Commentary on Patient Advocacy and Research Priorities in Olfactory and Gustatory Disorders

PURPOSE OF REVIEW: This paper outlines the challenges faced by people with smell and taste disorders (SATDs) and why patient advocacy is crucial in addressing these. It includes recent findings in identifying research priorities in SATDs. RECENT FINDINGS: A recent Priority Setting Partnership (PSP)...

Descripción completa

Detalles Bibliográficos
Autores principales: Garden, E. M., Espehana, A., Boak, D., Gadi, N., Philpott, C. M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2023
Materias:
Invited Commentary
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9936105/
https://www.ncbi.nlm.nih.gov/pubmed/36811099
http://dx.doi.org/10.1007/s40136-023-00444-7
_version_ 1784890165284569088
author Garden, E. M.
Espehana, A.
Boak, D.
Gadi, N.
Philpott, C. M.
author_facet Garden, E. M.
Espehana, A.
Boak, D.
Gadi, N.
Philpott, C. M.
author_sort Garden, E. M.
collection PubMed
description PURPOSE OF REVIEW: This paper outlines the challenges faced by people with smell and taste disorders (SATDs) and why patient advocacy is crucial in addressing these. It includes recent findings in identifying research priorities in SATDs. RECENT FINDINGS: A recent Priority Setting Partnership (PSP) conducted with the James Lind Alliance (JLA) has been completed and the top 10 research priorities in SATDs determined. Fifth Sense, a UK charity, has been working alongside patient and healthcare professions to drive awareness, education and research in this area. SUMMARY: Following the completion of the PSP, Fifth Sense have launched six Research Hubs to take forward these priorities and engage with researchers to carry out and deliver research that directly answers the questions raised by the results of the PSP. The six Research Hubs cover a different aspect of smell and taste disorders. Each hub is led by clinicians and researchers recognised for their expertise in their field, who will act as champions for their respective hub.
format Online
Article
Text
id pubmed-9936105
institution National Center for Biotechnology Information
language English
publishDate 2023
publisher Springer US
record_format MEDLINE/PubMed
spelling pubmed-99361052023-02-17 Commentary on Patient Advocacy and Research Priorities in Olfactory and Gustatory Disorders Garden, E. M. Espehana, A. Boak, D. Gadi, N. Philpott, C. M. Curr Otorhinolaryngol Rep Invited Commentary PURPOSE OF REVIEW: This paper outlines the challenges faced by people with smell and taste disorders (SATDs) and why patient advocacy is crucial in addressing these. It includes recent findings in identifying research priorities in SATDs. RECENT FINDINGS: A recent Priority Setting Partnership (PSP) conducted with the James Lind Alliance (JLA) has been completed and the top 10 research priorities in SATDs determined. Fifth Sense, a UK charity, has been working alongside patient and healthcare professions to drive awareness, education and research in this area. SUMMARY: Following the completion of the PSP, Fifth Sense have launched six Research Hubs to take forward these priorities and engage with researchers to carry out and deliver research that directly answers the questions raised by the results of the PSP. The six Research Hubs cover a different aspect of smell and taste disorders. Each hub is led by clinicians and researchers recognised for their expertise in their field, who will act as champions for their respective hub. Springer US 2023-02-17 2023 /pmc/articles/PMC9936105/ /pubmed/36811099 http://dx.doi.org/10.1007/s40136-023-00444-7 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) .
spellingShingle Invited Commentary
Garden, E. M.
Espehana, A.
Boak, D.
Gadi, N.
Philpott, C. M.
Commentary on Patient Advocacy and Research Priorities in Olfactory and Gustatory Disorders
title Commentary on Patient Advocacy and Research Priorities in Olfactory and Gustatory Disorders
title_full Commentary on Patient Advocacy and Research Priorities in Olfactory and Gustatory Disorders
title_fullStr Commentary on Patient Advocacy and Research Priorities in Olfactory and Gustatory Disorders
title_full_unstemmed Commentary on Patient Advocacy and Research Priorities in Olfactory and Gustatory Disorders
title_short Commentary on Patient Advocacy and Research Priorities in Olfactory and Gustatory Disorders
title_sort commentary on patient advocacy and research priorities in olfactory and gustatory disorders
topic Invited Commentary
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9936105/
https://www.ncbi.nlm.nih.gov/pubmed/36811099
http://dx.doi.org/10.1007/s40136-023-00444-7
work_keys_str_mv AT gardenem commentaryonpatientadvocacyandresearchprioritiesinolfactoryandgustatorydisorders
AT espehanaa commentaryonpatientadvocacyandresearchprioritiesinolfactoryandgustatorydisorders
AT boakd commentaryonpatientadvocacyandresearchprioritiesinolfactoryandgustatorydisorders
AT gadin commentaryonpatientadvocacyandresearchprioritiesinolfactoryandgustatorydisorders
AT philpottcm commentaryonpatientadvocacyandresearchprioritiesinolfactoryandgustatorydisorders

Ejemplares similares