Carla Fontes, Tomás Inês, Luís Sousa Maduro, Ana Martins, Ana Rajão, Frederico Furtado, Carolina Barcelos, Anabela Int J Environ Res Public Health Article (1) Background: Patients with systemic lupus erythematous (SLE) experience profound effects on health-related quality of life (HRQoL) that cannot be explained by objective indicators of mortality and morbidity. This study aimed to adapt the SLE Quality of Life (SLEQoL) questionnaire to the European Portuguese population and to assess its reliability and validity for patients with SLE. (2) Methods: Two independent translators translated the original version of the SLEQoL questionnaire into Portuguese. A back-translated version was produced. The Portuguese version of the questionnaire was reviewed and tested for validity and reliability. Cronbach’s alpha and the internal validity index were calculated to verify the internal reliability and validity of the content. Rheumatologists filled out the SLE Disease Activity Score (SLE-DAS) and Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index SLICC/ACR-DI questionnaires. (3) Results: This study involved 180 patients, of which 93.8% were females. The results indicated very high internal consistency reliability (α = 0.949), low correlations between the SLEQoL and the SLE-DAS, a correlation between all SLEQoL dimensions and all SF-36 dimensions (except for “response to treatment” and “self-image”), and good correlation scores with both the EQ-5D-5L index and VAS. (4) Conclusion: The Portuguese version of the SLEQoL questionnaire is valid and reliable for the measurement of HRQoL in SLE patients. MDPI 2023-01-04 /pmc/articles/PMC9858895/ /pubmed/36673651 http://dx.doi.org/10.3390/ijerph20020897 Text en © 2023 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Ferreira, Pedro Lopes Cunha, Rita Novais Macieira, Carla Fontes, Tomás Inês, Luís Sousa Maduro, Ana Martins, Ana Rajão, Frederico Furtado, Carolina Barcelos, Anabela Creation and Validation of the European Portuguese Version of the Systemic Lupus Erythematous Quality of Life Questionnaire |
title | Creation and Validation of the European Portuguese Version of the Systemic Lupus Erythematous Quality of Life Questionnaire |
title_full | Creation and Validation of the European Portuguese Version of the Systemic Lupus Erythematous Quality of Life Questionnaire |
title_fullStr | Creation and Validation of the European Portuguese Version of the Systemic Lupus Erythematous Quality of Life Questionnaire |
title_full_unstemmed | Creation and Validation of the European Portuguese Version of the Systemic Lupus Erythematous Quality of Life Questionnaire |
title_short | Creation and Validation of the European Portuguese Version of the Systemic Lupus Erythematous Quality of Life Questionnaire |
title_sort | creation and validation of the european portuguese version of the systemic lupus erythematous quality of life questionnaire |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9858895/ https://www.ncbi.nlm.nih.gov/pubmed/36673651 http://dx.doi.org/10.3390/ijerph20020897 |
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