Cargando…
‘She Can’t Support Me Because She’s so Old’: A Mixed-Methods Study of Support Experiences and Needs in Adult Child–Parent Dyads at the End of Life
Little is known about support experiences and needs in the dyads of (1) terminally ill adult children and their parent caregivers and (2) terminally ill parents and their adult child caregivers. The current study aimed at investigating the experiences and needs of adult children and parents in end o...
Autores principales: | , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
SAGE Publications
2021
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9902957/ https://www.ncbi.nlm.nih.gov/pubmed/33853447 http://dx.doi.org/10.1177/00302228211008748 |
_version_ | 1784883372499140608 |
---|---|
author | Herbst, Franziska A. Gawinski, Laura Schneider, Nils Stiel, Stephanie |
author_facet | Herbst, Franziska A. Gawinski, Laura Schneider, Nils Stiel, Stephanie |
author_sort | Herbst, Franziska A. |
collection | PubMed |
description | Little is known about support experiences and needs in the dyads of (1) terminally ill adult children and their parent caregivers and (2) terminally ill parents and their adult child caregivers. The current study aimed at investigating the experiences and needs of adult children and parents in end of life situations regarding their provision and receipt of support. The study employed a convergent parallel mixed-methods design, combining explorative qualitative interviews with the quantitative self-report Berlin Social Support Scales. Sixty-five patients (dyad 1: 19; dyad 2: 46) and 42 family caregivers (dyad 1: 13; dyad 2: 29) participated in the study (02/2018–11/2019). Results show that ill adult children felt less (well) supported than ill parents. Parent caregivers were often limited in the support they could provide, due to their age and health conditions. Hypotheses were deduced from patients’ and family caregivers’ notions to inform dyad-specific recommendations for support interventions. |
format | Online Article Text |
id | pubmed-9902957 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-99029572023-02-08 ‘She Can’t Support Me Because She’s so Old’: A Mixed-Methods Study of Support Experiences and Needs in Adult Child–Parent Dyads at the End of Life Herbst, Franziska A. Gawinski, Laura Schneider, Nils Stiel, Stephanie Omega (Westport) Articles Little is known about support experiences and needs in the dyads of (1) terminally ill adult children and their parent caregivers and (2) terminally ill parents and their adult child caregivers. The current study aimed at investigating the experiences and needs of adult children and parents in end of life situations regarding their provision and receipt of support. The study employed a convergent parallel mixed-methods design, combining explorative qualitative interviews with the quantitative self-report Berlin Social Support Scales. Sixty-five patients (dyad 1: 19; dyad 2: 46) and 42 family caregivers (dyad 1: 13; dyad 2: 29) participated in the study (02/2018–11/2019). Results show that ill adult children felt less (well) supported than ill parents. Parent caregivers were often limited in the support they could provide, due to their age and health conditions. Hypotheses were deduced from patients’ and family caregivers’ notions to inform dyad-specific recommendations for support interventions. SAGE Publications 2021-04-14 2023-03 /pmc/articles/PMC9902957/ /pubmed/33853447 http://dx.doi.org/10.1177/00302228211008748 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
spellingShingle | Articles Herbst, Franziska A. Gawinski, Laura Schneider, Nils Stiel, Stephanie ‘She Can’t Support Me Because She’s so Old’: A Mixed-Methods Study of Support Experiences and Needs in Adult Child–Parent Dyads at the End of Life |
title | ‘She Can’t Support Me Because She’s so Old’: A Mixed-Methods Study of Support Experiences and Needs in Adult Child–Parent Dyads at the End of Life |
title_full | ‘She Can’t Support Me Because She’s so Old’: A Mixed-Methods Study of Support Experiences and Needs in Adult Child–Parent Dyads at the End of Life |
title_fullStr | ‘She Can’t Support Me Because She’s so Old’: A Mixed-Methods Study of Support Experiences and Needs in Adult Child–Parent Dyads at the End of Life |
title_full_unstemmed | ‘She Can’t Support Me Because She’s so Old’: A Mixed-Methods Study of Support Experiences and Needs in Adult Child–Parent Dyads at the End of Life |
title_short | ‘She Can’t Support Me Because She’s so Old’: A Mixed-Methods Study of Support Experiences and Needs in Adult Child–Parent Dyads at the End of Life |
title_sort | ‘she can’t support me because she’s so old’: a mixed-methods study of support experiences and needs in adult child–parent dyads at the end of life |
topic | Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9902957/ https://www.ncbi.nlm.nih.gov/pubmed/33853447 http://dx.doi.org/10.1177/00302228211008748 |
work_keys_str_mv | AT herbstfranziskaa shecantsupportmebecauseshessooldamixedmethodsstudyofsupportexperiencesandneedsinadultchildparentdyadsattheendoflife AT gawinskilaura shecantsupportmebecauseshessooldamixedmethodsstudyofsupportexperiencesandneedsinadultchildparentdyadsattheendoflife AT schneidernils shecantsupportmebecauseshessooldamixedmethodsstudyofsupportexperiencesandneedsinadultchildparentdyadsattheendoflife AT stielstephanie shecantsupportmebecauseshessooldamixedmethodsstudyofsupportexperiencesandneedsinadultchildparentdyadsattheendoflife |