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Top 10 priorities for Sexual Violence and Abuse Research: Findings of the James Lind Alliance Sexual Violence Priority Setting Partnership

OBJECTIVES: To establish a James Lind Alliance (JLA) Priority Setting Partnership (PSP) to identify research priorities relevant to the health and social care needs of adults with lived experience of recent and/or historical sexual violence/abuse. PARTICIPANTS: Adults (aged 18+ years) with lived exp...

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Autores principales: Varese, Filippo, White, Catherine, Longden, Eleanor, Charalambous, Christina, Meehan, Kate, Partington, Imogen, Ashman, Efa, Marsh, Lowri, Yule, Elizabeth, Mohamed, Laila, Chevous, Jane, Harewood, Emma, Gronlund, Toto, Jones, Anne-Marie, Malik, Samira, Maxwell, Charlotte, Perot, Concetta, Sephton, Shani, Taggart, Daniel, Tooze, Lynne, Majeed-Ariss, Rabiya
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9944274/
https://www.ncbi.nlm.nih.gov/pubmed/36806139
http://dx.doi.org/10.1136/bmjopen-2022-062961
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author Varese, Filippo
White, Catherine
Longden, Eleanor
Charalambous, Christina
Meehan, Kate
Partington, Imogen
Ashman, Efa
Marsh, Lowri
Yule, Elizabeth
Mohamed, Laila
Chevous, Jane
Harewood, Emma
Gronlund, Toto
Jones, Anne-Marie
Malik, Samira
Maxwell, Charlotte
Perot, Concetta
Sephton, Shani
Taggart, Daniel
Tooze, Lynne
Majeed-Ariss, Rabiya
author_facet Varese, Filippo
White, Catherine
Longden, Eleanor
Charalambous, Christina
Meehan, Kate
Partington, Imogen
Ashman, Efa
Marsh, Lowri
Yule, Elizabeth
Mohamed, Laila
Chevous, Jane
Harewood, Emma
Gronlund, Toto
Jones, Anne-Marie
Malik, Samira
Maxwell, Charlotte
Perot, Concetta
Sephton, Shani
Taggart, Daniel
Tooze, Lynne
Majeed-Ariss, Rabiya
author_sort Varese, Filippo
collection PubMed
description OBJECTIVES: To establish a James Lind Alliance (JLA) Priority Setting Partnership (PSP) to identify research priorities relevant to the health and social care needs of adults with lived experience of recent and/or historical sexual violence/abuse. PARTICIPANTS: Adults (aged 18+ years) with lived experience of sexual violence/abuse (ie, ‘survivors’) were consulted for this PSP, alongside healthcare and social care professionals who support survivors across the public, voluntary, community, independent practice and social enterprise sectors. METHODS: In line with standard JLA PSP methodology, participants completed an initial online survey to propose research questions relevant to the health and social care needs of survivors. Research questions unanswered by current evidence were identified, and a second online survey was deployed to identify respondents’ priorities from this list. Questions prioritised through the second survey were presented at a consensus meeting with key stakeholders to agree the top 10 research priorities using a modified nominal group technique approach. RESULTS: 223 participants (54% survivors) provided 484 suggested questions. Seventy-five unique questions unanswered by research were identified and subsequently ranked by 343 participants (60% survivors). A consensus meeting with 31 stakeholders (42% survivors) examined the top-ranking priorities from the second survey and agreed the top 10 research priorities. These included research into forms of support and recovery outcomes valued by survivors, how to best support people of colour/black, Asian and minority ethnic and lesbian, gay, bisexual, transgender, and queer (LGBTQ+) survivors, improving access to high-quality psychological therapies, reducing public misconceptions/stigma, the impact of involvement in the criminal justice system on well-being, and how physical and mental health services can become more ‘trauma informed’. CONCLUSIONS: These research priorities identify crucial gaps in the existing evidence to better support adult survivors of sexual violence and abuse. Researchers and funders should prioritise further work in these priority areas identified by survivors and the professionals who support them.
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spelling pubmed-99442742023-02-23 Top 10 priorities for Sexual Violence and Abuse Research: Findings of the James Lind Alliance Sexual Violence Priority Setting Partnership Varese, Filippo White, Catherine Longden, Eleanor Charalambous, Christina Meehan, Kate Partington, Imogen Ashman, Efa Marsh, Lowri Yule, Elizabeth Mohamed, Laila Chevous, Jane Harewood, Emma Gronlund, Toto Jones, Anne-Marie Malik, Samira Maxwell, Charlotte Perot, Concetta Sephton, Shani Taggart, Daniel Tooze, Lynne Majeed-Ariss, Rabiya BMJ Open Patient-Centred Medicine OBJECTIVES: To establish a James Lind Alliance (JLA) Priority Setting Partnership (PSP) to identify research priorities relevant to the health and social care needs of adults with lived experience of recent and/or historical sexual violence/abuse. PARTICIPANTS: Adults (aged 18+ years) with lived experience of sexual violence/abuse (ie, ‘survivors’) were consulted for this PSP, alongside healthcare and social care professionals who support survivors across the public, voluntary, community, independent practice and social enterprise sectors. METHODS: In line with standard JLA PSP methodology, participants completed an initial online survey to propose research questions relevant to the health and social care needs of survivors. Research questions unanswered by current evidence were identified, and a second online survey was deployed to identify respondents’ priorities from this list. Questions prioritised through the second survey were presented at a consensus meeting with key stakeholders to agree the top 10 research priorities using a modified nominal group technique approach. RESULTS: 223 participants (54% survivors) provided 484 suggested questions. Seventy-five unique questions unanswered by research were identified and subsequently ranked by 343 participants (60% survivors). A consensus meeting with 31 stakeholders (42% survivors) examined the top-ranking priorities from the second survey and agreed the top 10 research priorities. These included research into forms of support and recovery outcomes valued by survivors, how to best support people of colour/black, Asian and minority ethnic and lesbian, gay, bisexual, transgender, and queer (LGBTQ+) survivors, improving access to high-quality psychological therapies, reducing public misconceptions/stigma, the impact of involvement in the criminal justice system on well-being, and how physical and mental health services can become more ‘trauma informed’. CONCLUSIONS: These research priorities identify crucial gaps in the existing evidence to better support adult survivors of sexual violence and abuse. Researchers and funders should prioritise further work in these priority areas identified by survivors and the professionals who support them. BMJ Publishing Group 2023-02-20 /pmc/articles/PMC9944274/ /pubmed/36806139 http://dx.doi.org/10.1136/bmjopen-2022-062961 Text en © Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) .
spellingShingle Patient-Centred Medicine
Varese, Filippo
White, Catherine
Longden, Eleanor
Charalambous, Christina
Meehan, Kate
Partington, Imogen
Ashman, Efa
Marsh, Lowri
Yule, Elizabeth
Mohamed, Laila
Chevous, Jane
Harewood, Emma
Gronlund, Toto
Jones, Anne-Marie
Malik, Samira
Maxwell, Charlotte
Perot, Concetta
Sephton, Shani
Taggart, Daniel
Tooze, Lynne
Majeed-Ariss, Rabiya
Top 10 priorities for Sexual Violence and Abuse Research: Findings of the James Lind Alliance Sexual Violence Priority Setting Partnership
title Top 10 priorities for Sexual Violence and Abuse Research: Findings of the James Lind Alliance Sexual Violence Priority Setting Partnership
title_full Top 10 priorities for Sexual Violence and Abuse Research: Findings of the James Lind Alliance Sexual Violence Priority Setting Partnership
title_fullStr Top 10 priorities for Sexual Violence and Abuse Research: Findings of the James Lind Alliance Sexual Violence Priority Setting Partnership
title_full_unstemmed Top 10 priorities for Sexual Violence and Abuse Research: Findings of the James Lind Alliance Sexual Violence Priority Setting Partnership
title_short Top 10 priorities for Sexual Violence and Abuse Research: Findings of the James Lind Alliance Sexual Violence Priority Setting Partnership
title_sort top 10 priorities for sexual violence and abuse research: findings of the james lind alliance sexual violence priority setting partnership
topic Patient-Centred Medicine
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9944274/
https://www.ncbi.nlm.nih.gov/pubmed/36806139
http://dx.doi.org/10.1136/bmjopen-2022-062961
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