Cargando…

Consent Codes: Maintaining Consent in an Ever-expanding Open Science Ecosystem

We previously proposed a structure for recording consent-based data use ‘categories’ and ‘requirements’ – Consent Codes – with a view to supporting maximum use and integration of genomic research datasets, and reducing uncertainty about permissible re-use of shared data. Here we discuss clarificatio...

Descripción completa

Detalles Bibliográficos
Autores principales:	Dyke, Stephanie O. M., Connor, Kathleen, Nembaware, Victoria, Munung, Nchangwi S., Reinold, Kathy, Kerry, Giselle, Mbiyavanga, Mamana, Zass, Lyndon, Moldes, Mauricio, Das, Samir, Davis, John M., De Argila, Jordi Rambla, Spalding, J. Dylan, Evans, Alan C., Mulder, Nicola, Karamchandani, Jason
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Springer US 2022
Materias:	Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9931855/ https://www.ncbi.nlm.nih.gov/pubmed/36520344 http://dx.doi.org/10.1007/s12021-022-09577-4

Ejemplares similares

Assent, parental consent and reconsent for health research in Africa: thematic analysis of national guidelines and lessons from the SickleInAfrica registry
por: Munung, Nchangwi Syntia, et al.
Publicado: (2022)

Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents
por: Munung, Nchangwi Syntia, et al.
Publicado: (2016)

Consent Codes: Upholding Standard Data Use Conditions
por: Dyke, Stephanie O. M., et al.
Publicado: (2016)

The H3ABioNet helpdesk: an online bioinformatics resource, enhancing Africa’s capacity for genomics research
por: Kumuthini, Judit, et al.
Publicado: (2019)

Consent for publication: Why it matters now more than ever?
por: Ahmed, S., et al.
Publicado: (2020)

Patient-centric research in the time of COVID-19: conducting ethical COVID-19 research in Africa
por: Nembaware, Victoria, et al.
Publicado: (2020)

To Consent or Not to Consent to Screening, That Is the Question
por: Hofmann, Bjørn
Publicado: (2023)

Liberalizing consent - Supreme Court's preference for ‘real consent’ over ‘informed consent’
por: Rangaramanujam, ATM
Publicado: (2008)

Proposed minimum information guideline for kidney disease—research and clinical data reporting: a cross-sectional study
por: Kumuthini, Judit, et al.
Publicado: (2019)

Record linkage research and informed consent: who consents?
por: Huang, Nicole, et al.
Publicado: (2007)

Interactive Informed Consent: Randomized Comparison with Paper Consents
por: Rowbotham, Michael C., et al.
Publicado: (2013)

Is it time to separate consent for anesthesia from consent for surgery?
por: Singh, Tejinder Singh Swaran
Publicado: (2017)

iConsent an Electronic Consent Platform with the MS Register
por: Middleton, Rod, et al.
Publicado: (2017)

What is the process of obtaining informed consent in a clinical trial? Is it ever justifiable to include someone in a clinical trial without prior informed consent from the individual?
por: Agyeman, Akosua Adom, et al.
Publicado: (2016)

The impact of consent on observational research: a comparison of outcomes from consenters and non consenters to an observational study
por: Macleod, Una, et al.
Publicado: (2008)

Understood Consent Versus Informed Consent: A New Paradigm for Obtaining Consent for Pediatric Research Studies
por: Isles, Alan F.
Publicado: (2013)

Consent for Examination
por: Acharya, K.
Publicado: (1939)

Consent in escrow
por: Van der Loos, Kiah I., et al.
Publicado: (2014)

COVID and consent
por: Stagnell, S., et al.
Publicado: (2020)

Informed consent
por: Liew, J., et al.
Publicado: (2021)

Consent congrats
por: Chate, R. A. C.
Publicado: (2022)

Consent to Operation
Publicado: (1907)

Advice on consent
por: D´Cruz, L.
Publicado: (2021)

Foundations for Meaningful Consent in Canada’s Digital Health Ecosystem: Retrospective Study
por: Shen, Nelson, et al.
Publicado: (2022)

Ensuring that informed consent is really an informed consent: Role of videography
por: Ghooi, Ravindra B.
Publicado: (2014)

Electronic informed consenting: A boon to modernize consenting process
por: Shenoy, Premnath
Publicado: (2015)

Reply…Is it time to separate consent for anesthesia from consent for surgery?
por: Bloria, Summit
Publicado: (2017)

Revised Common Rule Changes to the Consent Process and Consent Form
por: LeCompte, Leah L., et al.
Publicado: (2020)

‘Relative Consent’ or ‘Presumed Consent’? Organ donation attitudes and behaviour
por: Costa-Font, Joan, et al.
Publicado: (2020)

Erratum: What is the Process of Obtaining Informed Consent in a Clinical Trial? Is it Ever Justifiable to Include Someone in a Clinical Trial without Prior Informed Consent from the Individual?
Publicado: (2017)

A REDCap-based model for electronic consent (eConsent): Moving toward a more personalized consent
por: Lawrence, Colleen E., et al.
Publicado: (2020)

Consenting of the vulnerable: the informed consent procedure in advanced cancer patients in Mexico
por: Verástegui, Emma L
Publicado: (2006)

Consenting options for posthumous organ donation: presumed consent and incentives are not favored
por: Hammami, Muhammad M, et al.
Publicado: (2012)

Written Informed Consent for Participation in a Study and Reduction in Consent Rate
por: Tamakoshi, Akiko, et al.
Publicado: (2008)

Consent Builder: an innovative tool for creating research informed consent documents
por: Sward, Katherine A, et al.
Publicado: (2022)

Informed consent for clinical treatment in low-income setting: evaluating the relationship between satisfying consent and extent of recall of consent information
por: Nnabugwu, Ikenna I., et al.
Publicado: (2017)

Consent in radiology practice
Publicado: (2009)

Coercion and capacity to consent
por: Adshead, Gwen
Publicado: (2007)

Electronic informed consent
por: Stevens, Natasha
Publicado: (2013)

Informed consent and research
por: Mandal, Jharna, et al.
Publicado: (2014)

Cannot write session to /tmp/vufind_sessions/sess_9isj9n1vrqva4kmsb7vpi4btkd