Cargando…
Fresh takes on five health data sharing domains: Quality, privacy, equity, incentives, and sustainability
As entities around the world invest in repositories and other infrastructure to facilitate health data sharing, scalable solutions to data sharing challenges are needed. We conducted semi-structured interviews with 24 experts to explore views on potential issues and policy options related to health...
Autores principales: | Guerrini, Christi J., Majumder, Mary A., Robinson, Jill O., Cook-Deegan, Robert, Blank, Matthew, Bollinger, Juli, Geary, Janis, Gutierrez, Amanda M., Shrikant, Maya, McGuire, Amy L. |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Frontiers Media S.A.
2023
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9939819/ https://www.ncbi.nlm.nih.gov/pubmed/36814524 http://dx.doi.org/10.3389/fdata.2023.1095119 |
Ejemplares similares
-
Challenges to Building a Gene Variant Commons to Assess Hereditary Cancer Risk: Results of a Modified Policy Delphi Panel Deliberation
por: Majumder, Mary A., et al.
Publicado: (2021) -
Policy options to facilitate cancer genomic variant data sharing: outcomes of a modified policy Delphi
por: Robinson, Jill O, et al.
Publicado: (2023) -
Development of an Open Database of Genes Included in Hereditary Cancer Genetic Testing Panels Available From Major Sources in the US
por: Geary, Janis, et al.
Publicado: (2022) -
Constraints on gene patent protection fuel secrecy concerns: a qualitative study
por: Guerrini, Christi J, et al.
Publicado: (2017) -
Types of Privacy Expectations
por: Rao, Ashwini, et al.
Publicado: (2020)