Cargando…

The Lived Experience of Caregiving and Perception of Service Provision among Family-Caregivers of People with Late-Stage Parkinson's: A Qualitative Study

BACKGROUND: The complex nature of late-stage Parkinson's requires multiagency support and leads to an increased burden on family members who assume a multiplicity of responsibilities. The aim of this study is to further understand the lived experiences of family-caregivers and their perception...

Descripción completa

Detalles Bibliográficos
Autores principales:	Read, Joy, Cable, Sarah, Bartl, Gergely, Löfqvist, Charlotte, Iwarsson, Susanne, Schrag, Anette
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Hindawi 2023
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9918353/ https://www.ncbi.nlm.nih.gov/pubmed/36776984 http://dx.doi.org/10.1155/2023/4483517

Ejemplares similares

Experiences of health services and unmet care needs of people with late-stage Parkinson’s in England: A qualitative study
por: Read, Joy, et al.
Publicado: (2019)

Perspectives on Care for Late-Stage Parkinson's Disease
por: Rosqvist, Kristina, et al.
Publicado: (2021)

Caregiver Burden and Quality of Life in Late Stage Parkinson’s Disease
por: Rosqvist, Kristina, et al.
Publicado: (2022)

Delivering Optimal Care to People with Cognitive Impairment in Parkinson's Disease: A Qualitative Study of Patient, Caregiver, and Professional Perspectives
por: Pigott, Jennifer S., et al.
Publicado: (2023)

Perceptions and meanings of living with Parkinson’s disease: an account of caregivers lived experiences
por: Bhasin, Supreet Kaur, et al.
Publicado: (2021)

Transitioning Into Retirement and the Meaning of Home: A Qualitative Study Among the Younger Old in Sweden
por: Kylén, Maya, et al.
Publicado: (2020)

Perceptions of people with Parkinson’s and their caregivers of falling and falls-related healthcare services- a qualitative study
por: Owen, Charlotte L., et al.
Publicado: (2022)

The influence of participation on mortality in very old age among community-living people in Sweden
por: Haak, Maria, et al.
Publicado: (2018)

Informal Caregiving and Health in Middle and Late Adulthood
por: Jang, Joy Bohyun, et al.
Publicado: (2020)

The perception of apathy by caregivers of patients with dementia in Parkinson's disease
por: Camargo, Carlos Henrique Ferreira, et al.
Publicado: (2016)

Transitions and challenges for people with Parkinson’s and their family members: A qualitative study
por: Read, Joy, et al.
Publicado: (2022)

Information provision to caregivers of children with rare dermatological disorders: an international multimethod qualitative study
por: Walsh, Carleen, et al.
Publicado: (2023)

People with Parkinson’s perspectives and experiences of self-management: Qualitative findings from a UK study
por: Shah, Ria, et al.
Publicado: (2022)

Impact of Caregiving on Various Aspects of the Lives of Caregivers
por: Irfan, Babar, et al.
Publicado: (2017)

First Steps towards Evidence-Based Preventive Home Visits: Experiences Gathered in a Swedish Municipality
por: Löfqvist, Charlotte, et al.
Publicado: (2012)

Meaning of home and health dynamics among younger older people in Sweden
por: Kylén, Maya, et al.
Publicado: (2019)

User Attitudes Toward Research and Development of Technologies: Perspectives From Three Generations
por: Schmidt, Steven, et al.
Publicado: (2020)

Perceptions of Acute Care Telemedicine Among Caregivers for Persons Living with Dementia: A Qualitative Study
por: Chary, Anita, et al.
Publicado: (2023)

Living with Parkinson’s disease: disease and medication experiences of patients and caregivers
por: Chen, Yi-Wen, et al.
Publicado: (2022)

Caregiver perceptions of England’s universal infant school meal provision during the COVID-19 pandemic
por: Davies, Emyr, et al.
Publicado: (2023)

Self-Management Components as Experienced by People with Parkinson's Disease and Their Carers: A Systematic Review and Synthesis of the Qualitative Literature
por: Tuijt, Remco, et al.
Publicado: (2020)

The Validity of Health-Related Quality of Life Instruments in Patients With Late-Stage Parkinson’s Disease
por: Ramadhan, Mouhammed, et al.
Publicado: (2022)

Exploring Infant Caregivers' Provision of Modified Formulas: Potential Demographic Differences and Reasons for Provisions
por: Gershman, Haley, et al.
Publicado: (2022)

Caregiver Burden and Quality of Life in Early and Late Stages of Idiopathic Parkinson’s Disease
por: Genç, Fatma, et al.
Publicado: (2019)

Satisfaction with Care in Late Stage Parkinson's Disease
por: Rosqvist, Kristina, et al.
Publicado: (2019)

CONVERSATIONS ON THE COSTS OF CAREGIVING: COMPARING CAREGIVERS’ AND FINANCIAL ADVISORS’ PERCEPTIONS
por: Balmuth, Alexa, et al.
Publicado: (2022)

Health care professionals’ perspectives on self-management for people with Parkinson’s: qualitative findings from a UK study
por: Armstrong, Megan, et al.
Publicado: (2021)

Family caregiver quality of life and the care provided to older people living with dementia: qualitative analyses of caregiver interviews
por: Hazzan, Afeez Abiola, et al.
Publicado: (2022)

Informal Caregiving in Amyotrophic Lateral Sclerosis (ALS): A High Caregiver Burden and Drastic Consequences on Caregivers’ Lives
por: Schischlevskij, Pavel, et al.
Publicado: (2021)

Changes in Home and Health over Nine Years among very Old People in Latvia – Results from the ENABLE-AGE Project
por: Löfqvist, Charlotte, et al.
Publicado: (2016)

Exploring perceptions of health caregivers on the causes of caregivers’ occupational burnout in institutes of children with cerebral palsy: A qualitative study
por: Dehghan, Abbass, et al.
Publicado: (2017)

Caregiver perceptions of children’s linear growth in Bangladesh: a qualitative analysis
por: Hossain, Muttaquina, et al.
Publicado: (2018)

Intensity of Predeath Grief and Postdeath Grief of Family Caregivers in Palliative Care in Relation to Preparedness for Caregiving, Caregiver Burden, and Social Support
por: Axelsson, Lena, et al.
Publicado: (2020)

Caregiving burden in family caregivers of patients with schizophrenia: A qualitative study
por: Tamizi, Zahra, et al.
Publicado: (2020)

Parkinson rehabilitation in nursing homes: a qualitative exploration of the experiences of patients and caregivers
por: Fidder, Hester, et al.
Publicado: (2022)

Psychological Impact of Parkinson Disease Delusions on Spouse Caregivers: A Qualitative Study
por: Deutsch, Caroline J., et al.
Publicado: (2021)

“Am I representative (of my age)? No, I’m not”—Attitudes to technologies and technology development differ but unite individuals across rather than within generations
por: Fristedt, Sofi, et al.
Publicado: (2021)

Parkinson's Disease Caregiver Strain in Singapore
por: Tan, Siok-Bee, et al.
Publicado: (2020)

Caregiver Burnout in Parkinson's: Time to Address
por: Ovallath, Sujith
Publicado: (2020)

Infant formula and toddler milk marketing and caregiver's provision to young children
por: Romo‐Palafox, Maria J., et al.
Publicado: (2020)

Cannot write session to /tmp/vufind_sessions/sess_05q1kula5g99ut8ebh7j1vhjqv