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Ethics of Medical Archival Internet Research Data

Medical research based on internet archive data, which in some ways is quite different from other data-based studies, is becoming more and more common. Despite its uniqueness and the challenges that characterize it, clear ethical rules designed to guide practitioners in this field have not yet been...

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Detalles Bibliográficos
Autores principales: Rashi, Tsuriel, Yom-Tov, Elad
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9929718/
https://www.ncbi.nlm.nih.gov/pubmed/36719736
http://dx.doi.org/10.2196/43754
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author Rashi, Tsuriel
Yom-Tov, Elad
author_facet Rashi, Tsuriel
Yom-Tov, Elad
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collection PubMed
description Medical research based on internet archive data, which in some ways is quite different from other data-based studies, is becoming more and more common. Despite its uniqueness and the challenges that characterize it, clear ethical rules designed to guide practitioners in this field have not yet been written. This article points to the lacuna that exists in legal and ethical texts today and offers an ethically balancing alternative. Among other features, the balance is based on the famous three laws of robotics by Asimov and a series of values, including transparency, accountability, fairness, and privacy.
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spelling pubmed-99297182023-02-16 Ethics of Medical Archival Internet Research Data Rashi, Tsuriel Yom-Tov, Elad J Med Internet Res Viewpoint Medical research based on internet archive data, which in some ways is quite different from other data-based studies, is becoming more and more common. Despite its uniqueness and the challenges that characterize it, clear ethical rules designed to guide practitioners in this field have not yet been written. This article points to the lacuna that exists in legal and ethical texts today and offers an ethically balancing alternative. Among other features, the balance is based on the famous three laws of robotics by Asimov and a series of values, including transparency, accountability, fairness, and privacy. JMIR Publications 2023-01-31 /pmc/articles/PMC9929718/ /pubmed/36719736 http://dx.doi.org/10.2196/43754 Text en ©Tsuriel Rashi, Elad Yom-Tov. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 31.01.2023. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on https://www.jmir.org/, as well as this copyright and license information must be included.
spellingShingle Viewpoint
Rashi, Tsuriel
Yom-Tov, Elad
Ethics of Medical Archival Internet Research Data
title Ethics of Medical Archival Internet Research Data
title_full Ethics of Medical Archival Internet Research Data
title_fullStr Ethics of Medical Archival Internet Research Data
title_full_unstemmed Ethics of Medical Archival Internet Research Data
title_short Ethics of Medical Archival Internet Research Data
title_sort ethics of medical archival internet research data
topic Viewpoint
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9929718/
https://www.ncbi.nlm.nih.gov/pubmed/36719736
http://dx.doi.org/10.2196/43754
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