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Reimagining health services provision for neglected groups: The “personalization from below” phenomenon
How can data-driven citizen science activities supporting health research and services provision meet the needs of unrepresented and neglected groups through increased personalization? In this short Perspective, we explore “personalization from below” as a concept designating forms of citizen scienc...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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Frontiers Media S.A.
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9935082/ https://www.ncbi.nlm.nih.gov/pubmed/36818664 http://dx.doi.org/10.3389/fsoc.2023.1052215 |
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author | Berti Suman, Anna Heyen, Nils B. Micheli, Marina |
author_facet | Berti Suman, Anna Heyen, Nils B. Micheli, Marina |
author_sort | Berti Suman, Anna |
collection | PubMed |
description | How can data-driven citizen science activities supporting health research and services provision meet the needs of unrepresented and neglected groups through increased personalization? In this short Perspective, we explore “personalization from below” as a concept designating forms of citizen science-based data altruism that specifically push for and enact a different understanding of both health services and personalization. We develop the argument that such phenomenon taking place outside “institutionalized” health-related practices could make health services provision more inclusive of values that matter to people. We contextualize instances of “personalization from below,” discuss related data governance models and alternative public health interventions, and conclude by outlining three key arguments in favor of “personalization from below” and future research avenues. |
format | Online Article Text |
id | pubmed-9935082 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Frontiers Media S.A. |
record_format | MEDLINE/PubMed |
spelling | pubmed-99350822023-02-17 Reimagining health services provision for neglected groups: The “personalization from below” phenomenon Berti Suman, Anna Heyen, Nils B. Micheli, Marina Front Sociol Sociology How can data-driven citizen science activities supporting health research and services provision meet the needs of unrepresented and neglected groups through increased personalization? In this short Perspective, we explore “personalization from below” as a concept designating forms of citizen science-based data altruism that specifically push for and enact a different understanding of both health services and personalization. We develop the argument that such phenomenon taking place outside “institutionalized” health-related practices could make health services provision more inclusive of values that matter to people. We contextualize instances of “personalization from below,” discuss related data governance models and alternative public health interventions, and conclude by outlining three key arguments in favor of “personalization from below” and future research avenues. Frontiers Media S.A. 2023-02-02 /pmc/articles/PMC9935082/ /pubmed/36818664 http://dx.doi.org/10.3389/fsoc.2023.1052215 Text en Copyright © 2023 Berti Suman, Heyen and Micheli. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. |
spellingShingle | Sociology Berti Suman, Anna Heyen, Nils B. Micheli, Marina Reimagining health services provision for neglected groups: The “personalization from below” phenomenon |
title | Reimagining health services provision for neglected groups: The “personalization from below” phenomenon |
title_full | Reimagining health services provision for neglected groups: The “personalization from below” phenomenon |
title_fullStr | Reimagining health services provision for neglected groups: The “personalization from below” phenomenon |
title_full_unstemmed | Reimagining health services provision for neglected groups: The “personalization from below” phenomenon |
title_short | Reimagining health services provision for neglected groups: The “personalization from below” phenomenon |
title_sort | reimagining health services provision for neglected groups: the “personalization from below” phenomenon |
topic | Sociology |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9935082/ https://www.ncbi.nlm.nih.gov/pubmed/36818664 http://dx.doi.org/10.3389/fsoc.2023.1052215 |
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