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“Peas in a pod”: Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults

In this paper, we report on a participatory oral history study documenting the lives of late-diagnosed autistic adults in Australia. We interviewed 26 autistic adults about their life history and the impact of late diagnosis. All were diagnosed after the age of 35, growing up in an era when autism w...

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Autores principales: Lilley, Rozanna, Lawson, Wenn, Hall, Gabrielle, Mahony, Joanne, Clapham, Hayley, Heyworth, Melanie, Arnold, Samuel, Trollor, Julian, Yudell, Michael, Pellicano, Elizabeth
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9986211/
https://www.ncbi.nlm.nih.gov/pubmed/35834048
http://dx.doi.org/10.1007/s10803-022-05667-z
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author Lilley, Rozanna
Lawson, Wenn
Hall, Gabrielle
Mahony, Joanne
Clapham, Hayley
Heyworth, Melanie
Arnold, Samuel
Trollor, Julian
Yudell, Michael
Pellicano, Elizabeth
author_facet Lilley, Rozanna
Lawson, Wenn
Hall, Gabrielle
Mahony, Joanne
Clapham, Hayley
Heyworth, Melanie
Arnold, Samuel
Trollor, Julian
Yudell, Michael
Pellicano, Elizabeth
author_sort Lilley, Rozanna
collection PubMed
description In this paper, we report on a participatory oral history study documenting the lives of late-diagnosed autistic adults in Australia. We interviewed 26 autistic adults about their life history and the impact of late diagnosis. All were diagnosed after the age of 35, growing up in an era when autism was not well known. Using reflexive thematic analysis, we uncovered a rich body of reflections on shared Autistic identity and identified three major themes within that data set: ‘conceptualising the Autistic family’, ‘creating Autistic community’, and ‘contesting Autistic identity’. Overall, the study provides insights into the active creation of shared Autistic identity and the importance of Autistic community to these late-diagnosed autistic adults.
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spelling pubmed-99862112023-03-07 “Peas in a pod”: Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults Lilley, Rozanna Lawson, Wenn Hall, Gabrielle Mahony, Joanne Clapham, Hayley Heyworth, Melanie Arnold, Samuel Trollor, Julian Yudell, Michael Pellicano, Elizabeth J Autism Dev Disord Original Paper In this paper, we report on a participatory oral history study documenting the lives of late-diagnosed autistic adults in Australia. We interviewed 26 autistic adults about their life history and the impact of late diagnosis. All were diagnosed after the age of 35, growing up in an era when autism was not well known. Using reflexive thematic analysis, we uncovered a rich body of reflections on shared Autistic identity and identified three major themes within that data set: ‘conceptualising the Autistic family’, ‘creating Autistic community’, and ‘contesting Autistic identity’. Overall, the study provides insights into the active creation of shared Autistic identity and the importance of Autistic community to these late-diagnosed autistic adults. Springer US 2022-07-14 2023 /pmc/articles/PMC9986211/ /pubmed/35834048 http://dx.doi.org/10.1007/s10803-022-05667-z Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) .
spellingShingle Original Paper
Lilley, Rozanna
Lawson, Wenn
Hall, Gabrielle
Mahony, Joanne
Clapham, Hayley
Heyworth, Melanie
Arnold, Samuel
Trollor, Julian
Yudell, Michael
Pellicano, Elizabeth
“Peas in a pod”: Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults
title “Peas in a pod”: Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults
title_full “Peas in a pod”: Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults
title_fullStr “Peas in a pod”: Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults
title_full_unstemmed “Peas in a pod”: Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults
title_short “Peas in a pod”: Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults
title_sort “peas in a pod”: oral history reflections on autistic identity in family and community by late-diagnosed adults
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9986211/
https://www.ncbi.nlm.nih.gov/pubmed/35834048
http://dx.doi.org/10.1007/s10803-022-05667-z
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