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Exploring the lived experience of families with a COVID-19 positive child: The journey from a critical grounded theory approach

COVID-19 and associated public health policies have significantly disrupted the lives of both adults and children. Experiences of COVID-positive adults are well described but less is known about the experiences of families of children who receive a positive diagnosis, and the impact of public health...

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Autores principales: Kaufman, Jessica, Bagot, Kathleen L., Williams, Tria, Jos, Carol, Danchin, Margie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9977002/
https://www.ncbi.nlm.nih.gov/pubmed/36857356
http://dx.doi.org/10.1371/journal.pone.0282481
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author Kaufman, Jessica
Bagot, Kathleen L.
Williams, Tria
Jos, Carol
Danchin, Margie
author_facet Kaufman, Jessica
Bagot, Kathleen L.
Williams, Tria
Jos, Carol
Danchin, Margie
author_sort Kaufman, Jessica
collection PubMed
description COVID-19 and associated public health policies have significantly disrupted the lives of both adults and children. Experiences of COVID-positive adults are well described but less is known about the experiences of families of children who receive a positive diagnosis, and the impact of public health policies on this experience. This study aimed to develop a framework to understand the lived experience of families with a child testing positive for COVID-19. We applied a qualitative study design, using grounded theory. The study took place in Melbourne, Australia between July and December 2020, during the first major Australian COVID-19 wave. Parents of children 0–18 years tested at a walk-in clinic at a paediatric tertiary referral hospital were invited to participate. Two interviewers jointly undertook in-depth interviews with parents of children who tested positive. Interviews were transcribed and two analysts used an inductive, critical realist analysis approach with NVivo and a virtual whiteboard. Results are presented incorporating a stratified reality (empirical, actual, real). Families described seven sequential stages of the COVID-19 positive testing journey: COVID-19 close to home; time to be tested; waiting for the test result; receiving the result; dealing with the diagnosis; coping with isolation; and moving forward/looking back. Our findings highlight how public health policies and messages targeting the general (adult) public were experienced by families. We provide a framework that families move through when their child tests positive for COVID-19. Within each phase, we report unmet needs and identify strategies to improve future pandemic planning for parents and children.
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spelling pubmed-99770022023-03-02 Exploring the lived experience of families with a COVID-19 positive child: The journey from a critical grounded theory approach Kaufman, Jessica Bagot, Kathleen L. Williams, Tria Jos, Carol Danchin, Margie PLoS One Research Article COVID-19 and associated public health policies have significantly disrupted the lives of both adults and children. Experiences of COVID-positive adults are well described but less is known about the experiences of families of children who receive a positive diagnosis, and the impact of public health policies on this experience. This study aimed to develop a framework to understand the lived experience of families with a child testing positive for COVID-19. We applied a qualitative study design, using grounded theory. The study took place in Melbourne, Australia between July and December 2020, during the first major Australian COVID-19 wave. Parents of children 0–18 years tested at a walk-in clinic at a paediatric tertiary referral hospital were invited to participate. Two interviewers jointly undertook in-depth interviews with parents of children who tested positive. Interviews were transcribed and two analysts used an inductive, critical realist analysis approach with NVivo and a virtual whiteboard. Results are presented incorporating a stratified reality (empirical, actual, real). Families described seven sequential stages of the COVID-19 positive testing journey: COVID-19 close to home; time to be tested; waiting for the test result; receiving the result; dealing with the diagnosis; coping with isolation; and moving forward/looking back. Our findings highlight how public health policies and messages targeting the general (adult) public were experienced by families. We provide a framework that families move through when their child tests positive for COVID-19. Within each phase, we report unmet needs and identify strategies to improve future pandemic planning for parents and children. Public Library of Science 2023-03-01 /pmc/articles/PMC9977002/ /pubmed/36857356 http://dx.doi.org/10.1371/journal.pone.0282481 Text en © 2023 Kaufman et al https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
spellingShingle Research Article
Kaufman, Jessica
Bagot, Kathleen L.
Williams, Tria
Jos, Carol
Danchin, Margie
Exploring the lived experience of families with a COVID-19 positive child: The journey from a critical grounded theory approach
title Exploring the lived experience of families with a COVID-19 positive child: The journey from a critical grounded theory approach
title_full Exploring the lived experience of families with a COVID-19 positive child: The journey from a critical grounded theory approach
title_fullStr Exploring the lived experience of families with a COVID-19 positive child: The journey from a critical grounded theory approach
title_full_unstemmed Exploring the lived experience of families with a COVID-19 positive child: The journey from a critical grounded theory approach
title_short Exploring the lived experience of families with a COVID-19 positive child: The journey from a critical grounded theory approach
title_sort exploring the lived experience of families with a covid-19 positive child: the journey from a critical grounded theory approach
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9977002/
https://www.ncbi.nlm.nih.gov/pubmed/36857356
http://dx.doi.org/10.1371/journal.pone.0282481
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