A conceptual framework to develop a patient-reported experience questionnaire on the cystic fibrosis journey in France: the ExPaParM collaborative study

BACKGROUND: The objective of the study was to elaborate a conceptual framework related to the domains of patient experience along the cystic fibrosis (CF) journey from the patients and parents of children with CF to inform the design of a patient-reported experience questionnaire. METHOD: A collabor...

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Detalles Bibliográficos
Autores principales: Pougheon Bertrand, D., Fanchini, A., Lombrail, P., Rault, G., Chansard, A., Le Breton, N., Frenod, C., Milon, F., Royer, C. Heymes, Segretain, D., Silber, M., Therouanne, S., Haesebaert, J., Llerena, C., Michel, P., Reynaud, Q.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9938348/
https://www.ncbi.nlm.nih.gov/pubmed/36805739
http://dx.doi.org/10.1186/s13023-023-02640-6

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