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Murru Minya–informing the development of practical recommendations to support ethical conduct in Aboriginal and Torres Strait Islander health research: a protocol for a national mixed-methods study

INTRODUCTION: Conducting ethical and high-quality health research is crucial for informing public health policy and service delivery to reduce the high and inequitable burden of disease experienced by Aboriginal and Torres Strait Islander people. Ethical guidelines and principles specifically for he...

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Autores principales: McGuffog, Romany, Chamberlain, Catherine, Hughes, Jaqui, Kong, Kelvin, Wenitong, Mark, Bryant, Jamie, Brown, Alex, Eades, Sandra J, Griffiths, Kalinda E, Collis, Felicity, Hobden, Breanne, O'Mara, Peter, Ridgeway, Tanika, Walter, Maggie, Kennedy, Michelle
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9923310/
https://www.ncbi.nlm.nih.gov/pubmed/36764710
http://dx.doi.org/10.1136/bmjopen-2022-067054
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author McGuffog, Romany
Chamberlain, Catherine
Hughes, Jaqui
Kong, Kelvin
Wenitong, Mark
Bryant, Jamie
Brown, Alex
Eades, Sandra J
Griffiths, Kalinda E
Collis, Felicity
Hobden, Breanne
O'Mara, Peter
Ridgeway, Tanika
Walter, Maggie
Kennedy, Michelle
author_facet McGuffog, Romany
Chamberlain, Catherine
Hughes, Jaqui
Kong, Kelvin
Wenitong, Mark
Bryant, Jamie
Brown, Alex
Eades, Sandra J
Griffiths, Kalinda E
Collis, Felicity
Hobden, Breanne
O'Mara, Peter
Ridgeway, Tanika
Walter, Maggie
Kennedy, Michelle
author_sort McGuffog, Romany
collection PubMed
description INTRODUCTION: Conducting ethical and high-quality health research is crucial for informing public health policy and service delivery to reduce the high and inequitable burden of disease experienced by Aboriginal and Torres Strait Islander people. Ethical guidelines and principles specifically for health research with Aboriginal and Torres Strait Islander people have been developed for use since 1987. However, there has been limited examination of how these are being applied to the conduct of research. METHODS AND ANALYSIS: Murru Minya will be a large-scale national study to examine the implementation of ethical processes in Aboriginal and Torres Strait Islander health research. A mixed-methods design will be used in four baarra (steps). The first three baarra will collect knowledge, experiences and wisdom from three key groups: Aboriginal and Torres Strait Islander communities, research academics, and Human Research Ethics Committees using online surveys, yarning, and semistructured interviews. This knowledge will inform the final baarra of developing a set of practical recommendations to support ethical conduct in Aboriginal and Torres Strait Islander health research into the future. ETHICS AND DISSEMINATION: Ethical approval for this research project has been granted by National, State and Territory Human Research Ethics Committees. This research has been developed in collaboration with Aboriginal and Torres Strait Islander researchers, Aboriginal Community Controlled Health Organisation representatives, Aboriginal community members, the National Health Leadership Forum, and Aboriginal and Torres Strait Islander research team. The knowledge translation plan will be integrated and revised throughout the project as partnerships and engagement with Aboriginal and Torres Strait Islander communities continue. All findings will be shared with peak Aboriginal research bodies and Aboriginal and Torres Strait Islander communities in ways that are meaningful to them.
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spelling pubmed-99233102023-02-14 Murru Minya–informing the development of practical recommendations to support ethical conduct in Aboriginal and Torres Strait Islander health research: a protocol for a national mixed-methods study McGuffog, Romany Chamberlain, Catherine Hughes, Jaqui Kong, Kelvin Wenitong, Mark Bryant, Jamie Brown, Alex Eades, Sandra J Griffiths, Kalinda E Collis, Felicity Hobden, Breanne O'Mara, Peter Ridgeway, Tanika Walter, Maggie Kennedy, Michelle BMJ Open Public Health INTRODUCTION: Conducting ethical and high-quality health research is crucial for informing public health policy and service delivery to reduce the high and inequitable burden of disease experienced by Aboriginal and Torres Strait Islander people. Ethical guidelines and principles specifically for health research with Aboriginal and Torres Strait Islander people have been developed for use since 1987. However, there has been limited examination of how these are being applied to the conduct of research. METHODS AND ANALYSIS: Murru Minya will be a large-scale national study to examine the implementation of ethical processes in Aboriginal and Torres Strait Islander health research. A mixed-methods design will be used in four baarra (steps). The first three baarra will collect knowledge, experiences and wisdom from three key groups: Aboriginal and Torres Strait Islander communities, research academics, and Human Research Ethics Committees using online surveys, yarning, and semistructured interviews. This knowledge will inform the final baarra of developing a set of practical recommendations to support ethical conduct in Aboriginal and Torres Strait Islander health research into the future. ETHICS AND DISSEMINATION: Ethical approval for this research project has been granted by National, State and Territory Human Research Ethics Committees. This research has been developed in collaboration with Aboriginal and Torres Strait Islander researchers, Aboriginal Community Controlled Health Organisation representatives, Aboriginal community members, the National Health Leadership Forum, and Aboriginal and Torres Strait Islander research team. The knowledge translation plan will be integrated and revised throughout the project as partnerships and engagement with Aboriginal and Torres Strait Islander communities continue. All findings will be shared with peak Aboriginal research bodies and Aboriginal and Torres Strait Islander communities in ways that are meaningful to them. BMJ Publishing Group 2023-02-10 /pmc/articles/PMC9923310/ /pubmed/36764710 http://dx.doi.org/10.1136/bmjopen-2022-067054 Text en © Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) .
spellingShingle Public Health
McGuffog, Romany
Chamberlain, Catherine
Hughes, Jaqui
Kong, Kelvin
Wenitong, Mark
Bryant, Jamie
Brown, Alex
Eades, Sandra J
Griffiths, Kalinda E
Collis, Felicity
Hobden, Breanne
O'Mara, Peter
Ridgeway, Tanika
Walter, Maggie
Kennedy, Michelle
Murru Minya–informing the development of practical recommendations to support ethical conduct in Aboriginal and Torres Strait Islander health research: a protocol for a national mixed-methods study
title Murru Minya–informing the development of practical recommendations to support ethical conduct in Aboriginal and Torres Strait Islander health research: a protocol for a national mixed-methods study
title_full Murru Minya–informing the development of practical recommendations to support ethical conduct in Aboriginal and Torres Strait Islander health research: a protocol for a national mixed-methods study
title_fullStr Murru Minya–informing the development of practical recommendations to support ethical conduct in Aboriginal and Torres Strait Islander health research: a protocol for a national mixed-methods study
title_full_unstemmed Murru Minya–informing the development of practical recommendations to support ethical conduct in Aboriginal and Torres Strait Islander health research: a protocol for a national mixed-methods study
title_short Murru Minya–informing the development of practical recommendations to support ethical conduct in Aboriginal and Torres Strait Islander health research: a protocol for a national mixed-methods study
title_sort murru minya–informing the development of practical recommendations to support ethical conduct in aboriginal and torres strait islander health research: a protocol for a national mixed-methods study
topic Public Health
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9923310/
https://www.ncbi.nlm.nih.gov/pubmed/36764710
http://dx.doi.org/10.1136/bmjopen-2022-067054
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