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Parenting Challenges in Families of Children with a Diagnosis of Autism Spectrum Disorder: A Qualitative Research Study in Istanbul
INTRODUCTION: This qualitative research study examines problems experienced by families with children who have received a diagnosis of autism spectrum disorder (ASD) living in Turkey. BACKGROUND: In recent years, Turkey has moved to expand services to children who have received a diagnosis of ASD an...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9947891/ https://www.ncbi.nlm.nih.gov/pubmed/36852134 http://dx.doi.org/10.1007/s40609-023-00270-1 |
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author | Rfat, Mustafa Koçak, Orhan Uzun, Büşra |
author_facet | Rfat, Mustafa Koçak, Orhan Uzun, Büşra |
author_sort | Rfat, Mustafa |
collection | PubMed |
description | INTRODUCTION: This qualitative research study examines problems experienced by families with children who have received a diagnosis of autism spectrum disorder (ASD) living in Turkey. BACKGROUND: In recent years, Turkey has moved to expand services to children who have received a diagnosis of ASD and their families. However, families still experience hidden issues that are crucial to consider while developing appropriate policies. METHOD: In this study, we interviewed 10 families whose children attended special education schools in the Bağcılar and Bahçelievler districts of Istanbul. We used semistructured interviews conducted via phone, WhatsApp video chat, and Zoom and a phenomenological approach to gain an in-depth understanding of the caregivers’ experience. Themes were obtained by utilizing descriptive analysis. RESULTS: Parents expressed a variety of concerns including financial burden, intrafamilial conflict, mental health problems, and community-related issues. CONCLUSIONS: Moving forward, the emerging social work profession should assist children who have been given a diagnosis of ASD and their parents in accessing mental and behavioral health and community-level resources, especially mothers, as they often bear the most responsibilities in Turkey. |
format | Online Article Text |
id | pubmed-9947891 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Springer International Publishing |
record_format | MEDLINE/PubMed |
spelling | pubmed-99478912023-02-23 Parenting Challenges in Families of Children with a Diagnosis of Autism Spectrum Disorder: A Qualitative Research Study in Istanbul Rfat, Mustafa Koçak, Orhan Uzun, Büşra Glob Soc Welf Original Article INTRODUCTION: This qualitative research study examines problems experienced by families with children who have received a diagnosis of autism spectrum disorder (ASD) living in Turkey. BACKGROUND: In recent years, Turkey has moved to expand services to children who have received a diagnosis of ASD and their families. However, families still experience hidden issues that are crucial to consider while developing appropriate policies. METHOD: In this study, we interviewed 10 families whose children attended special education schools in the Bağcılar and Bahçelievler districts of Istanbul. We used semistructured interviews conducted via phone, WhatsApp video chat, and Zoom and a phenomenological approach to gain an in-depth understanding of the caregivers’ experience. Themes were obtained by utilizing descriptive analysis. RESULTS: Parents expressed a variety of concerns including financial burden, intrafamilial conflict, mental health problems, and community-related issues. CONCLUSIONS: Moving forward, the emerging social work profession should assist children who have been given a diagnosis of ASD and their parents in accessing mental and behavioral health and community-level resources, especially mothers, as they often bear the most responsibilities in Turkey. Springer International Publishing 2023-02-23 /pmc/articles/PMC9947891/ /pubmed/36852134 http://dx.doi.org/10.1007/s40609-023-00270-1 Text en © The Author(s), under exclusive licence to Springer Nature Switzerland AG 2023, Springer Nature or its licensor (e.g. a society or other partner) holds exclusive rights to this article under a publishing agreement with the author(s) or other rightsholder(s); author self-archiving of the accepted manuscript version of this article is solely governed by the terms of such publishing agreement and applicable law. This article is made available via the PMC Open Access Subset for unrestricted research re-use and secondary analysis in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic. |
spellingShingle | Original Article Rfat, Mustafa Koçak, Orhan Uzun, Büşra Parenting Challenges in Families of Children with a Diagnosis of Autism Spectrum Disorder: A Qualitative Research Study in Istanbul |
title | Parenting Challenges in Families of Children with a Diagnosis of Autism Spectrum Disorder: A Qualitative Research Study in Istanbul |
title_full | Parenting Challenges in Families of Children with a Diagnosis of Autism Spectrum Disorder: A Qualitative Research Study in Istanbul |
title_fullStr | Parenting Challenges in Families of Children with a Diagnosis of Autism Spectrum Disorder: A Qualitative Research Study in Istanbul |
title_full_unstemmed | Parenting Challenges in Families of Children with a Diagnosis of Autism Spectrum Disorder: A Qualitative Research Study in Istanbul |
title_short | Parenting Challenges in Families of Children with a Diagnosis of Autism Spectrum Disorder: A Qualitative Research Study in Istanbul |
title_sort | parenting challenges in families of children with a diagnosis of autism spectrum disorder: a qualitative research study in istanbul |
topic | Original Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9947891/ https://www.ncbi.nlm.nih.gov/pubmed/36852134 http://dx.doi.org/10.1007/s40609-023-00270-1 |
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