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Nursing Practice and Care Structure for Children and Their Families in Need of Pediatric Palliative and End-of-Life Care in Japan: A Nationwide Survey

Many nurses experience difficulties in pediatric palliative care practice. The study aimed to describe the current situation and structure of pediatric palliative and end-of-life care nursing practices for children and their families in Japan. The research subjects were nurses working in hospitals;...

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Autores principales: Nagoya, Yuko, Matsuoka, Mari, Takenouchi, Naoko, Hirata, Mika, Arita, Naoko, Kawakatsu, Kazuko, Furuhashi, Tomoko, Ishiura, Mitsuyo, Nakatani, Fumi
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Lippincott Williams & Wilkins 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9973431/
https://www.ncbi.nlm.nih.gov/pubmed/36696227
http://dx.doi.org/10.1097/NJH.0000000000000933
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author Nagoya, Yuko
Matsuoka, Mari
Takenouchi, Naoko
Hirata, Mika
Arita, Naoko
Kawakatsu, Kazuko
Furuhashi, Tomoko
Ishiura, Mitsuyo
Nakatani, Fumi
author_facet Nagoya, Yuko
Matsuoka, Mari
Takenouchi, Naoko
Hirata, Mika
Arita, Naoko
Kawakatsu, Kazuko
Furuhashi, Tomoko
Ishiura, Mitsuyo
Nakatani, Fumi
author_sort Nagoya, Yuko
collection PubMed
description Many nurses experience difficulties in pediatric palliative care practice. The study aimed to describe the current situation and structure of pediatric palliative and end-of-life care nursing practices for children and their families in Japan. The research subjects were nurses working in hospitals; facilities for persons with severe physical, motor, and intellectual disabilities; and home-visit nursing stations. The practice ratio was calculated using a 79-item survey form, and factor analysis was conducted. A total of 113 facilities (acceptance rate: 26.5%) and 777 nurses (response rate: 44.6%) responded. Five items had a “Practicing” ratio of ≥90%. In factor analysis, 7 domains were identified: “preparing to face the time of death with the child and family,” “ensuring child-centered care,” “managing symptoms with the child and family,” “considering and coordinating for the child's peaceful time of death,” “understanding and respecting the culture of the child and family,” “assessing the child and family as a whole person,” and “performing self-reflection on an ethical issue.” Nurses' practice of pediatric palliative care differs by practice domain. It is necessary to reflect on the educational programs under development to improve the quality of life of children and their families.
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spelling pubmed-99734312023-03-01 Nursing Practice and Care Structure for Children and Their Families in Need of Pediatric Palliative and End-of-Life Care in Japan: A Nationwide Survey Nagoya, Yuko Matsuoka, Mari Takenouchi, Naoko Hirata, Mika Arita, Naoko Kawakatsu, Kazuko Furuhashi, Tomoko Ishiura, Mitsuyo Nakatani, Fumi J Hosp Palliat Nurs Online-Only Articles Many nurses experience difficulties in pediatric palliative care practice. The study aimed to describe the current situation and structure of pediatric palliative and end-of-life care nursing practices for children and their families in Japan. The research subjects were nurses working in hospitals; facilities for persons with severe physical, motor, and intellectual disabilities; and home-visit nursing stations. The practice ratio was calculated using a 79-item survey form, and factor analysis was conducted. A total of 113 facilities (acceptance rate: 26.5%) and 777 nurses (response rate: 44.6%) responded. Five items had a “Practicing” ratio of ≥90%. In factor analysis, 7 domains were identified: “preparing to face the time of death with the child and family,” “ensuring child-centered care,” “managing symptoms with the child and family,” “considering and coordinating for the child's peaceful time of death,” “understanding and respecting the culture of the child and family,” “assessing the child and family as a whole person,” and “performing self-reflection on an ethical issue.” Nurses' practice of pediatric palliative care differs by practice domain. It is necessary to reflect on the educational programs under development to improve the quality of life of children and their families. Lippincott Williams & Wilkins 2023-04 2023-01-25 /pmc/articles/PMC9973431/ /pubmed/36696227 http://dx.doi.org/10.1097/NJH.0000000000000933 Text en Copyright © 2023 The Authors. Published by Wolters Kluwer Health, Inc. on behalf of The Hospice and Palliative Nurses Association. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution-Non Commercial-No Derivatives License 4.0 (CCBY-NC-ND) (https://creativecommons.org/licenses/by-nc-nd/4.0/) , where it is permissible to download and share the work provided it is properly cited. The work cannot be changed in any way or used commercially without permission from the journal.
spellingShingle Online-Only Articles
Nagoya, Yuko
Matsuoka, Mari
Takenouchi, Naoko
Hirata, Mika
Arita, Naoko
Kawakatsu, Kazuko
Furuhashi, Tomoko
Ishiura, Mitsuyo
Nakatani, Fumi
Nursing Practice and Care Structure for Children and Their Families in Need of Pediatric Palliative and End-of-Life Care in Japan: A Nationwide Survey
title Nursing Practice and Care Structure for Children and Their Families in Need of Pediatric Palliative and End-of-Life Care in Japan: A Nationwide Survey
title_full Nursing Practice and Care Structure for Children and Their Families in Need of Pediatric Palliative and End-of-Life Care in Japan: A Nationwide Survey
title_fullStr Nursing Practice and Care Structure for Children and Their Families in Need of Pediatric Palliative and End-of-Life Care in Japan: A Nationwide Survey
title_full_unstemmed Nursing Practice and Care Structure for Children and Their Families in Need of Pediatric Palliative and End-of-Life Care in Japan: A Nationwide Survey
title_short Nursing Practice and Care Structure for Children and Their Families in Need of Pediatric Palliative and End-of-Life Care in Japan: A Nationwide Survey
title_sort nursing practice and care structure for children and their families in need of pediatric palliative and end-of-life care in japan: a nationwide survey
topic Online-Only Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9973431/
https://www.ncbi.nlm.nih.gov/pubmed/36696227
http://dx.doi.org/10.1097/NJH.0000000000000933
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