Cargando…

Setting up a Governance Framework for Secondary Use of Routine Health Data in Nursing Homes: Development Study Using Qualitative Interviews

BACKGROUND: In the nursing home sector, reusing routinely recorded data from electronic health records (EHRs) for knowledge development and quality improvement is still in its infancy. Trust in appropriate and responsible reuse is crucial for patients and nursing homes deciding whether to share EHR...

Descripción completa

Detalles Bibliográficos
Autores principales:	Wieland-Jorna, Yvonne, Verheij, Robert A, Francke, Anneke L, Tomassen, Marit, Houtzager, Max, Joling, Karlijn J, Oosterveld-Vlug, Mariska G
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	JMIR Publications 2023
Materias:	Original Paper
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9909520/ https://www.ncbi.nlm.nih.gov/pubmed/36696162 http://dx.doi.org/10.2196/38929

Ejemplares similares

Opt-In and Opt-Out Consent Procedures for the Reuse of Routinely Recorded Health Data in Scientific Research and Their Consequences for Consent Rate and Consent Bias: Systematic Review
por: de Man, Yvonne, et al.
Publicado: (2023)

Evaluating quality of care at the end of life and setting best practice performance standards: a population-based observational study using linked routinely collected administrative databases
por: Oosterveld-Vlug, Mariska G., et al.
Publicado: (2022)

Nursing home staff’s views on residents’ dignity: a qualitative interview study
por: Oosterveld-Vlug, Mariska G, et al.
Publicado: (2013)

Changes in the Personal Dignity of Nursing Home Residents: A Longitudinal Qualitative Interview Study
por: Oosterveld-Vlug, Mariska G., et al.
Publicado: (2013)

What are essential elements of high-quality palliative care at home? An interview study among patients and relatives faced with advanced cancer
por: Oosterveld-Vlug, M. G., et al.
Publicado: (2019)

Evaluating the feasibility, experiences, facilitators of and barriers to carers and volunteers delivering Namaste Care to people with dementia in their own home: a qualitative interview study in the UK and the Netherlands
por: Haaksma, Miriam L, et al.
Publicado: (2022)

The Perceived Impact of the Namaste Care Family Program on Nursing Home Residents with Dementia, Staff, and Family Caregivers: A Qualitative Study
por: Smaling, Hanneke J.A., et al.
Publicado: (2022)

Measuring positive caregiving experiences in family caregivers of nursing home residents: A comparison of the Positive Experiences Scale, Gain in Alzheimer Care INstrument, and Positive Aspects of Caregiving questionnaire
por: Smaling, Hanneke JA, et al.
Publicado: (2021)

Time from diagnosis to institutionalization and death in people with dementia
por: Joling, Karlijn J., et al.
Publicado: (2020)

Cost-effectiveness of the Namaste care family program for nursing home residents with advanced dementia in comparison with usual care: a cluster-randomized controlled trial
por: El Alili, Mohamed, et al.
Publicado: (2020)

Patient participation in electronic nursing documentation: An interview study among home‐care patients
por: De Groot, Kim, et al.
Publicado: (2022)

Perceptions of healthcare professional about the “PACE Steps to Success” palliative care program for long‐term care: A qualitative study in Switzerland
por: Charmillot, Pierre‐Alain, et al.
Publicado: (2023)

THE EFFECTS OF THE NAMASTE CARE FAMILY PROGRAM ON QUALITY OF LIFE OF PEOPLE WITH ADVANCED DEMENTIA
por: van der Steen, Jenny T, et al.
Publicado: (2019)

How do treatment aims in the last phase of life relate to hospitalizations and hospital mortality? A mortality follow-back study of Dutch patients with five types of cancer
por: Oosterveld-Vlug, Mariska, et al.
Publicado: (2017)

Psychotropic drug prescription rates in primary care for people with dementia from recorded diagnosis onwards
por: Joling, Karlijn J., et al.
Publicado: (2020)

How do GPs identify a need for palliative care in their patients? An interview study
por: Claessen, Susanne JJ, et al.
Publicado: (2013)

Factors Associated with ADL Dependence in Nursing Home Residents with Korsakoff’s Syndrome and Other Alcohol-Related Disorders: An Explorative Cross-Sectional Study
por: Böhner, Eline S., et al.
Publicado: (2023)

Effects of the Namaste Care Family programme on quality of life of nursing home residents with advanced dementia and on family caregiving experiences: study protocol of a cluster-randomised controlled trial
por: Smaling, Hanneke J A, et al.
Publicado: (2018)

Regional variation in hospital care at the end-of-life of Dutch patients with lung cancer exists and is not correlated with primary and long-term care
por: de Man, Yvonne, et al.
Publicado: (2020)

Measuring positive caregiving experiences in caregivers of nursing home residents with dementia
por: Smaling, Hanneke JA, et al.
Publicado: (2021)

The Intensity of Hospital Care Utilization by Dutch Patients With Lung or Colorectal Cancer in their Final Months of Life
por: de Man, Yvonne, et al.
Publicado: (2019)

Assessing the validity and intra-observer agreement of the MIDAM-LTC; an instrument measuring factors that influence personal dignity in long-term care facilities
por: Oosterveld-Vlug, Mariska G, et al.
Publicado: (2014)

Indirect calorimetry: should it be part of routine care or only used in specific situations?
por: Sundström Rehal, Martin, et al.
Publicado: (2023)

Patient participation in electronic nursing documentation: an interview study among community nurses
por: De Groot, Kim, et al.
Publicado: (2021)

Prevalences and Indications of Psychotropic Drug Prescriptions in Nursing Home Residents with Korsakoff Syndrome
por: Gerridzen, Ineke J., et al.
Publicado: (2023)

Risk of Death in Nursing Home Residents After COVID-19 Vaccination
por: Wouters, Fenne, et al.
Publicado: (2022)

Barriers to home care for terminally ill Turkish and Moroccan migrants, perceived by GPs and nurses: a survey
por: de Graaff, Fuusje M, et al.
Publicado: (2009)

Interventions aimed at reducing problems in adult patients discharged from hospital to home: a systematic meta-review
por: Mistiaen, Patriek, et al.
Publicado: (2007)

Caregivers' perspectives on good care for nursing home residents with Korsakoff syndrome
por: Gerridzen, Ineke J, et al.
Publicado: (2020)

How Can the Arts Influence the Attitudes of Dementia Caregivers? A Mixed-Methods Longitudinal Investigation
por: Windle, Gill, et al.
Publicado: (2020)

Exploring the Use of Genomic and Routinely Collected Data: Narrative Literature Review and Interview Study
por: Daniels, Helen, et al.
Publicado: (2021)

Clinical Suspicion of COVID-19 in Nursing Home Residents: Symptoms and Mortality Risk Factors
por: Rutten, Jeanine J.S., et al.
Publicado: (2020)

Pay-for-performance for appropriate prescribing using routine healthcare data from general practices
por: Arslan, I G, et al.
Publicado: (2023)

A dignified last phase of life for patients with a migration background: A qualitative study
por: de Voogd, X, et al.
Publicado: (2020)

Relationships, Expertise, Incentives, and Governance: Supporting Care Home Residents' Access to Health Care. An Interview Study From England
por: Goodman, Claire, et al.
Publicado: (2015)

Dementia and Parkinson’s Disease: Risk Factors for 30-Day Mortality in Nursing Home Residents with COVID-19
por: Rutten, Jeanine J.S., et al.
Publicado: (2021)

Dealing with professional misconduct by colleagues in home care: a nationwide survey among nursing staff
por: Maurits, Erica E. M., et al.
Publicado: (2016)

Occurrence and Timing of Advance Care Planning in Persons With Dementia in General Practice: Analysis of Linked Electronic Health Records and Administrative Data
por: Azizi, Bahar, et al.
Publicado: (2022)

Awareness and its relationships with neuropsychiatric symptoms in people with Korsakoff syndrome or other alcohol‐related cognitive disorders living in specialized nursing homes
por: Gerridzen, Ineke J., et al.
Publicado: (2019)

An economic appraisal of the Australian Medical Sheepskin for the prevention of sacral pressure ulcers from a nursing home perspective
por: Mistiaen, Patriek, et al.
Publicado: (2010)

Cannot write session to /tmp/vufind_sessions/sess_pgh43js7s0ql799420mpfn2pls