The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children

Caregivers of children with neurodiverse needs are known to experience challenges and hardship due to the increased needs of the child and the lack of support available. This study aimed to explore the support needs and well-being of caregivers of children with neurodiverse needs in Australia. Sixty...

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Detalles Bibliográficos
Autores principales: D’Arcy, Emily, Burnett, Tayah, Capstick, Emily, Elder, Catherine, Slee, Olivia, Girdler, Sonya, scott, Melissa, Milbourn, Ben
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2023
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9909132/
https://www.ncbi.nlm.nih.gov/pubmed/36757543
http://dx.doi.org/10.1007/s10803-023-05910-1
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author D’Arcy, Emily
Burnett, Tayah
Capstick, Emily
Elder, Catherine
Slee, Olivia
Girdler, Sonya
scott, Melissa
Milbourn, Ben
author_facet D’Arcy, Emily
Burnett, Tayah
Capstick, Emily
Elder, Catherine
Slee, Olivia
Girdler, Sonya
scott, Melissa
Milbourn, Ben
author_sort D’Arcy, Emily
collection PubMed
description Caregivers of children with neurodiverse needs are known to experience challenges and hardship due to the increased needs of the child and the lack of support available. This study aimed to explore the support needs and well-being of caregivers of children with neurodiverse needs in Australia. Sixty-six caregivers participated in an online survey asking questions about support needs. The results highlighted five main themes that caregivers commonly experienced including: barriers to community engagement, impact on close relationships, negative impact on mental health and identity, financial hardship, and identified support needs. Findings identified multiple unmet needs existing amongst caregivers and further emphasises the importance of addressing these needs to improve the quality of life of caregivers of children with neurodiverse needs.
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spelling pubmed-99091322023-02-09 The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children D’Arcy, Emily Burnett, Tayah Capstick, Emily Elder, Catherine Slee, Olivia Girdler, Sonya scott, Melissa Milbourn, Ben J Autism Dev Disord Original Paper Caregivers of children with neurodiverse needs are known to experience challenges and hardship due to the increased needs of the child and the lack of support available. This study aimed to explore the support needs and well-being of caregivers of children with neurodiverse needs in Australia. Sixty-six caregivers participated in an online survey asking questions about support needs. The results highlighted five main themes that caregivers commonly experienced including: barriers to community engagement, impact on close relationships, negative impact on mental health and identity, financial hardship, and identified support needs. Findings identified multiple unmet needs existing amongst caregivers and further emphasises the importance of addressing these needs to improve the quality of life of caregivers of children with neurodiverse needs. Springer US 2023-02-09 /pmc/articles/PMC9909132/ /pubmed/36757543 http://dx.doi.org/10.1007/s10803-023-05910-1 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) .
spellingShingle Original Paper
D’Arcy, Emily
Burnett, Tayah
Capstick, Emily
Elder, Catherine
Slee, Olivia
Girdler, Sonya
scott, Melissa
Milbourn, Ben
The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children
title The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children
title_full The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children
title_fullStr The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children
title_full_unstemmed The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children
title_short The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children
title_sort well-being and support needs of australian caregivers of neurodiverse children
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9909132/
https://www.ncbi.nlm.nih.gov/pubmed/36757543
http://dx.doi.org/10.1007/s10803-023-05910-1
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