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Parenting Challenges in Families of Children with a Diagnosis of Autism Spectrum Disorder: A Qualitative Research Study in Istanbul

INTRODUCTION: This qualitative research study examines problems experienced by families with children who have received a diagnosis of autism spectrum disorder (ASD) living in Turkey. BACKGROUND: In recent years, Turkey has moved to expand services to children who have received a diagnosis of ASD an...

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Detalles Bibliográficos
Autores principales: Rfat, Mustafa, Koçak, Orhan, Uzun, Büşra
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9947891/
https://www.ncbi.nlm.nih.gov/pubmed/36852134
http://dx.doi.org/10.1007/s40609-023-00270-1
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author Rfat, Mustafa
Koçak, Orhan
Uzun, Büşra
author_facet Rfat, Mustafa
Koçak, Orhan
Uzun, Büşra
author_sort Rfat, Mustafa
collection PubMed
description INTRODUCTION: This qualitative research study examines problems experienced by families with children who have received a diagnosis of autism spectrum disorder (ASD) living in Turkey. BACKGROUND: In recent years, Turkey has moved to expand services to children who have received a diagnosis of ASD and their families. However, families still experience hidden issues that are crucial to consider while developing appropriate policies. METHOD: In this study, we interviewed 10 families whose children attended special education schools in the Bağcılar and Bahçelievler districts of Istanbul. We used semistructured interviews conducted via phone, WhatsApp video chat, and Zoom and a phenomenological approach to gain an in-depth understanding of the caregivers’ experience. Themes were obtained by utilizing descriptive analysis. RESULTS: Parents expressed a variety of concerns including financial burden, intrafamilial conflict, mental health problems, and community-related issues. CONCLUSIONS: Moving forward, the emerging social work profession should assist children who have been given a diagnosis of ASD and their parents in accessing mental and behavioral health and community-level resources, especially mothers, as they often bear the most responsibilities in Turkey.
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spelling pubmed-99478912023-02-23 Parenting Challenges in Families of Children with a Diagnosis of Autism Spectrum Disorder: A Qualitative Research Study in Istanbul Rfat, Mustafa Koçak, Orhan Uzun, Büşra Glob Soc Welf Original Article INTRODUCTION: This qualitative research study examines problems experienced by families with children who have received a diagnosis of autism spectrum disorder (ASD) living in Turkey. BACKGROUND: In recent years, Turkey has moved to expand services to children who have received a diagnosis of ASD and their families. However, families still experience hidden issues that are crucial to consider while developing appropriate policies. METHOD: In this study, we interviewed 10 families whose children attended special education schools in the Bağcılar and Bahçelievler districts of Istanbul. We used semistructured interviews conducted via phone, WhatsApp video chat, and Zoom and a phenomenological approach to gain an in-depth understanding of the caregivers’ experience. Themes were obtained by utilizing descriptive analysis. RESULTS: Parents expressed a variety of concerns including financial burden, intrafamilial conflict, mental health problems, and community-related issues. CONCLUSIONS: Moving forward, the emerging social work profession should assist children who have been given a diagnosis of ASD and their parents in accessing mental and behavioral health and community-level resources, especially mothers, as they often bear the most responsibilities in Turkey. Springer International Publishing 2023-02-23 /pmc/articles/PMC9947891/ /pubmed/36852134 http://dx.doi.org/10.1007/s40609-023-00270-1 Text en © The Author(s), under exclusive licence to Springer Nature Switzerland AG 2023, Springer Nature or its licensor (e.g. a society or other partner) holds exclusive rights to this article under a publishing agreement with the author(s) or other rightsholder(s); author self-archiving of the accepted manuscript version of this article is solely governed by the terms of such publishing agreement and applicable law. This article is made available via the PMC Open Access Subset for unrestricted research re-use and secondary analysis in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic.
spellingShingle Original Article
Rfat, Mustafa
Koçak, Orhan
Uzun, Büşra
Parenting Challenges in Families of Children with a Diagnosis of Autism Spectrum Disorder: A Qualitative Research Study in Istanbul
title Parenting Challenges in Families of Children with a Diagnosis of Autism Spectrum Disorder: A Qualitative Research Study in Istanbul
title_full Parenting Challenges in Families of Children with a Diagnosis of Autism Spectrum Disorder: A Qualitative Research Study in Istanbul
title_fullStr Parenting Challenges in Families of Children with a Diagnosis of Autism Spectrum Disorder: A Qualitative Research Study in Istanbul
title_full_unstemmed Parenting Challenges in Families of Children with a Diagnosis of Autism Spectrum Disorder: A Qualitative Research Study in Istanbul
title_short Parenting Challenges in Families of Children with a Diagnosis of Autism Spectrum Disorder: A Qualitative Research Study in Istanbul
title_sort parenting challenges in families of children with a diagnosis of autism spectrum disorder: a qualitative research study in istanbul
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9947891/
https://www.ncbi.nlm.nih.gov/pubmed/36852134
http://dx.doi.org/10.1007/s40609-023-00270-1
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