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Informal Caregiving and Alzheimer’s Disease: The Psychological Effect

Background and Objectives: People with Alzheimer’s disease and dementia in general benefit from home-based care as demonstrated via their better quality of life, increased lifespan, and delayed disease progression. Since currently nearly half of the dementia care is being provided by informal and un...

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Autores principales: Hellis, Emily, Mukaetova-Ladinska, Elizabeta B.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9863258/
https://www.ncbi.nlm.nih.gov/pubmed/36676672
http://dx.doi.org/10.3390/medicina59010048
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author Hellis, Emily
Mukaetova-Ladinska, Elizabeta B.
author_facet Hellis, Emily
Mukaetova-Ladinska, Elizabeta B.
author_sort Hellis, Emily
collection PubMed
description Background and Objectives: People with Alzheimer’s disease and dementia in general benefit from home-based care as demonstrated via their better quality of life, increased lifespan, and delayed disease progression. Since currently nearly half of the dementia care is being provided by informal and unpaid caregiving, the health, wellbeing and quality of life of informal dementia caregivers is extremely important. Materials and Methods: We used a systematic review process with searches based upon the six elements from the “Quality of Life Scale for Informal Carers of Older Adults” with additional items on traditional and non-traditional caregiving ideologies, as well as caregivers’ experiences. Results: We identified 19 studies with primary data. Informal caregivers of older adults with Alzheimer’s Disease experience significant emotional strain, documented through increased levels of anxiety and depression, as well as increased caregiver burden and poorer quality of life, primarily due to caregiving ideologies, financial strain and a lack of support. Conclusions: Our findings suggest that caregiving should be a normative component of adult education to better prepare individuals with the mental and physical skills required for undertaking informal caregiving. They should also help inform policy makers to develop novel programs and services to both assist and reduce informal caregivers’ strain, whilst considering their different social and cultural contexts.
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spelling pubmed-98632582023-01-22 Informal Caregiving and Alzheimer’s Disease: The Psychological Effect Hellis, Emily Mukaetova-Ladinska, Elizabeta B. Medicina (Kaunas) Review Background and Objectives: People with Alzheimer’s disease and dementia in general benefit from home-based care as demonstrated via their better quality of life, increased lifespan, and delayed disease progression. Since currently nearly half of the dementia care is being provided by informal and unpaid caregiving, the health, wellbeing and quality of life of informal dementia caregivers is extremely important. Materials and Methods: We used a systematic review process with searches based upon the six elements from the “Quality of Life Scale for Informal Carers of Older Adults” with additional items on traditional and non-traditional caregiving ideologies, as well as caregivers’ experiences. Results: We identified 19 studies with primary data. Informal caregivers of older adults with Alzheimer’s Disease experience significant emotional strain, documented through increased levels of anxiety and depression, as well as increased caregiver burden and poorer quality of life, primarily due to caregiving ideologies, financial strain and a lack of support. Conclusions: Our findings suggest that caregiving should be a normative component of adult education to better prepare individuals with the mental and physical skills required for undertaking informal caregiving. They should also help inform policy makers to develop novel programs and services to both assist and reduce informal caregivers’ strain, whilst considering their different social and cultural contexts. MDPI 2022-12-27 /pmc/articles/PMC9863258/ /pubmed/36676672 http://dx.doi.org/10.3390/medicina59010048 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Review
Hellis, Emily
Mukaetova-Ladinska, Elizabeta B.
Informal Caregiving and Alzheimer’s Disease: The Psychological Effect
title Informal Caregiving and Alzheimer’s Disease: The Psychological Effect
title_full Informal Caregiving and Alzheimer’s Disease: The Psychological Effect
title_fullStr Informal Caregiving and Alzheimer’s Disease: The Psychological Effect
title_full_unstemmed Informal Caregiving and Alzheimer’s Disease: The Psychological Effect
title_short Informal Caregiving and Alzheimer’s Disease: The Psychological Effect
title_sort informal caregiving and alzheimer’s disease: the psychological effect
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9863258/
https://www.ncbi.nlm.nih.gov/pubmed/36676672
http://dx.doi.org/10.3390/medicina59010048
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