Cargando…

Development of multi-level standards of care recommendations for sickle cell disease: Experience from SickleInAfrica

Introduction: Sickle Cell Disease (SCD) causes significant morbidity and mortality particularly in sub-Saharan Africa (SSA) where it contributes to early childhood deaths. There is need to standardize treatment guidelines to help improve overall SCD patient health outcomes. We set out to review exis...

Descripción completa

Detalles Bibliográficos
Autores principales:	Paintsil, Vivian, Ally, Mwashungi, Isa, Hezekiah, Anie, Kofi A., Mgaya, Josephine, Nkanyemka, Malula, Nembaware, Victoria, Oppong-Mensah, Yaa Gyamfua, Ndobho, Flora, Chirande, Lulu, Makubi, Abel, Nnodu, Obiageli, Wonkam, Ambroise, Makani, Julie, Ohene-Frempong, Kwaku
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Frontiers Media S.A. 2023
Materias:	Genetics
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9877224/ https://www.ncbi.nlm.nih.gov/pubmed/36712852 http://dx.doi.org/10.3389/fgene.2022.1052179

Ejemplares similares

5612560 A MONITORING AND EVALUATION FRAMEWORK AND ASSOCIATED TOOLS FOR THE SICKLEINAFRICA CONSORTIUM
por: Nembaware, V., et al.
Publicado: (2023)

Sickle cell disease and H3Africa: enhancing genomic research on cardiovascular diseases in African patients
por: Wonkam, Ambroise, et al.
Publicado: (2015)

Establishing a Sickle Cell Disease Registry in Africa: Experience From the Sickle Pan-African Research Consortium, Kumasi-Ghana
por: Paintsil, Vivian, et al.
Publicado: (2022)

Sickle Cell Disease: New Opportunities and Challenges in Africa
por: Makani, J., et al.
Publicado: (2013)

Editorial: Building capacity for sickle cell disease research and healthcare
por: Nembaware, Victoria, et al.
Publicado: (2023)

Assent, parental consent and reconsent for health research in Africa: thematic analysis of national guidelines and lessons from the SickleInAfrica registry
por: Munung, Nchangwi Syntia, et al.
Publicado: (2022)

Skills Capacity Building For Health Care Services and Research Through the Sickle Pan African Research Consortium
por: Nnodu, Obiageli Eunice, et al.
Publicado: (2022)

Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations
por: Munung, Nchangwi Syntia, et al.
Publicado: (2019)

Establishing a database for sickle cell disease patient mapping and survival tracking: The sickle pan-african research consortium Nigeria example
por: Nnodu, Obiageli, et al.
Publicado: (2022)

The Sickle Cell Disease Ontology: recent development and expansion of the universal sickle cell knowledge representation
por: Mazandu, Gaston K, et al.
Publicado: (2022)

Sickle cell disease in Africa: an urgent need for longitudinal cohort studies
por: Wonkam, Ambroise, et al.
Publicado: (2019)

The Sickle Cell Disease Ontology: Enabling Collaborative Research and Co-Designing of New Planetary Health Applications
por: Nembaware, Victoria, et al.
Publicado: (2020)

Proceedings of a Sickle Cell Disease Ontology workshop — Towards the first comprehensive ontology for Sickle Cell Disease
por: Mulder, Nicola, et al.
Publicado: (2016)

Hospitalizations among children with sickle cell disease enrolled in the Kumasi Sickle Cell Pan African Consortium (SPARCo) database: A cross sectional study
por: Oppong–Mensah, Yaa Gyamfua, et al.
Publicado: (2023)

Implementation science research for the scale-up of evidence-based interventions for sickle cell disease in africa: a commentary
por: Gyamfi, Joyce, et al.
Publicado: (2021)

Using dried blood spot on HemoTypeSC™, a new frontier for newborn screening for sickle cell disease in Nigeria
por: Okeke, Chinwe O., et al.
Publicado: (2022)

The future of sickle cell disease therapeutics rests in genomics
por: Wonkam, Ambroise
Publicado: (2023)

The Consortium on Newborn Screening in Africa for sickle cell disease: study rationale and methodology
por: Green, Nancy S., et al.
Publicado: (2022)

Fetal Hemoglobin is Associated with Peripheral Oxygen Saturation in Sickle Cell Disease in Tanzania
por: Nkya, Siana, et al.
Publicado: (2017)

Clinical characteristics and risk factors of relative systemic hypertension and hypertension among sickle cell patients in Cameroon
por: Nguweneza, Arthemon, et al.
Publicado: (2022)

Sickle Cell Disease Genomics of Africa (SickleGenAfrica) Network: ethical framework and initial qualitative findings from community engagement in Ghana, Nigeria and Tanzania
por: Anie, Kofi A, et al.
Publicado: (2021)

Evolutionary history of sickle-cell mutation: implications for global genetic medicine
por: Esoh, Kevin, et al.
Publicado: (2021)

Organ damage in sickle cell disease study (ORDISS): protocol for a longitudinal cohort study based in Ghana
por: Anie, Kofi A, et al.
Publicado: (2017)

S125: THE ROLE OF THE MICROBIOME AS A SICKLE CELL DISEASE MODIFIER: AN EXPERT REVIEW
por: Oosterwyk, C, et al.
Publicado: (2022)

Determinants of hydroxyurea use among doctors, nurses and sickle cell disease patients in Nigeria
por: Isa, Hezekiah Alkali, et al.
Publicado: (2022)

5613401 SICKLE CELL DISEASE GENOMICS OF AFRICA (SICKLEGENAFRICA) NETWORK: QUALITATIVE INTERVIEW FINDINGS ON REASONS FOR REFUSAL OF BROAD CONSENT
por: Osae-Larbi, J.A., et al.
Publicado: (2023)

Sickle Cell Disease: Management Options and Challenges in Developing Countries
por: Ansong, Daniel, et al.
Publicado: (2013)

Effect of Sickle Cell Trait on Human Immunodeficiency Virus Type 1 Infection
por: Okpala, Iheanyi, et al.
Publicado: (2022)

Sickle cell disease, sickle trait and the risk for venous thromboembolism: a systematic review and meta-analysis
por: Noubiap, Jean Jacques, et al.
Publicado: (2018)

5610603 CLINICAL AND GENETIC PREDICTORS OF SICKLE CELL NEPHROPATHY IN MALAWI
por: Banda, K.H.B., et al.
Publicado: (2023)

Treatment for sickle cell disease in Africa: should we invest in haematopoietic stem cell transplantation?
por: Pule, Gift, et al.
Publicado: (2014)

Patterns and patient factors associated with loss to follow-up in the Muhimbili sickle cell cohort, Tanzania
por: Masamu, Upendo, et al.
Publicado: (2020)

Barriers to Therapeutic Use of Hydroxyurea for Sickle Cell Disease in Nigeria: A Cross-Sectional Survey
por: Okocha, Emmanuel Chide, et al.
Publicado: (2022)

Investigations of Kidney Dysfunction-Related Gene Variants in Sickle Cell Disease Patients in Cameroon (Sub-Saharan Africa)
por: Ngo-Bitoungui, Valentina J., et al.
Publicado: (2021)

5593300 INVESTIGATIONS OF KIDNEY DYSFUNCTION-RELATED GENE VARIANTS IN SICKLE CELL DISEASE PATIENTS IN CAMEROON (SUB-SAHARAN AFRICA)
por: NGO BITOUNGUI, V.B., et al.
Publicado: (2023)

Promoting access of hydroxyurea to sickle cell disease individuals: Time to make it an essential medicine
por: Kilonzi, Manase, et al.
Publicado: (2022)

5613165 INVESTIGATING VARIANTS ASSOCIATED WITH QUANTITATIVE RED BLOOD CELL PHENOTYPES FROM TOPMED PREDICTIONS IN AFRICAN SICKLE CELL DISEASE POPULATIONS.
por: Samie, N., et al.
Publicado: (2023)

Biomarkers of sickle cell nephropathy in Senegal
por: Ndour, El Hadji Malick, et al.
Publicado: (2022)

Possible Risk Factors for Severe Anemia in Hospitalized Sickle Cell Patients at Muhimbili National Hospital, Tanzania: Protocol for a Cross-Sectional Study
por: Tluway, Furahini, et al.
Publicado: (2018)

Implementing newborn screening for sickle cell disease as part of immunisation programmes in Nigeria: a feasibility study
por: Nnodu, Obiageli E, et al.
Publicado: (2020)

Cannot write session to /tmp/vufind_sessions/sess_0tskjtqtlh9o06td7lgfas4c88