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Fathers’ Experiences of Caring for a Child with a Chronic Illness: A Systematic Review
The prevalence of children living with chronic health conditions is increasing worldwide and can disrupt family roles, relationships, function, and parental involvement in family caregiving. The purpose of this systematic review was to explore fathers’ experiences and involvement in caring for a chi...
Autores principales: | , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9955404/ https://www.ncbi.nlm.nih.gov/pubmed/36832326 http://dx.doi.org/10.3390/children10020197 |
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author | Spurr, Shelley Danford, Cynthia A. Roberts, Karyn J. Sheppard-LeMoine, Debbie Machado Silva-Rodrigues, Fernanda Darezzo Rodrigues Nunes, Michelle Darmofal, Leslie Ersig, Anne L. Foster, Mandie Giambra, Barbara Lerret, Stacee Polfuss, Michele Smith, Lindsay Somanadhan, Suja |
author_facet | Spurr, Shelley Danford, Cynthia A. Roberts, Karyn J. Sheppard-LeMoine, Debbie Machado Silva-Rodrigues, Fernanda Darezzo Rodrigues Nunes, Michelle Darmofal, Leslie Ersig, Anne L. Foster, Mandie Giambra, Barbara Lerret, Stacee Polfuss, Michele Smith, Lindsay Somanadhan, Suja |
author_sort | Spurr, Shelley |
collection | PubMed |
description | The prevalence of children living with chronic health conditions is increasing worldwide and can disrupt family roles, relationships, function, and parental involvement in family caregiving. The purpose of this systematic review was to explore fathers’ experiences and involvement in caring for a child with a chronic condition. Systematic searches using seven databases were conducted. Study criteria included (1) peer-reviewed original research in English, Spanish, French, or Portuguese, (2) children less than 19 years of age with a chronic condition, (3) fathers (biological or guardian) as direct informants, and (4) outcomes addressing fathers’ experience, perceptions, and/or involvement in the child’s care. Data were synthesized from ten articles reflecting eight separate studies that utilized quantitative designs. Three areas of focus were identified: Family Functioning, Father’s Psychological Health, and Need for Support. Data suggested increased involvement from the father in caring for their child with a chronic condition was associated with improved family functioning, increased anxiety and distress, decreased self-esteem, and increased need for support. This review revealed a paucity of data regarding fathers’ experiences and involvement when caring for a child with a chronic condition, with that available primarily from developed countries. Rigorous empirical studies are needed to deepen understanding of how fathers are involved in the care of their child with a chronic condition. |
format | Online Article Text |
id | pubmed-9955404 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-99554042023-02-25 Fathers’ Experiences of Caring for a Child with a Chronic Illness: A Systematic Review Spurr, Shelley Danford, Cynthia A. Roberts, Karyn J. Sheppard-LeMoine, Debbie Machado Silva-Rodrigues, Fernanda Darezzo Rodrigues Nunes, Michelle Darmofal, Leslie Ersig, Anne L. Foster, Mandie Giambra, Barbara Lerret, Stacee Polfuss, Michele Smith, Lindsay Somanadhan, Suja Children (Basel) Review The prevalence of children living with chronic health conditions is increasing worldwide and can disrupt family roles, relationships, function, and parental involvement in family caregiving. The purpose of this systematic review was to explore fathers’ experiences and involvement in caring for a child with a chronic condition. Systematic searches using seven databases were conducted. Study criteria included (1) peer-reviewed original research in English, Spanish, French, or Portuguese, (2) children less than 19 years of age with a chronic condition, (3) fathers (biological or guardian) as direct informants, and (4) outcomes addressing fathers’ experience, perceptions, and/or involvement in the child’s care. Data were synthesized from ten articles reflecting eight separate studies that utilized quantitative designs. Three areas of focus were identified: Family Functioning, Father’s Psychological Health, and Need for Support. Data suggested increased involvement from the father in caring for their child with a chronic condition was associated with improved family functioning, increased anxiety and distress, decreased self-esteem, and increased need for support. This review revealed a paucity of data regarding fathers’ experiences and involvement when caring for a child with a chronic condition, with that available primarily from developed countries. Rigorous empirical studies are needed to deepen understanding of how fathers are involved in the care of their child with a chronic condition. MDPI 2023-01-20 /pmc/articles/PMC9955404/ /pubmed/36832326 http://dx.doi.org/10.3390/children10020197 Text en © 2023 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Review Spurr, Shelley Danford, Cynthia A. Roberts, Karyn J. Sheppard-LeMoine, Debbie Machado Silva-Rodrigues, Fernanda Darezzo Rodrigues Nunes, Michelle Darmofal, Leslie Ersig, Anne L. Foster, Mandie Giambra, Barbara Lerret, Stacee Polfuss, Michele Smith, Lindsay Somanadhan, Suja Fathers’ Experiences of Caring for a Child with a Chronic Illness: A Systematic Review |
title | Fathers’ Experiences of Caring for a Child with a Chronic Illness: A Systematic Review |
title_full | Fathers’ Experiences of Caring for a Child with a Chronic Illness: A Systematic Review |
title_fullStr | Fathers’ Experiences of Caring for a Child with a Chronic Illness: A Systematic Review |
title_full_unstemmed | Fathers’ Experiences of Caring for a Child with a Chronic Illness: A Systematic Review |
title_short | Fathers’ Experiences of Caring for a Child with a Chronic Illness: A Systematic Review |
title_sort | fathers’ experiences of caring for a child with a chronic illness: a systematic review |
topic | Review |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9955404/ https://www.ncbi.nlm.nih.gov/pubmed/36832326 http://dx.doi.org/10.3390/children10020197 |
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