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Quality of Cancer Care in Tanzania as Experienced by Patients: A Qualitative Study

INTRODUCTION: Cancer is a disease of public importance in Tanzania. Considering a limited health care system with few cancer centers and low health literacy in general, people are diagnosed at late stage and face difficulties in accessing care for their cancer. All these challenges affect the caring...

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Autores principales: Kidayi, Paulo L., Manhica, Hélio, Mtuya, Christina C., Johnson, Mahande Michael, Furaha, Serventi, Aune, Ragnhild E., Björling, Gunilla
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9940171/
https://www.ncbi.nlm.nih.gov/pubmed/36814460
http://dx.doi.org/10.1177/23779608231157332
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author Kidayi, Paulo L.
Manhica, Hélio
Mtuya, Christina C.
Johnson, Mahande Michael
Furaha, Serventi
Aune, Ragnhild E.
Björling, Gunilla
author_facet Kidayi, Paulo L.
Manhica, Hélio
Mtuya, Christina C.
Johnson, Mahande Michael
Furaha, Serventi
Aune, Ragnhild E.
Björling, Gunilla
author_sort Kidayi, Paulo L.
collection PubMed
description INTRODUCTION: Cancer is a disease of public importance in Tanzania. Considering a limited health care system with few cancer centers and low health literacy in general, people are diagnosed at late stage and face difficulties in accessing care for their cancer. All these challenges affect the caring situation for the nurses who meet the patients at the cancer care centers. OBJECTIVE: This study aimed to explore the journey of cancer care experienced by patients with cancer. Research questions: How do patients experience the quality of care at the cancer care centers? How do patients experience the family’s and the community's role? METHODS: Semi-structured qualitative interviews were carried out with 15 patients treated for colorectal-, breast-, or prostate cancer in three cancer care centers in Tanzania. A purposive sampling was used. Qualitative content analysis according to Graneheim and Lundman was employed. RESULTS: Three main themes and six sub-themes emerged. The main themes were experiences of cancer care services, the role of the family, community challenges and cancer care. The sub-themes were communication, resource allocation at the cancer care centers, fmily's denial, family challenges, limitations of primary care and misconceptions, and accessibility of cancer service and the health care system. The findings show that patients experienced incapacitated health care facilities for cancer care, misconceptions in the community and challenges for the families. CONCLUSIONS: The quality of cancer care in Tanzania needs to be improved, patients face challenges in all levels of health care facilities, including families, and the community at large. The distance to oncology care, economic hardship, and lack of knowledge in the community including families, lead to late diagnosis and suffering for the patients. There is a great need for education regarding cancer within healthcare, as well as in the community, to change the situation for patients with cancer.
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spelling pubmed-99401712023-02-21 Quality of Cancer Care in Tanzania as Experienced by Patients: A Qualitative Study Kidayi, Paulo L. Manhica, Hélio Mtuya, Christina C. Johnson, Mahande Michael Furaha, Serventi Aune, Ragnhild E. Björling, Gunilla SAGE Open Nurs Stress, Burnout, and Career Decision Making Processes of Nurses INTRODUCTION: Cancer is a disease of public importance in Tanzania. Considering a limited health care system with few cancer centers and low health literacy in general, people are diagnosed at late stage and face difficulties in accessing care for their cancer. All these challenges affect the caring situation for the nurses who meet the patients at the cancer care centers. OBJECTIVE: This study aimed to explore the journey of cancer care experienced by patients with cancer. Research questions: How do patients experience the quality of care at the cancer care centers? How do patients experience the family’s and the community's role? METHODS: Semi-structured qualitative interviews were carried out with 15 patients treated for colorectal-, breast-, or prostate cancer in three cancer care centers in Tanzania. A purposive sampling was used. Qualitative content analysis according to Graneheim and Lundman was employed. RESULTS: Three main themes and six sub-themes emerged. The main themes were experiences of cancer care services, the role of the family, community challenges and cancer care. The sub-themes were communication, resource allocation at the cancer care centers, fmily's denial, family challenges, limitations of primary care and misconceptions, and accessibility of cancer service and the health care system. The findings show that patients experienced incapacitated health care facilities for cancer care, misconceptions in the community and challenges for the families. CONCLUSIONS: The quality of cancer care in Tanzania needs to be improved, patients face challenges in all levels of health care facilities, including families, and the community at large. The distance to oncology care, economic hardship, and lack of knowledge in the community including families, lead to late diagnosis and suffering for the patients. There is a great need for education regarding cancer within healthcare, as well as in the community, to change the situation for patients with cancer. SAGE Publications 2023-02-16 /pmc/articles/PMC9940171/ /pubmed/36814460 http://dx.doi.org/10.1177/23779608231157332 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Stress, Burnout, and Career Decision Making Processes of Nurses
Kidayi, Paulo L.
Manhica, Hélio
Mtuya, Christina C.
Johnson, Mahande Michael
Furaha, Serventi
Aune, Ragnhild E.
Björling, Gunilla
Quality of Cancer Care in Tanzania as Experienced by Patients: A Qualitative Study
title Quality of Cancer Care in Tanzania as Experienced by Patients: A Qualitative Study
title_full Quality of Cancer Care in Tanzania as Experienced by Patients: A Qualitative Study
title_fullStr Quality of Cancer Care in Tanzania as Experienced by Patients: A Qualitative Study
title_full_unstemmed Quality of Cancer Care in Tanzania as Experienced by Patients: A Qualitative Study
title_short Quality of Cancer Care in Tanzania as Experienced by Patients: A Qualitative Study
title_sort quality of cancer care in tanzania as experienced by patients: a qualitative study
topic Stress, Burnout, and Career Decision Making Processes of Nurses
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9940171/
https://www.ncbi.nlm.nih.gov/pubmed/36814460
http://dx.doi.org/10.1177/23779608231157332
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