Patient and Public Involvement (PPI) in outcome selection in breast cancer and nephrology trials

We recently reported that according to patients and healthcare professionals in breast cancer and nephrology trials, teams conducting the trials got their choice of primary outcome wrong (72% of the time) more often than they got it right (28% of the time). A Patient and Public Involvement (PPI) rep...

Descripción completa

Detalles Bibliográficos
Autores principales: Buckley, Ciara, Treweek, Shaun, Laidlaw, Lynn, Shiely, Frances
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Letter
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9903556/
https://www.ncbi.nlm.nih.gov/pubmed/36747232
http://dx.doi.org/10.1186/s13063-022-06980-9
_version_ 1784883495254884352
author Buckley, Ciara
Treweek, Shaun
Laidlaw, Lynn
Shiely, Frances
author_facet Buckley, Ciara
Treweek, Shaun
Laidlaw, Lynn
Shiely, Frances
author_sort Buckley, Ciara
collection PubMed
description We recently reported that according to patients and healthcare professionals in breast cancer and nephrology trials, teams conducting the trials got their choice of primary outcome wrong (72% of the time) more often than they got it right (28% of the time). A Patient and Public Involvement (PPI) representative, co-author of this letter, asked (on Twitter) whether PPI contributors had been involved in the design of the original trials and by extension the outcome selection. The purpose of this study was to answer this question.
format Online
Article
Text
id pubmed-9903556
institution National Center for Biotechnology Information
language English
publishDate 2023
publisher BioMed Central
record_format MEDLINE/PubMed
spelling pubmed-99035562023-02-08 Patient and Public Involvement (PPI) in outcome selection in breast cancer and nephrology trials Buckley, Ciara Treweek, Shaun Laidlaw, Lynn Shiely, Frances Trials Letter We recently reported that according to patients and healthcare professionals in breast cancer and nephrology trials, teams conducting the trials got their choice of primary outcome wrong (72% of the time) more often than they got it right (28% of the time). A Patient and Public Involvement (PPI) representative, co-author of this letter, asked (on Twitter) whether PPI contributors had been involved in the design of the original trials and by extension the outcome selection. The purpose of this study was to answer this question. BioMed Central 2023-02-07 /pmc/articles/PMC9903556/ /pubmed/36747232 http://dx.doi.org/10.1186/s13063-022-06980-9 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Letter
Buckley, Ciara
Treweek, Shaun
Laidlaw, Lynn
Shiely, Frances
Patient and Public Involvement (PPI) in outcome selection in breast cancer and nephrology trials
title Patient and Public Involvement (PPI) in outcome selection in breast cancer and nephrology trials
title_full Patient and Public Involvement (PPI) in outcome selection in breast cancer and nephrology trials
title_fullStr Patient and Public Involvement (PPI) in outcome selection in breast cancer and nephrology trials
title_full_unstemmed Patient and Public Involvement (PPI) in outcome selection in breast cancer and nephrology trials
title_short Patient and Public Involvement (PPI) in outcome selection in breast cancer and nephrology trials
title_sort patient and public involvement (ppi) in outcome selection in breast cancer and nephrology trials
topic Letter
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9903556/
https://www.ncbi.nlm.nih.gov/pubmed/36747232
http://dx.doi.org/10.1186/s13063-022-06980-9
work_keys_str_mv AT buckleyciara patientandpublicinvolvementppiinoutcomeselectioninbreastcancerandnephrologytrials
AT treweekshaun patientandpublicinvolvementppiinoutcomeselectioninbreastcancerandnephrologytrials
AT laidlawlynn patientandpublicinvolvementppiinoutcomeselectioninbreastcancerandnephrologytrials
AT shielyfrances patientandpublicinvolvementppiinoutcomeselectioninbreastcancerandnephrologytrials

Ejemplares similares