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Better Regulation of End-Of-Life Care: A Call For A Holistic Approach
Existing regulation of end-of-life care is flawed. Problems include poorly-designed laws, policies, ethical codes, training, and funding programs, which often are neither effective nor helpful in guiding decision-making. This leads to adverse outcomes for patients, families, health professionals, an...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer Nature Singapore
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9908626/ https://www.ncbi.nlm.nih.gov/pubmed/36251135 http://dx.doi.org/10.1007/s11673-022-10213-8 |
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author | White, Ben P. Willmott, Lindy Close, Eliana |
author_facet | White, Ben P. Willmott, Lindy Close, Eliana |
author_sort | White, Ben P. |
collection | PubMed |
description | Existing regulation of end-of-life care is flawed. Problems include poorly-designed laws, policies, ethical codes, training, and funding programs, which often are neither effective nor helpful in guiding decision-making. This leads to adverse outcomes for patients, families, health professionals, and the health system as a whole. A key factor contributing to the harms of current regulation is a siloed approach to regulating end-of-life care. Existing approaches to regulation, and research into how that regulation could be improved, have tended to focus on a single regulatory instrument (e.g., just law or just ethical codes). As a result, there has been a failure to capture holistically the various forces that guide end-of-life care. This article proposes a response to address this, identifying “regulatory space” theory as a candidate to provide the much-needed holistic insight into improving regulation of end-of-life care. The article concludes with practical implications of this approach for regulators and researchers. |
format | Online Article Text |
id | pubmed-9908626 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Springer Nature Singapore |
record_format | MEDLINE/PubMed |
spelling | pubmed-99086262023-02-10 Better Regulation of End-Of-Life Care: A Call For A Holistic Approach White, Ben P. Willmott, Lindy Close, Eliana J Bioeth Inq Original Research Existing regulation of end-of-life care is flawed. Problems include poorly-designed laws, policies, ethical codes, training, and funding programs, which often are neither effective nor helpful in guiding decision-making. This leads to adverse outcomes for patients, families, health professionals, and the health system as a whole. A key factor contributing to the harms of current regulation is a siloed approach to regulating end-of-life care. Existing approaches to regulation, and research into how that regulation could be improved, have tended to focus on a single regulatory instrument (e.g., just law or just ethical codes). As a result, there has been a failure to capture holistically the various forces that guide end-of-life care. This article proposes a response to address this, identifying “regulatory space” theory as a candidate to provide the much-needed holistic insight into improving regulation of end-of-life care. The article concludes with practical implications of this approach for regulators and researchers. Springer Nature Singapore 2022-10-17 2022 /pmc/articles/PMC9908626/ /pubmed/36251135 http://dx.doi.org/10.1007/s11673-022-10213-8 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . |
spellingShingle | Original Research White, Ben P. Willmott, Lindy Close, Eliana Better Regulation of End-Of-Life Care: A Call For A Holistic Approach |
title | Better Regulation of End-Of-Life Care: A Call For A Holistic Approach |
title_full | Better Regulation of End-Of-Life Care: A Call For A Holistic Approach |
title_fullStr | Better Regulation of End-Of-Life Care: A Call For A Holistic Approach |
title_full_unstemmed | Better Regulation of End-Of-Life Care: A Call For A Holistic Approach |
title_short | Better Regulation of End-Of-Life Care: A Call For A Holistic Approach |
title_sort | better regulation of end-of-life care: a call for a holistic approach |
topic | Original Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9908626/ https://www.ncbi.nlm.nih.gov/pubmed/36251135 http://dx.doi.org/10.1007/s11673-022-10213-8 |
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