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More‐than‐care: People with intellectual disability and emerging vulnerability during pandemic lockdown

This paper offers more‐than‐care as a framework for analysing how vulnerability emerges in the lives of people with intellectual disability beyond relations of care. More‐than‐care detaches vulnerability from the identity category of disability. It provides a framework for conceptualising vulnerabil...

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Autores principales: van Holstein, Ellen, Wiesel, Ilan, Bigby, Christine, Gleeson, Brendan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9878152/
https://www.ncbi.nlm.nih.gov/pubmed/36718375
http://dx.doi.org/10.1111/tran.12595
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author van Holstein, Ellen
Wiesel, Ilan
Bigby, Christine
Gleeson, Brendan
author_facet van Holstein, Ellen
Wiesel, Ilan
Bigby, Christine
Gleeson, Brendan
author_sort van Holstein, Ellen
collection PubMed
description This paper offers more‐than‐care as a framework for analysing how vulnerability emerges in the lives of people with intellectual disability beyond relations of care. More‐than‐care detaches vulnerability from the identity category of disability. It provides a framework for conceptualising vulnerability in an unequal, neoliberalising, and ableist world and sheds new light on the ever‐evolving constitution of vulnerability and disability. This intervention breaks with conceptions of vulnerability centred on care needs that leave other circumstances that inform vulnerabilities unexamined. Importantly, the framework shifts responsibility for managing vulnerabilities away from carers alone. The more‐than‐care framework is grounded in socio‐material conceptualisations of disability and advances a tripartite framing of vulnerability. First, it grounds studies of vulnerability in histories of spatially uneven investment in infrastructure and resources that shape how care and other practices can assemble to produce, challenge, and manage vulnerability. Second, it recalibrates dominant conceptions of the temporality of vulnerability to ensure sensitivity to the unpredictability of emergent vulnerabilities. Third, in following a socio‐material conceptualisation of intellectual disability, more‐than‐care expands discussions about agency in the context of vulnerability. These concepts are empirically examined through an analysis of how vulnerability emerges in the lives of four self‐advocates with intellectual disability during Melbourne's first and second COVID‐19 lockdowns. The analysis shows that vulnerability was highly dynamic and unpredictable as it emerged in complex socio‐material assemblages that included care arrangements, embodied experiences and agencies, and past instances of neglect and exploitation.
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spelling pubmed-98781522023-01-26 More‐than‐care: People with intellectual disability and emerging vulnerability during pandemic lockdown van Holstein, Ellen Wiesel, Ilan Bigby, Christine Gleeson, Brendan Trans Inst Br Geogr Articles This paper offers more‐than‐care as a framework for analysing how vulnerability emerges in the lives of people with intellectual disability beyond relations of care. More‐than‐care detaches vulnerability from the identity category of disability. It provides a framework for conceptualising vulnerability in an unequal, neoliberalising, and ableist world and sheds new light on the ever‐evolving constitution of vulnerability and disability. This intervention breaks with conceptions of vulnerability centred on care needs that leave other circumstances that inform vulnerabilities unexamined. Importantly, the framework shifts responsibility for managing vulnerabilities away from carers alone. The more‐than‐care framework is grounded in socio‐material conceptualisations of disability and advances a tripartite framing of vulnerability. First, it grounds studies of vulnerability in histories of spatially uneven investment in infrastructure and resources that shape how care and other practices can assemble to produce, challenge, and manage vulnerability. Second, it recalibrates dominant conceptions of the temporality of vulnerability to ensure sensitivity to the unpredictability of emergent vulnerabilities. Third, in following a socio‐material conceptualisation of intellectual disability, more‐than‐care expands discussions about agency in the context of vulnerability. These concepts are empirically examined through an analysis of how vulnerability emerges in the lives of four self‐advocates with intellectual disability during Melbourne's first and second COVID‐19 lockdowns. The analysis shows that vulnerability was highly dynamic and unpredictable as it emerged in complex socio‐material assemblages that included care arrangements, embodied experiences and agencies, and past instances of neglect and exploitation. John Wiley and Sons Inc. 2023-01-11 /pmc/articles/PMC9878152/ /pubmed/36718375 http://dx.doi.org/10.1111/tran.12595 Text en The information, practices and views in this article are those of the author(s) and do not necessarily reflect the opinion of the Royal Geographical Society (with IBG). © 2022 The Authors. Transactions of the Institute of British Geographers published by John Wiley & Sons Ltd on behalf of Royal Geographical Society (with The Institute of British Geographers). https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Articles
van Holstein, Ellen
Wiesel, Ilan
Bigby, Christine
Gleeson, Brendan
More‐than‐care: People with intellectual disability and emerging vulnerability during pandemic lockdown
title More‐than‐care: People with intellectual disability and emerging vulnerability during pandemic lockdown
title_full More‐than‐care: People with intellectual disability and emerging vulnerability during pandemic lockdown
title_fullStr More‐than‐care: People with intellectual disability and emerging vulnerability during pandemic lockdown
title_full_unstemmed More‐than‐care: People with intellectual disability and emerging vulnerability during pandemic lockdown
title_short More‐than‐care: People with intellectual disability and emerging vulnerability during pandemic lockdown
title_sort more‐than‐care: people with intellectual disability and emerging vulnerability during pandemic lockdown
topic Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9878152/
https://www.ncbi.nlm.nih.gov/pubmed/36718375
http://dx.doi.org/10.1111/tran.12595
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