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Exploring the lived experience of families with a COVID-19 positive child: The journey from a critical grounded theory approach
COVID-19 and associated public health policies have significantly disrupted the lives of both adults and children. Experiences of COVID-positive adults are well described but less is known about the experiences of families of children who receive a positive diagnosis, and the impact of public health...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Public Library of Science
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9977002/ https://www.ncbi.nlm.nih.gov/pubmed/36857356 http://dx.doi.org/10.1371/journal.pone.0282481 |
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author | Kaufman, Jessica Bagot, Kathleen L. Williams, Tria Jos, Carol Danchin, Margie |
author_facet | Kaufman, Jessica Bagot, Kathleen L. Williams, Tria Jos, Carol Danchin, Margie |
author_sort | Kaufman, Jessica |
collection | PubMed |
description | COVID-19 and associated public health policies have significantly disrupted the lives of both adults and children. Experiences of COVID-positive adults are well described but less is known about the experiences of families of children who receive a positive diagnosis, and the impact of public health policies on this experience. This study aimed to develop a framework to understand the lived experience of families with a child testing positive for COVID-19. We applied a qualitative study design, using grounded theory. The study took place in Melbourne, Australia between July and December 2020, during the first major Australian COVID-19 wave. Parents of children 0–18 years tested at a walk-in clinic at a paediatric tertiary referral hospital were invited to participate. Two interviewers jointly undertook in-depth interviews with parents of children who tested positive. Interviews were transcribed and two analysts used an inductive, critical realist analysis approach with NVivo and a virtual whiteboard. Results are presented incorporating a stratified reality (empirical, actual, real). Families described seven sequential stages of the COVID-19 positive testing journey: COVID-19 close to home; time to be tested; waiting for the test result; receiving the result; dealing with the diagnosis; coping with isolation; and moving forward/looking back. Our findings highlight how public health policies and messages targeting the general (adult) public were experienced by families. We provide a framework that families move through when their child tests positive for COVID-19. Within each phase, we report unmet needs and identify strategies to improve future pandemic planning for parents and children. |
format | Online Article Text |
id | pubmed-9977002 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Public Library of Science |
record_format | MEDLINE/PubMed |
spelling | pubmed-99770022023-03-02 Exploring the lived experience of families with a COVID-19 positive child: The journey from a critical grounded theory approach Kaufman, Jessica Bagot, Kathleen L. Williams, Tria Jos, Carol Danchin, Margie PLoS One Research Article COVID-19 and associated public health policies have significantly disrupted the lives of both adults and children. Experiences of COVID-positive adults are well described but less is known about the experiences of families of children who receive a positive diagnosis, and the impact of public health policies on this experience. This study aimed to develop a framework to understand the lived experience of families with a child testing positive for COVID-19. We applied a qualitative study design, using grounded theory. The study took place in Melbourne, Australia between July and December 2020, during the first major Australian COVID-19 wave. Parents of children 0–18 years tested at a walk-in clinic at a paediatric tertiary referral hospital were invited to participate. Two interviewers jointly undertook in-depth interviews with parents of children who tested positive. Interviews were transcribed and two analysts used an inductive, critical realist analysis approach with NVivo and a virtual whiteboard. Results are presented incorporating a stratified reality (empirical, actual, real). Families described seven sequential stages of the COVID-19 positive testing journey: COVID-19 close to home; time to be tested; waiting for the test result; receiving the result; dealing with the diagnosis; coping with isolation; and moving forward/looking back. Our findings highlight how public health policies and messages targeting the general (adult) public were experienced by families. We provide a framework that families move through when their child tests positive for COVID-19. Within each phase, we report unmet needs and identify strategies to improve future pandemic planning for parents and children. Public Library of Science 2023-03-01 /pmc/articles/PMC9977002/ /pubmed/36857356 http://dx.doi.org/10.1371/journal.pone.0282481 Text en © 2023 Kaufman et al https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. |
spellingShingle | Research Article Kaufman, Jessica Bagot, Kathleen L. Williams, Tria Jos, Carol Danchin, Margie Exploring the lived experience of families with a COVID-19 positive child: The journey from a critical grounded theory approach |
title | Exploring the lived experience of families with a COVID-19 positive child: The journey from a critical grounded theory approach |
title_full | Exploring the lived experience of families with a COVID-19 positive child: The journey from a critical grounded theory approach |
title_fullStr | Exploring the lived experience of families with a COVID-19 positive child: The journey from a critical grounded theory approach |
title_full_unstemmed | Exploring the lived experience of families with a COVID-19 positive child: The journey from a critical grounded theory approach |
title_short | Exploring the lived experience of families with a COVID-19 positive child: The journey from a critical grounded theory approach |
title_sort | exploring the lived experience of families with a covid-19 positive child: the journey from a critical grounded theory approach |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9977002/ https://www.ncbi.nlm.nih.gov/pubmed/36857356 http://dx.doi.org/10.1371/journal.pone.0282481 |
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