Understanding treatment burden in hemophilia: development and validation of the Hemophilia Treatment Experience Measure (Hemo-TEM)

BACKGROUND: To capture the broad range of treatment burden issues experienced by adolescent and adult people with hemophilia (PWH), the Hemophilia Treatment Experience Measure (Hemo-TEM) was developed. We describe the development of this new hemophilia-specific patient-reported outcome (PRO) measure...

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Detalles Bibliográficos
Autores principales: Brod, Meryl, Bushnell, Donald M., Neergaard, Jesper Skov, Waldman, Laura Tesler, Busk, Anne Kirstine
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2023
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9950311/
https://www.ncbi.nlm.nih.gov/pubmed/36821002
http://dx.doi.org/10.1186/s41687-023-00550-6

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9950311/
https://www.ncbi.nlm.nih.gov/pubmed/36821002
http://dx.doi.org/10.1186/s41687-023-00550-6

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