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Proposed Implementation of a Patient-Centered Self-Assessment Tool for Patients with Neuroendocrine Tumors among Academic and Community Practice Sites: The City of Hope Model

Neuroendocrine tumors are a rare type of cancer found in hormone-producing cells throughout the body. Research on disease-specific patient education assessments in this population is lacking. We previously demonstrated the feasibility and validity of NET VITALS, a patient-centered self-assessment de...

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Autores principales: Crook, Christiana Joy, Yen, Lisa, Ta, Kathleen, Karimi, Misagh, Nguyen, Danny, Lee, Richard T., Li, Daneng
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9917881/
https://www.ncbi.nlm.nih.gov/pubmed/36769875
http://dx.doi.org/10.3390/jcm12031229
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author Crook, Christiana Joy
Yen, Lisa
Ta, Kathleen
Karimi, Misagh
Nguyen, Danny
Lee, Richard T.
Li, Daneng
author_facet Crook, Christiana Joy
Yen, Lisa
Ta, Kathleen
Karimi, Misagh
Nguyen, Danny
Lee, Richard T.
Li, Daneng
author_sort Crook, Christiana Joy
collection PubMed
description Neuroendocrine tumors are a rare type of cancer found in hormone-producing cells throughout the body. Research on disease-specific patient education assessments in this population is lacking. We previously demonstrated the feasibility and validity of NET VITALS, a patient-centered self-assessment designed to improve patients’ knowledge of their neuroendocrine tumor diagnosis/treatment and facilitate communication with their physician. In this report, we provide a brief overview of patient assessments that have been used for patients with neuroendocrine tumors. We summarize NET VITALS and present a proposed infrastructure for its implementation into standard clinical care in both academic and community practice settings at City of Hope. Incorporating NET VITALS into standard of care treatment for patients with neuroendocrine tumors may improve patients’ overall clinical care experience.
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spelling pubmed-99178812023-02-11 Proposed Implementation of a Patient-Centered Self-Assessment Tool for Patients with Neuroendocrine Tumors among Academic and Community Practice Sites: The City of Hope Model Crook, Christiana Joy Yen, Lisa Ta, Kathleen Karimi, Misagh Nguyen, Danny Lee, Richard T. Li, Daneng J Clin Med Opinion Neuroendocrine tumors are a rare type of cancer found in hormone-producing cells throughout the body. Research on disease-specific patient education assessments in this population is lacking. We previously demonstrated the feasibility and validity of NET VITALS, a patient-centered self-assessment designed to improve patients’ knowledge of their neuroendocrine tumor diagnosis/treatment and facilitate communication with their physician. In this report, we provide a brief overview of patient assessments that have been used for patients with neuroendocrine tumors. We summarize NET VITALS and present a proposed infrastructure for its implementation into standard clinical care in both academic and community practice settings at City of Hope. Incorporating NET VITALS into standard of care treatment for patients with neuroendocrine tumors may improve patients’ overall clinical care experience. MDPI 2023-02-03 /pmc/articles/PMC9917881/ /pubmed/36769875 http://dx.doi.org/10.3390/jcm12031229 Text en © 2023 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Opinion
Crook, Christiana Joy
Yen, Lisa
Ta, Kathleen
Karimi, Misagh
Nguyen, Danny
Lee, Richard T.
Li, Daneng
Proposed Implementation of a Patient-Centered Self-Assessment Tool for Patients with Neuroendocrine Tumors among Academic and Community Practice Sites: The City of Hope Model
title Proposed Implementation of a Patient-Centered Self-Assessment Tool for Patients with Neuroendocrine Tumors among Academic and Community Practice Sites: The City of Hope Model
title_full Proposed Implementation of a Patient-Centered Self-Assessment Tool for Patients with Neuroendocrine Tumors among Academic and Community Practice Sites: The City of Hope Model
title_fullStr Proposed Implementation of a Patient-Centered Self-Assessment Tool for Patients with Neuroendocrine Tumors among Academic and Community Practice Sites: The City of Hope Model
title_full_unstemmed Proposed Implementation of a Patient-Centered Self-Assessment Tool for Patients with Neuroendocrine Tumors among Academic and Community Practice Sites: The City of Hope Model
title_short Proposed Implementation of a Patient-Centered Self-Assessment Tool for Patients with Neuroendocrine Tumors among Academic and Community Practice Sites: The City of Hope Model
title_sort proposed implementation of a patient-centered self-assessment tool for patients with neuroendocrine tumors among academic and community practice sites: the city of hope model
topic Opinion
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9917881/
https://www.ncbi.nlm.nih.gov/pubmed/36769875
http://dx.doi.org/10.3390/jcm12031229
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