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Creation and Validation of the European Portuguese Version of the Systemic Lupus Erythematous Quality of Life Questionnaire

(1) Background: Patients with systemic lupus erythematous (SLE) experience profound effects on health-related quality of life (HRQoL) that cannot be explained by objective indicators of mortality and morbidity. This study aimed to adapt the SLE Quality of Life (SLEQoL) questionnaire to the European...

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Autores principales: Ferreira, Pedro Lopes, Cunha, Rita Novais, Macieira, Carla, Fontes, Tomás, Inês, Luís Sousa, Maduro, Ana, Martins, Ana, Rajão, Frederico, Furtado, Carolina, Barcelos, Anabela
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9858895/
https://www.ncbi.nlm.nih.gov/pubmed/36673651
http://dx.doi.org/10.3390/ijerph20020897
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author Ferreira, Pedro Lopes
Cunha, Rita Novais
Macieira, Carla
Fontes, Tomás
Inês, Luís Sousa
Maduro, Ana
Martins, Ana
Rajão, Frederico
Furtado, Carolina
Barcelos, Anabela
author_facet Ferreira, Pedro Lopes
Cunha, Rita Novais
Macieira, Carla
Fontes, Tomás
Inês, Luís Sousa
Maduro, Ana
Martins, Ana
Rajão, Frederico
Furtado, Carolina
Barcelos, Anabela
author_sort Ferreira, Pedro Lopes
collection PubMed
description (1) Background: Patients with systemic lupus erythematous (SLE) experience profound effects on health-related quality of life (HRQoL) that cannot be explained by objective indicators of mortality and morbidity. This study aimed to adapt the SLE Quality of Life (SLEQoL) questionnaire to the European Portuguese population and to assess its reliability and validity for patients with SLE. (2) Methods: Two independent translators translated the original version of the SLEQoL questionnaire into Portuguese. A back-translated version was produced. The Portuguese version of the questionnaire was reviewed and tested for validity and reliability. Cronbach’s alpha and the internal validity index were calculated to verify the internal reliability and validity of the content. Rheumatologists filled out the SLE Disease Activity Score (SLE-DAS) and Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index SLICC/ACR-DI questionnaires. (3) Results: This study involved 180 patients, of which 93.8% were females. The results indicated very high internal consistency reliability (α = 0.949), low correlations between the SLEQoL and the SLE-DAS, a correlation between all SLEQoL dimensions and all SF-36 dimensions (except for “response to treatment” and “self-image”), and good correlation scores with both the EQ-5D-5L index and VAS. (4) Conclusion: The Portuguese version of the SLEQoL questionnaire is valid and reliable for the measurement of HRQoL in SLE patients.
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spelling pubmed-98588952023-01-21 Creation and Validation of the European Portuguese Version of the Systemic Lupus Erythematous Quality of Life Questionnaire Ferreira, Pedro Lopes Cunha, Rita Novais Macieira, Carla Fontes, Tomás Inês, Luís Sousa Maduro, Ana Martins, Ana Rajão, Frederico Furtado, Carolina Barcelos, Anabela Int J Environ Res Public Health Article (1) Background: Patients with systemic lupus erythematous (SLE) experience profound effects on health-related quality of life (HRQoL) that cannot be explained by objective indicators of mortality and morbidity. This study aimed to adapt the SLE Quality of Life (SLEQoL) questionnaire to the European Portuguese population and to assess its reliability and validity for patients with SLE. (2) Methods: Two independent translators translated the original version of the SLEQoL questionnaire into Portuguese. A back-translated version was produced. The Portuguese version of the questionnaire was reviewed and tested for validity and reliability. Cronbach’s alpha and the internal validity index were calculated to verify the internal reliability and validity of the content. Rheumatologists filled out the SLE Disease Activity Score (SLE-DAS) and Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index SLICC/ACR-DI questionnaires. (3) Results: This study involved 180 patients, of which 93.8% were females. The results indicated very high internal consistency reliability (α = 0.949), low correlations between the SLEQoL and the SLE-DAS, a correlation between all SLEQoL dimensions and all SF-36 dimensions (except for “response to treatment” and “self-image”), and good correlation scores with both the EQ-5D-5L index and VAS. (4) Conclusion: The Portuguese version of the SLEQoL questionnaire is valid and reliable for the measurement of HRQoL in SLE patients. MDPI 2023-01-04 /pmc/articles/PMC9858895/ /pubmed/36673651 http://dx.doi.org/10.3390/ijerph20020897 Text en © 2023 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Ferreira, Pedro Lopes
Cunha, Rita Novais
Macieira, Carla
Fontes, Tomás
Inês, Luís Sousa
Maduro, Ana
Martins, Ana
Rajão, Frederico
Furtado, Carolina
Barcelos, Anabela
Creation and Validation of the European Portuguese Version of the Systemic Lupus Erythematous Quality of Life Questionnaire
title Creation and Validation of the European Portuguese Version of the Systemic Lupus Erythematous Quality of Life Questionnaire
title_full Creation and Validation of the European Portuguese Version of the Systemic Lupus Erythematous Quality of Life Questionnaire
title_fullStr Creation and Validation of the European Portuguese Version of the Systemic Lupus Erythematous Quality of Life Questionnaire
title_full_unstemmed Creation and Validation of the European Portuguese Version of the Systemic Lupus Erythematous Quality of Life Questionnaire
title_short Creation and Validation of the European Portuguese Version of the Systemic Lupus Erythematous Quality of Life Questionnaire
title_sort creation and validation of the european portuguese version of the systemic lupus erythematous quality of life questionnaire
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9858895/
https://www.ncbi.nlm.nih.gov/pubmed/36673651
http://dx.doi.org/10.3390/ijerph20020897
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