A Community-Based Participatory Framework to Co-Develop Patient Education Materials (PEMs) for Rare Diseases: A Model Transferable across Diseases

At least 50% of chronic disease patients don’t follow their care plans, leading to lower health outcomes and higher medical costs. Providing Patient Education Materials (PEMs) to individuals living with a disease can help to overcome these problems. PEMs are especially beneficial for people sufferin...

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Detalles Bibliográficos
Autores principales: Falcão, Marta, Allocca, Mariateresa, Rodrigues, Ana Sofia, Granjo, Pedro, Francisco, Rita, Pascoal, Carlota, Rossi, Maria Grazia, Marques-da-Silva, Dorinda, Magrinho, Salvador C. M., Jaeken, Jaak, Castro, Larisa Aragon, de Freitas, Cláudia, Videira, Paula A., de Andrés-Aguayo, Luísa, dos Reis Ferreira, Vanessa
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2023
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9859511/
https://www.ncbi.nlm.nih.gov/pubmed/36673723
http://dx.doi.org/10.3390/ijerph20020968

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