A survey exploring caregiver burden and health-related quality of life in hereditary transthyretin amyloidosis

BACKGROUND: Hereditary transthyretin amyloidosis (ATTRv) is an ultra-rare, life-shortening disease with a high unmet need. This study examined ATTRv caregiver health-related quality of life (HRQoL) and productivity. METHODS: A cross-sectional online survey, including EQ-5D-3L, Hospital anxiety and d...

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Detalles Bibliográficos
Autores principales: Acaster, Sarah, Lo, Siu Hing, Nestler-Parr, Sandra
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9878890/
https://www.ncbi.nlm.nih.gov/pubmed/36698133
http://dx.doi.org/10.1186/s13023-022-02601-5

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